Disability Biography

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

Driving Myasthenia Gravis Into Remission is a book based on the personal beliefs and experiences of the author Romerol Stanton regarding the autoimmune neurological disorder Myasthenia Gravis. It is a book that provides information on all-natural and alternative treatments that have been effective in alleviating the symptoms of Myasthenia Gravis. This book also gives insight into the author's trials, tribulations and triumphs living with Myasthenia Gravis.

In Fractured Realities, Ryder Budden shares a deeply personal and raw account of his life with schizophrenia, offering a rare glimpse into the struggle, resilience, and hope that defines his journey. From vivid hallucinations and delusional paranoia to the gradual path toward healing, this memoir explores the highs and lows of navigating a fractured reality. Ryder's story begins with childhood encounters with the impossible, from seeing extra limbs in reflections to vivid visions of God.

Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses Miriam’s doctor didn’t believe she had breast cancer. She did...

A searing debut YA poetry and essay collection about a Black cancer patient who faces medical racism after being diagnosed with leukemia in their early twenties, for fans of Audre Lorde's The Cancer Journals and Laurie Halse Anderson's Shout. When Walela is diagnosed at twenty-three with...

From being a little girl in a village in China with polio to a tech executive at Apple, Libo Cao Meyers has had quite a journey in life—a journey steeped in rich family legacy and powered by determination, growth, and love. Over the years and the miles, she’s embraced her differences and has allowed no one—including herself—to set limitations on what she’s able to accomplish. But just because she’s been successful doesn’t mean it’s been easy. Not by a long shot.

At age 24, Janet Buttenwieser moved to Seattle with a résumé devoted to public service and fantasies of single-handedly ending poverty. But within a year she’d developed an intestinal illness so rare she wound up in a medical journal. Janet navigated misdiagnosis, multiple surgeries, and life with a permanent colostomy. Like many female patients her concerns were glossed over by doctors. She was young and insecure, major liabilities in her life as a patient. How would she advocate for low-income people when she couldn’t even advocate for herself?

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

In this deeply moving memoir, L.A. Batista recounts her incredible journey through a life filled with obstacles — family turmoil, physical challenges, an abusive marriage, and single parenthood. Despite the hardships, her story is one of unyielding strength and resilience. Beginning with her childhood in the 1960s in a neighborhood in New York City, the author recounts her family life as she dealt with an undiagnosed rare disease.

At only eight months old, identical twin sisters Ariel and Zan Henley were diagnosed with Crouzon syndrome — a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it. Growing up, Ariel and her sister endured numerous medical procedures to keep them alive. Doctors expanded the twins’ skulls and broke bones to make room for their growing organs. After each surgery, the sisters felt like strangers to each other, unable to recognize themselves in the mirror.

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

I Sverige finns mer än en miljon anhöriga som vårdar eller stöttar en närstående med fysisk eller psykisk ohälsa eller funktionsnedsättning. Även om var och en har sin unika historia är det mycket som förenar oss. Anhörig i ett hav av känslor ger röst åt våra berättelser. Om ovisshet och oro, otillräcklighet och frustration, skuld och skam, sorg och maktlöshet. En situation som kan utveckla oss som människor, men också utmana och slita ut oss. Det handlar om avgrunder och guppande känslohav, men också om stillsamma solgläntor och fascinerande utsiktsplatser.

At the age of sixty, and having lived with Parkinson’s disease for over ten years, Guy Deacon CBE set out on one last adventure: to drive solo from his home in the UK 18,000 miles and through twenty-five countries to Cape Town on the southern tip of Africa. This incredible journey, across Europe and down the full length of Africa, took the former British Army officer over twelve months. Along the way, he broke down five times, underwent one emergency evacuation, and took 3,650 prescription pills.

Beyond the nerve is a raw and unfiltered journey through five years of living with pudenda neuralgia—a condition that tested every ounce of my resilience while reshaping my purpose. It delves into the struggles and triumphs of managing chronic pain, the emotional toll of invisible battles, and the lessons learned in advocating for myself when support wasn't always easy to find.

Lorsqu'on rencontre Martin pour la première fois, ce qui frappe immédiatement, c'est son sourire charmeur, son enthousiasme, son oeil qui pétille, son aisance à l'oral et ses idées qui fusent dans tous les sens. Son fauteuil, on n'y pense même pas. On ne le voit pas. C'est tout juste si l'on remarque que ses doigts, qui paraissent pourtant si agiles, sont inertes, tant Martin a de choses à partager, d'anecdotes à raconter et de montagnes à déplacer. Pourtant, Martin est tétraplégique.

" Bizarrement, en tant que société, nous accordons à la cécité un caractère bien plus dramatique que cette condition physique ne le mérite peut-être. Nous...

Twitch is a frank and funny memoir about picking up the pieces when personal tragedy hits. In 2021, Irish Examiner columnist, stylist, author and podcaster Annmarie O'Connor was diagnosed with early-onset Parkinson's disease, an incurable neurodegenerative condition broadly affecting movement and mental health. Though she is no longer working as a stylist as part of her career due to Parkinson's complications, Twitch outlines her journey from a life-altering diagnosis to becoming an activist and agent of change.

En este libro de memorias profundamente conmovedor y sincero, Blanca Reyes Méndez comparte su viaje tras la pérdida repentina e irreversible de la visión de su ojo izquierdo. A través de la reflexión poética y la verdad personal, explora el dolor, el miedo, la curación y la transformación. Ver con el alma no trata sólo de la pérdida de visión, sino de aprender a ver de otra manera. A encontrar la luz interior. A vivir más despacio, más plenamente y con el corazón bien abierto.