Disability Biography

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

One morning in 2008, desperate and impoverished while trying unsuccessfully to write, Davidson plucked a flyer out of his mailbox that read, "Bus Drivers Wanted". That was the first step toward an unlikely new career: driving a school bus full of special-needs kids for a year. Armed only with a sense of humor akin to that of his charges, a creative approach to the challenge of driving a large, awkward vehicle while corralling a rowdy gang of kids, and unexpected reserves of empathy, Davidson takes us along for the ride.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

After you're done listening to Glenna's story, you cannot help but admit she's led a hard life. She's gone through more than her fair share of trouble, in different ways. Some of it she invited; some she did not. To say that she had a troubled childhood would be an understatement. Cutting a long story short, she spent a considerable time working as a prostitute. She was a drug addict. Somewhere along the way, she caught AIDS and Hepatitis C.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

An inspiring and unforgettable memoir that provides hope to others who are experiencing depression, mania, or psychosis, RESILIENT is a deeply personal account about life with mental illness, hearing loss and resiliency. Liz's journey provides encouragement for patients, families, friends, and healthcare workers by showing that recovery is possible.

Carla Sosenko was born with Klippel-Trenaunay syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.

In Take Me Home from the Oscars, Schwab tells for the first time her story of living an amazing life in television while suffering from rheumatoid arthritis. Schwab recounts with incredible honesty how on the same day she produced and appeared in a major makeover segment for Live with Regis & Kelly in New York and then raced to Chicago to appear on Oprah!, all while balancing medications to ward off the relentless pain that plagued her on-camera and off.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

" On ne saura jamais quel aurait été mon destin sans cette maladie – une méningite bactérienne foudroyante à l’âge de six ans –, mais je n’aurais sans doute pas vécu le quart de ce que j’ai eu la chance de vivre jusqu’à présent. Je suis Théo Curin, vingt-deux ans, amputé des quatre membres, bien dans ma tête, bien dans ma peau. Quand on me demande comment je réagirais si on me rendait bras et jambes, je réponds : “Non, merci, je ne saurais qu’en faire !” J’ai des choses à dire et le sentiment d’être écouté, que demander de plus ? "

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.” No Barriers is Erik’s response to that challenge.

On a hot July afternoon, Joni Eareckson Tada's life was dramatically altered in a split second. A reckless dive into shallow water took an athletic young woman from health and success to life as a quadriplegic in a wheelchair. In the 45 years since the release of this book - which has more than five million copies in print in over 40 languages - Joni's earnest struggle to find hope has resonated with millions of listeners around the world.

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.