This week, Mark is joined by Michelle Parton – a long-time Neuroshambles listener and parent of two neurodivergent children. They explore one of the more baffling challenges of raising our kids: why do so many of them flat-out refuse medical assistance?

From hiding lava lamp injuries to meltdown-inducing blood tests, Mark and Michelle swap tales of their kids’ iron-willed resistance to all forms of treatment – even when they’re clearly in pain, bleeding, or itching uncontrollably. Together, they explore the many reasons this might be happening – from sensory issues and PDA to past trauma, masking, and a fundamental lack of trust in strangers in latex gloves.

It’s funny, cathartic, at times heartbreaking – definitely one for anyone who’s ever tried (and failed) to administer Calpol to a deeply suspicious neurodifferent child.

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CHAPTER TIMESTAMPS (Estimated):

00:00 – Intro & Meet the Guest: Michelle Parton

03:00 – Topic of the Week: Refusing Medical Help

08:00 – Kids hiding injuries

13:00 – Dysregulation about the prospect of going to the doctor

17:30 – Trust issues with medical professionals

23:00 – Lyme disease and the unholy nightmare of blood tests

29:00 – Trying to administer medication

35:00 – The impact of sensory overwhelm: Plasters, creams & the taste of medication

42:00 – The added complication with PDA kids

47:00 – The role that masking might play

54:00 – How alexithymia and interoception can influence things

59:00 – The impact of past traumatic experiences

1:04:00 – The positives

1:06:00 – Neurodiversity Champions

1:10:00 – Tiny Epic Wins

1:14:00 – “What the Flip?” moments

1:18:00 – Wrap-Up & Where to Find Us

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LINKS TO STUFF WE MENTION IN THIS EPISODE:

Lyme Disease - https://www.nhs.uk/conditions/lyme-disease/

Alexithymia - https://www.bbc.co.uk/news/articles/cg4ky5qgrlpo

Interoception - https://www.autism.org.uk/advice-and-guidance/professional-practice/interoception-wellbeing

Beyond Creative Education - https://www.beyondcreativeeducation.org.uk/

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CONTACT US

🌐 Website: www.neuroshambles.com

📧 Email: hello@neuroshambles.com

📸 Instagram: @neuroshambles

🎵 TikTok: @neuroshamblespod

📘 Facebook: Neuroshambles

🧵 Threads: @neuroshambles

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CREDITS

🎶 Theme music by Skilsel on Pixabay: pixabay.com

In part two of this deep dive into transitions, Mark reunites with author, trainer, and neurodiversity advocate Pete Wharmby to look at more reasons they can cause such a monumental challenge for autistic, ADHD and PDA kids (and adults).

From difficulties pulling our kids away from screen-time and replacing a broken fridge, to the regular flashpoint of brushing teeth, Mark and Pete share real-life strategies that can make these transitions more manageable - or at the very least a bit more fun.

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00:00 - Welcome back and reintroducing Pete Wharmby

02:30 - Recap of what we covered in episode 45 and why transitions affect all neurodivergent kids

06:10 - Screen time, flow states and Pete's oil tanker analogy

16:45 - The role that monotropism plays in transitions

27:00 - Strategies: lead-In Times, choice and routines

36:40 - Understanding how PDA affects transitions and why it’s not just defiance

46:00 - Strategies for control-driven transitions (e.g. declarative language)

55:30 - Difficulty throwing stuff away: fridges, crocs and clinging to familiarity

1:04:30 - Schools as the perfect storm of transitional triggers

1:15:20 - The positives

1:18:00 - Neurodiversity Champions

1:20:40 - Tiny Epic Wins

1:23:15 - "What the flip?" moments

1:26:00 - Wrap-up and thanks

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Pete Wharmby website - https://petewharmby.com/

Untypical by Pete Wharmby - https://amzn.eu/d/8gGK6v4

What I Want to Talk About, by Pete Wharmby - https://amzn.eu/d/6tY0kZQ

What is monotropism? - https://www.autism.org.uk/advice-and-guidance/professional-practice/what-is-monotropism

