Épisodes

  • Kids refusing medical help | Michelle Parton
    Nov 19 2025

    This week, Mark is joined by Michelle Parton – a long-time Neuroshambles listener and parent of two neurodivergent children. They explore one of the more baffling challenges of raising our kids: why do so many of them flat-out refuse medical assistance?

    From hiding lava lamp injuries to meltdown-inducing blood tests, Mark and Michelle swap tales of their kids’ iron-willed resistance to all forms of treatment – even when they’re clearly in pain, bleeding, or itching uncontrollably. Together, they explore the many reasons this might be happening – from sensory issues and PDA to past trauma, masking, and a fundamental lack of trust in strangers in latex gloves.

    It’s funny, cathartic, at times heartbreaking – definitely one for anyone who’s ever tried (and failed) to administer Calpol to a deeply suspicious neurodifferent child.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 – Intro & Meet the Guest: Michelle Parton

    03:00 – Topic of the Week: Refusing Medical Help

    08:00 – Kids hiding injuries

    13:00 – Dysregulation about the prospect of going to the doctor

    17:30 – Trust issues with medical professionals

    23:00 – Lyme disease and the unholy nightmare of blood tests

    29:00 – Trying to administer medication

    35:00 – The impact of sensory overwhelm: Plasters, creams & the taste of medication

    42:00 – The added complication with PDA kids

    47:00 – The role that masking might play

    54:00 – How alexithymia and interoception can influence things

    59:00 – The impact of past traumatic experiences

    1:04:00 – The positives

    1:06:00 – Neurodiversity Champions

    1:10:00 – Tiny Epic Wins

    1:14:00 – “What the Flip?” moments

    1:18:00 – Wrap-Up & Where to Find Us

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Lyme Disease - https://www.nhs.uk/conditions/lyme-disease/

    Alexithymia - https://www.bbc.co.uk/news/articles/cg4ky5qgrlpo

    Interoception - https://www.autism.org.uk/advice-and-guidance/professional-practice/interoception-wellbeing

    Beyond Creative Education - https://www.beyondcreativeeducation.org.uk/

    CONTACT US

    🌐 Website: www.neuroshambles.com

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: pixabay.com

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    1 h et 23 min
  • Difficulty with transitions - Part 2 | Pete Wharmby
    Nov 5 2025

    In part two of this deep dive into transitions, Mark reunites with author, trainer, and neurodiversity advocate Pete Wharmby to look at more reasons they can cause such a monumental challenge for autistic, ADHD and PDA kids (and adults).

    From difficulties pulling our kids away from screen-time and replacing a broken fridge, to the regular flashpoint of brushing teeth, Mark and Pete share real-life strategies that can make these transitions more manageable - or at the very least a bit more fun.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 - Welcome back and reintroducing Pete Wharmby

    02:30 - Recap of what we covered in episode 45 and why transitions affect all neurodivergent kids

    06:10 - Screen time, flow states and Pete's oil tanker analogy

    16:45 - The role that monotropism plays in transitions

    27:00 - Strategies: lead-In Times, choice and routines

    36:40 - Understanding how PDA affects transitions and why it’s not just defiance

    46:00 - Strategies for control-driven transitions (e.g. declarative language)

    55:30 - Difficulty throwing stuff away: fridges, crocs and clinging to familiarity

    1:04:30 - Schools as the perfect storm of transitional triggers

    1:15:20 - The positives

    1:18:00 - Neurodiversity Champions

    1:20:40 - Tiny Epic Wins

    1:23:15 - "What the flip?" moments

    1:26:00 - Wrap-up and thanks

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    Pete Wharmby website - https://petewharmby.com/

    Untypical by Pete Wharmby - https://amzn.eu/d/8gGK6v4

    What I Want to Talk About, by Pete Wharmby - https://amzn.eu/d/6tY0kZQ

    What is monotropism? - https://www.autism.org.uk/advice-and-guidance/professional-practice/what-is-monotropism

