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RARENETIC

RARENETIC

Auteur(s): Molly
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À propos de cet audio

 Hey there! Welcome to Rarenetic! I'm Molly, a high school sophomore and I created Rarenetic to educate people about rare diseases and genetic disorders (rare + genetic = rarenetic) and to keep them up to date with what is going on in the community. Welcome to rarenetic!Molly Hygiène et mode de vie sain Troubles et maladies
Épisodes
  • COVID-19 & Rare Diseases

    COVID-19 & Rare Diseases
    Jun 24 2022

    Hey guys!! This week, I talk all about how COVID-19 impacted the rare disease world. Hope you enjoyed it!


    SOCIALS

    Instagram

    Twitter

    Linktree

    rareneticpod@gmail.com
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    5 min
  • Rare Disease Words and Phrases (that you'll hear me use a lot)

    Rare Disease Words and Phrases (that you'll hear me use a lot)
    May 15 2022

    Hey Guys! Thanks for listening to RARENETIC! Today's episode definitely has a lot of info in it, but make sure to follow us on Instagram to get the link.


    SOCIALS:

    Instagram

    Twitter

    LinkTree

    rareneticpod@gmail.com
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    9 min
  • What are Rare Diseases and What Does Being Undiagnosed Mean?

    What are Rare Diseases and What Does Being Undiagnosed Mean?
    Apr 29 2022

    Hey! It's our first episode, all about rare disease specifics, being undiagnosed, and a Q&A at the end! I promised the website links to the resources I mentioned in the episode, so they're down below. Enjoy the episode!

    RESOURCE LINKS

    • Genetic and Rare Disease Information Center
    • Rare Disease Clinical Network
    • National Organization for Rare Disorders
    • Rare Diseases International
    • Rare Undiagnosed Network
    • Undiagnosed Diseases Network
    • Undiagnosed Diseases Network International

    SOCIALS

    • Instagram
    • Twitter
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    11 min
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