Last One Laughing - https://en.wikipedia.org/wiki/LOL:_Last_One_Laughing_UK

Ausome Training, Cothu course - https://ausometraining.com/cothu-with-pete-wharmby

Declarative language - https://lifeskillsadvocate.com/blog/declarative-language-for-neurodivergent-communicators/

Anna Freud - https://www.annafreud.org/

Georgia Pavlopoulou (LinkedIn) - https://www.linkedin.com/in/dr-georgia-pavlopoulou-651a042a

Neuro Nook Storytime - https://www.neuronookstorytime.com/

Bedknobs and Broomsticks - https://en.wikipedia.org/wiki/Bedknobs_and_Broomsticks

Silksong - https://en.wikipedia.org/wiki/Hollow_Knight:_Silksong

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🌐 Website: www.neuroshambles.com

📧 Email: hello@neuroshambles.com

📸 Instagram: @neuroshambles

🎵 TikTok: @neuroshamblespod

📘 Facebook: Neuroshambles

🧵 Threads: @neuroshambles

⸻

🎶 Theme music by Skilsel on Pixabay

This episode of Neuroshambles, will resonate will all parents of neurodifferent kids, as Mark discusses difficulties with transition with the wonderful autism advocate, Pete Wharmby. Together, they delve into the messy, stressful, and often misunderstood world of transitions – from seemingly small everyday routines to major life changes.

Whether it’s leaving the house, going into school, or prying them away from screen time, transitions can often be a sensory, emotional and logistical nightmare for autistic, ADHD and PDA kids (and adults). But why exactly are they so hard – and what can we do to ease the load?

This is a funny, heartfelt, and cathartic episode full of insight, compassion and practical suggestions, as well as a much-needed sense of solidarity for anyone who’s ever dreaded their kids being invited to a birthday party.

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CHAPTER TIMESTAMPS (Estimated):

00:00 – Intro and why this is only part one

03:30 – Meet the guest: Pete Wharmby

12:00 – Transitions: What they are and why they’re so difficult

19:00 – Fear of the unknown

25:00 – Why birthday parties can be so anxiety-inducing

32:00 – Strategies for smoother transitions to the unknown

40:00 – School and powerlessness

48:00 – Holidays, Google Earth and visual planning

55:00 – Fear of the Known: Why school can feel like a punishment

1:03:00 – Processing struggles and instruction overload

1:13:00 – Fixable triggers and simple (free) accommodations

1:20:00 – The double-edged sword of hyperfocus

1:24:00 – Neurodiversity Champion: Fight For Ordinary

1:26:30 – Tiny Epic Wins

1:29:00 – What the Flip? Moments

1:33:00 – Wrap-up and tease for part 2

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LINKS TO STUFF WE MENTION:

Pete Wharmby website - https://petewharmby.com/

Untypical by Pete Wharmby - https://amzn.eu/d/8gGK6v4

What I Want to Talk About, by Pete Wharmby - https://amzn.eu/d/6tY0kZQ

Fight for Ordinary - https://disabledchildrenspartnership.org.uk/fight-for-ordinary/

Google Maps Street View - https://www.google.com/streetview/

Google Earth - https://earth.google.com/web/

Ordnance Survey Maps - https://shop.ordnancesurvey.co.uk/

Albion In The Community - https://bhafcfoundation.org.uk/

Monotropism and Autism Theory - https://monotropism.org/

Interoception - https://www.autism.org.uk/advice-and-guidance/professional-practice/interoception-wellbeing

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CONTACT US

🌐 Website: www.neuroshambles.com

📧 Email: hello@neuroshambles.com

📸 Instagram: @neuroshambles

🎵 TikTok: @neuroshamblespod

📘 Facebook: Neuroshambles

🧵 Threads: @neuroshambles

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CREDITS

🎶 Theme music by Skilsel on Pixabay: pixabay.com