    Last One Laughing - https://en.wikipedia.org/wiki/LOL:_Last_One_Laughing_UK

    Ausome Training, Cothu course - https://ausometraining.com/cothu-with-pete-wharmby

    Declarative language - https://lifeskillsadvocate.com/blog/declarative-language-for-neurodivergent-communicators/

    Anna Freud - https://www.annafreud.org/

    Georgia Pavlopoulou (LinkedIn) - https://www.linkedin.com/in/dr-georgia-pavlopoulou-651a042a

    Neuro Nook Storytime - https://www.neuronookstorytime.com/

    Bedknobs and Broomsticks - https://en.wikipedia.org/wiki/Bedknobs_and_Broomsticks

    Silksong - https://en.wikipedia.org/wiki/Hollow_Knight:_Silksong

    CONTACT US

    🌐 Website: www.neuroshambles.com

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay

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    1 h et 36 min
  • Difficulty with transitions - Part 1 | Pete Wharmby
    Oct 22 2025

    This episode of Neuroshambles, will resonate will all parents of neurodifferent kids, as Mark discusses difficulties with transition with the wonderful autism advocate, Pete Wharmby. Together, they delve into the messy, stressful, and often misunderstood world of transitions – from seemingly small everyday routines to major life changes.

    Whether it’s leaving the house, going into school, or prying them away from screen time, transitions can often be a sensory, emotional and logistical nightmare for autistic, ADHD and PDA kids (and adults). But why exactly are they so hard – and what can we do to ease the load?

    This is a funny, heartfelt, and cathartic episode full of insight, compassion and practical suggestions, as well as a much-needed sense of solidarity for anyone who’s ever dreaded their kids being invited to a birthday party.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 – Intro and why this is only part one

    03:30 – Meet the guest: Pete Wharmby

    12:00 – Transitions: What they are and why they’re so difficult

    19:00 – Fear of the unknown

    25:00 – Why birthday parties can be so anxiety-inducing

    32:00 – Strategies for smoother transitions to the unknown

    40:00 – School and powerlessness

    48:00 – Holidays, Google Earth and visual planning

    55:00 – Fear of the Known: Why school can feel like a punishment

    1:03:00 – Processing struggles and instruction overload

    1:13:00 – Fixable triggers and simple (free) accommodations

    1:20:00 – The double-edged sword of hyperfocus

    1:24:00 – Neurodiversity Champion: Fight For Ordinary

    1:26:30 – Tiny Epic Wins

    1:29:00 – What the Flip? Moments

    1:33:00 – Wrap-up and tease for part 2

    LINKS TO STUFF WE MENTION:

    Pete Wharmby website - https://petewharmby.com/

    Untypical by Pete Wharmby - https://amzn.eu/d/8gGK6v4

    What I Want to Talk About, by Pete Wharmby - https://amzn.eu/d/6tY0kZQ

    Fight for Ordinary - https://disabledchildrenspartnership.org.uk/fight-for-ordinary/

    Google Maps Street View - https://www.google.com/streetview/

    Google Earth - https://earth.google.com/web/

    Ordnance Survey Maps - https://shop.ordnancesurvey.co.uk/

    Albion In The Community - https://bhafcfoundation.org.uk/

    Monotropism and Autism Theory - https://monotropism.org/

    Interoception - https://www.autism.org.uk/advice-and-guidance/professional-practice/interoception-wellbeing

    CONTACT US

    🌐 Website: www.neuroshambles.com

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: pixabay.com

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    1 h et 26 min
  • Managing the work/shambles balance | Mark Holborow
    Oct 8 2025

    In this episode of Neuroshambles, Mark Allen is joined by devoted dad and fellow Neuroshambler Mark Holborow, for a refreshingly honest look at the difficulties of holding down a job, while raising neurodivergent kids and trying (often unsuccessfully) to keep those two worlds from colliding.

