Listen free for 30 days
Thriving with Neurofibromatosis
- Narrated by: Kirstianne Hopkins
- Length: 2 hrs and 59 mins
Add to Cart failed.
Add to Wish List failed.
Remove from wish list failed.
Follow podcast failed
Unfollow podcast failed
Buy Now for $8.71
One in 3,000 people is born with neurofibromatosis. It affects all of them in different ways. For some, neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of them are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all the effects of NF. Stereotyped, ignored, or shunned by a world who thinks they either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks, NF'ers often choose to hide from others - and end up hiding from themselves.
My name is Kristi Hopkins. In 2007, I chose to stop hiding, and start thriving. NF had become a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do you.
Thriving with Neurofibromatosis. We all have a story, this is mine.
What listeners say about Thriving with NeurofibromatosisAverage Customer Ratings
Reviews - Please select the tabs below to change the source of reviews.
- michael harvey
What a waste
Please don’t waste your time on this one. Nf is barely mentioned in this story. This book is more about her life growing up where nf is barely mentioned. I have nf and found this book a complete waste of my time
Something went wrong. Please try again in a few minutes.
You voted on this review!
You reported this review!