    They discuss naked Zoom call interruptions and the emotional labour of school drop-offs, as well as the guilt, the resilience, and the accidental skillsets parents of ND kids develop.

    It’s a cathartic, relatable deep dive into the realities of navigating employment when your home life is anything but typical – with plenty of laughs, rants, and candid talk about autism, ADHD, PDA and neurodivergent parenting.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 – Intro & Listener Survey Feedback 05:30 – Meet the Guest: Mark Holborough 10:00 – The Challenges of working parents 16:30 – Working from Home with neurodifferent Kids 25:00 – Background chaos, interruptions and client calls 33:00 – The emotional guilt of being the breadwinner 40:00 – Supporting the non-working Parent 53:00 – How open can you be at work? 1:00:00 – Hiding a child at work: Real life stories 1:07:00 – Why parents of neuro-exceptional kids make great employees 1:13:00 – The economic cost of caring 1:26:00 – The Positives 1:29:00 – Neurodiversity Champions 1:33:00 – Tiny Epic Wins 1:37:00 – What the Flip? Moments 1:41:00 – Wrap-up and thanks

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    • Neuroshambles Listener Survey: https://forms.gle/2wFVupe4HumCYym6A
    • LSE Report – The Economic Case for Prioritising Autism in Policy and Reform: http://lse.ac.uk/cpec/assets/documents/Autismeconomics.pdf
    • The Sunflower Alliance – raising awareness of hidden disabilities: https://hdsunflower.com/
    • BUPA Medical Insurance: https://www.bupa.co.uk/health/health-insurance-ppc-b

    CONTACT US

    🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: pixabay.com

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    1 h et 31 min
  • Swearing | Heidi Mavir
    Sep 24 2025

    To kick off Season 3, Mark welcomes back Neuroshambles favourite Heidi Mavir - bestselling author, speaker, fearless advocate and proud neurodivergent parent - for a lively and cathartic deep dive into swearing. From F-bombs on the trampoline to grandparent-safe alternatives, they explore how language, context, and neurodivergent wiring all shape how (and why) our kids swear.

    This warm and witty episode unpacks the relationship between swearing and regulation, impulse control, PDA (Pathological Demand Avoidance), sensory overload, and social context. Expect plenty of laughs, the occasional C-bomb, and a ton of relatable chaos for anyone raising autistic, ADHD, or otherwise differently-wired kids.

    Whether you’re a proudly sweary household or struggling to police your neurodivergent child's potty-mouth moments, this episode is packed with nuance, honesty, and a surprising amount of empathy - even for those who hate bad language.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 - Welcome Back & Meet the Guest: Heidi Mavir 03:00 - School Turbulence, Burnout & Finding Your Flow 08:00 - Why Swearing Is This Week’s Topic 12:00 - What Is a Swear Word Anyway? 18:00 - Swearing, Context & Cultural Taboos 25:00 - Family Rules: “Nana Swears” vs “F-Bombs at Home” 33:00 - Parenting Through Swearing: Where Do You Draw the Line? 41:00 - PDA, Equalising Behaviour & Rage Rooms 50:00 - When the Swears Are Aimed at You 58:00 - Swearing as a Self-Regulation Strategy 1:03:00 - Should We Be Policing Swearing at All? 1:12:00 - Swearing and Impulse Control in ADHD 1:17:00 - Teaching Context Without Policing Expression 1:25:00 - Workarounds, Wordplay & Sweary Shenanigans 1:30:00 – Tiny Epic Wins 1:35:00 – What the Flip? Moments 1:40:00 - Wrap-Up & Where to Find Heidi

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    • Heidi Mavir website - https://www.heidimavir.com/
    • Heidi’s “Your child is not broken” book - https://amzn.eu/d/cjoih9W
    • Eliza Fricker “Can’t not won’t” book - https://amzn.eu/d/91m7voc
    • PDA (Pathological Demand Avoidance) - https://www.pdasociety.org.uk/what-is-pda/
    • “F*ck you I won’t do what you tell me”, song lyric by Rage Against The Machine - https://www.youtube.com/watch?v=bWXazVhlyxQ
    • Lindsay McGlone - https://www.instagram.com/rollinwithlindsay_/

    • Reclaimed Means Business - https://lindsaymcglone.kartra.com/page/RMB2025

    CONTACT US

    🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: pixabay.com

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    1 h et 28 min
  • Surviving the summer holidays | Lisa Galley
    Jul 23 2025

    In this season finale, Mark welcomes back the brilliant Lisa Galley (@school_run_mum_autism), who is an autism family consultant, ex-speech and language therapist, and mum of three grown-up autistic humans.

    Together, they discuss how the summer holidays are a very different experience for parents of neurodifferent kids and why the concept of a “relaxing summer” is more often myth than reality.

    Touching on the common parental feelings of boredom, guilt and the ever-present FOMO, this is a candid, humorous and occasionally insightful look at what we're going to be experiencing over the summer when it seems like we're house-bound with our autistic, ADHD and PDA kids.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 - Intro & Meet the Guest: Lisa Galley 04:00 - Introducing the topic of the week 06:30 - The burden of boredom 10:00 - Dealing with guilt of not providing the "perfect" summer 17:00 - The loss of spontaneity and the rampant FOMO 26:30 - The unspoken impact on working parents 30:00 - Attempting to go on holiday 34:00 - The importance of summer holidays for our kids 38:00 - Q&A: Answering listeners' summer holiday questions 41:00 - Testing out home education in the summer 45:00 - How to help yourself as a parent 47:30 - The challenges of co-parenting in the summer holidays 58:00 - Advice from listeners 1:03:00 - The positives of the summer holidays 1:05:00 - Neurodiversity Champions 1:08:30 - Tiny Epic Wins 1:11:30 - "What the Flip?" moments 1:16:30 - Outro and Season Wrap-Up

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    • Lisa Galley Instagram: https://www.instagram.com/school_run_mum_autism/
    • Parent Carer Cheerleeding Squad Facebook Group - https://www.facebook.com/parentcarercheerleadingsquad
    • Special Assistance at airports - https://www.caa.co.uk/passengers-and-public/special-assistance/accessing-special-assistance/
    • We're Not Your Typical Podcast - https://were-not-your-typical-podcast-258bbca3.simplecast.com/
    • Let’s Talk Neurodivergent Kids Podcast - https://pod.link/1442067009
    • Legoland Windsor Accessibility Pass - https://www.legoland.co.uk/plan-your-day/before-you-visit/accessibility/
    • "Holidays" episode of Neuroshambles - https://pod.link/1710455546/episode/2b5dc7973b418c9d6069ced370c409b9
    • "Hobbies" episode of Neuroshambles - https://pod.link/1710455546/episode/19a31193017cd7413d681ff3b36119eb
    • Lisa Galley's Summer Survival Guide - https://lisagalley.myflodesk.com/survival

    CONTACT US

    🌐 Website: www.neuroshambles.com 📧 Email: hello@neuroshambles.com 📸 Instagram: @neuroshambles 🎵 TikTok: @neuroshamblespod 📘 Facebook: Neuroshambles 🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: pixabay.com

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    1 h et 19 min
  • Swimming | Hatty Ashdown
    Jul 9 2025

    In this episode of Neuroshambles, Mark is joined by returning guest Hatty Ashdown - not only a parent of a neurodivergent child, but also a brilliant comedian, writer and host of the Funny Mummies podcast. Together they dive into the deceptively simple but totally chaotic world of swimming.

    For children with autism, ADHD, PDA, and other forms of neurodivergency, swimming can be simultaneously a magical sensory experience and an absolute logistical nightmare. From the infuriating act of trying to get them to swim in the first place, to negotiating the changing room routine, navigating the lockers and dealing with their antics in the pool, Mark and Hatty share candid and hilarious tales of what it’s like to take your neuro-exceptional brood swimming - and why we keep doing it, despite the enormous faff.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 - Intro & Meet the Guest: Hatty Ashdown 06:00 - Topic of the Week: Swimming 09:00 - Why do neurodivergent kids love swimming? 15:00 - The challenge of teaching neurodivergent kids to swim 30:30 - The massive faff of a swimming trip: Hatty's routine 37:00 - The massive faff of a swimming trip: Mark's routine 42:00 - The chaos of changing rooms 46:30 - The stress of the lockers 53:00 - Shenanigans in the pool 59:30 - Losing their goggles 1:04:00 - The Positives: the joy of swimming 1:08:00 - Neurodiversity champions 1:12:00 - Tiny epic wins 1:15:00 - What the Flip? Moments 1:20:00 - Wrap-Up and Where to Find Hatty

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    • Hatty Ashdown’s Website – https://hattyashdown.com/

    • Funny Mummies Podcast: Basics – https://pod.link/1451332466

    • Funny Mummies Podcast: VIP (Patreon) – https://www.patreon.com/FunnyMummiesPodcast

    • Bella Ramsey (Neurodiversity Champion) – https://en.wikipedia.org/wiki/Bella_Ramsey

    CONTACT US

    🌐 Website: www.neuroshambles.com

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: https://pixabay.com

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    1 h et 21 min
  • Tackling Ignorance - Part 2 | Jo Matthews
    Jun 25 2025

    Following on from part 1, fan favourite Jo Matthews joins Mark once more for another laughter-filled, cathartic rant through the most mind-bogglingly ill-informed things people have said about raising autistic, ADHD, PDA and otherwise neurodivergent kids.

    This one features a fresh batch of well-meaning nonsense, unsolicited advice, and flat-out offensive comments submitted by Neuroshambles listeners. It’s funny, familiar, and frighteningly relatable.

    CHAPTER TIMESTAMPS (Estimated):

    00:00 - Intro & Meet the Guest: Jo Matthews Returns

    05:30 - "Have you tried a routine?"

    10:30 - "Have you tried a parenting course?"

    13:30 - “Have you tried changing their diet?”

    17:00 - "Why don't you take their screens away?"

    20:00 - "Does he have mild autism?"

    25:30 - Good autism v bad autism

    29:00 - “We’re all a bit autistic"

    34:30 - "ADHD is just an excuse"

    37:00 - “It doesn't define him”

    41:00 - "There's nothing wrong with him"

    43:00 - Medical v Social models of disability

    47:30 - "My kid does that"

    50:00 - “He'll eat when he's hungry"

    52:30 - “He'll grow out of it"

    54:30 - “He doesn't look autistic"

    56:30 - “But, he can talk, so he can’t be autistic”

    59:00 - “ADHD is just for boys”

    1:01:30 - "What's wrong with him?"

    1:02:30 - "I bet he's good at maths"

    1:04:30 - "I don't know how you do it"

    1:07:00 - Misguided empathy: "I know how you feel"

    1:09:00 - "But I do that and I'm not autistic"

    1:14:00 - The completely batshit mental comments

    1:20:00 - Neurodiversity Champions

    1:21:30 - Tiny Epic Wins

    1:25:00 - "What the flip?" moments

    1:27:30 - Wrap-up & contact info

    LINKS TO STUFF WE MENTION IN THIS EPISODE:

    • The medical vs social models of disability: www.scope.org.uk/about-us/social-model-of-disability/

    • Autism assessments (AQ Test): www.embrace-autism.com/aq-10/#test

    • Bowles Outdoor Centre - www.bowles.rocks

    CONTACT US

    📧 Email: hello@neuroshambles.com

    📸 Instagram: @neuroshambles

    🎵 TikTok: @neuroshamblespod

    📘 Facebook: Neuroshambles

    🧵 Threads: @neuroshambles

    CREDITS

    🎶 Theme music by Skilsel on Pixabay: https://pixabay.com

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    1 h et 30 min