Disability Memoir

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

Lorsqu'on rencontre Martin pour la première fois, ce qui frappe immédiatement, c'est son sourire charmeur, son enthousiasme, son oeil qui pétille, son aisance à l'oral et ses idées qui fusent dans tous les sens. Son fauteuil, on n'y pense même pas. On ne le voit pas. C'est tout juste si l'on remarque que ses doigts, qui paraissent pourtant si agiles, sont inertes, tant Martin a de choses à partager, d'anecdotes à raconter et de montagnes à déplacer. Pourtant, Martin est tétraplégique.

Meet the exhausted group of caregiving mothers who offer extraordinary care to a child with disabilities or unique needs. These unsung heroes, who walk invisibly among us, dedicate time, energy, love, and their entire lives to help their loved one who is unable to help themselves. A child with a rare degenerative disease. A sibling with autism. A teen wading through anxiety and depression. An adult child with a debilitating illness. A child with extreme ADHD.

" Bizarrement, en tant que société, nous accordons à la cécité un caractère bien plus dramatique que cette condition physique ne le mérite peut-être. Nous...

Twitch is a frank and funny memoir about picking up the pieces when personal tragedy hits. In 2021, Irish Examiner columnist, stylist, author and podcaster Annmarie O'Connor was diagnosed with early-onset Parkinson's disease, an incurable neurodegenerative condition broadly affecting movement and mental health. Though she is no longer working as a stylist as part of her career due to Parkinson's complications, Twitch outlines her journey from a life-altering diagnosis to becoming an activist and agent of change.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

This is a very real and bloody look at the journey I made from 19 to 29. I will walk you through the icy halls of drug addiction and dealing, college in Santa Barbara (specifically Isla Vista), depression, suicide, and overdoses. The second part of the book I could only write just recently, as I was, by the Grace of God, able to live the life I knew I always should. Please come with me through the very real and honest look at what it was like to be a young man in the 2010s and how through a million close calls, I finally found life.

This book chronicles the journey of Eritrean-born Joseph Woldu. As a child refugee, he found himself having to adapt to changes of place, language, and customs; then as a man forced to relearn much of the same after involvement in a disastrous accident two days before the 9/11 terrorist attacks. What makes Joseph's story so incredible is not that he survived change and tragedy, but how he continually found the strength to improve himself and his circumstances. His story reflects the importance good relationships play in our lives.

Hannah Daly is a pediatric occupational therapist and an advanced sensory integration practitioner who is profoundly dyslexic, dyspraxic, and has sensory processing disorder. She has multiple university degrees but still cannot read or write. In Knowing No Boundaries, she gives an honest account of living with these hidden disabilities. This book is a unique coming-of-age, feel-good memoir that strikes the balance of vulnerability and humor.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

A searing debut YA poetry and essay collection about a Black cancer patient who faces medical racism after being diagnosed with leukemia in their early twenties, for fans of Audre Lorde's The Cancer Journals and Laurie Halse Anderson's Shout. When Walela is diagnosed at twenty-three with...

Speaking My Truth is about a young man named Abdulahi Hassan who is born with a physical disability called Cerebral Palsy and tries to live a normal life. Regardless of his daily struggles he faces physically and mentally he is slowly learning to speak his truth and taking control of his own narrative one step at a time with a single beautiful smile.

An upcoming book to be published by Penguin Random House...

Can four words change a life? On a rainy autumn day, four words changed the life of a young cardiology nurse. Four little words hurled across a dimly lit exam room struck fear in a mother’s heart. “You are legally blind.” Anita’s journey through blindness began with the devastating diagnosis of retinitis pigmentosa, an untreatable, degenerative retinal disease. At the age of 33, she was forced to face not only vision loss, but also the loss of driving, her nursing career, and even her independence. Anita was convinced that life was over.

Love for a Deaf Rebel introduces listeners to a vivacious Canadian woman who was born into a silent world and with the foundation for schizophrenia. With pathos and nostalgia, the author recounts his roller-coaster ride with Pearl, a vivacious deaf maverick, who, unknown to him, had paranoid schizophrenia. We follow their encounters through actual notes written before Derrick learns sign language; we go on their motorcycle ride to Mexico and Guatemala; we watch as the happy couple moves to Bowen Island, a British Columbia community with just three paved roads.

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

You struggle with your disability. You're tired of being counted out of life. Are you frustrated because you feel, or have been told, you can't be 100% healthy with your disability? It's time for a change! It's time to prove everyone (including your doctors) wrong! Author and certified personal trainer Tony Jacobsen, who has Osteogenesis Imperfecta (Brittle Bones Disease), has transformed his entire life and now shares the formula to empower other people with disabilities.

Macular degeneration affects over eight million people in the United States. Patients lose central vision, the ability to read fine print and recognize faces. A diagnosis doesn't mean surrendering to these challenges. Instead, understanding this medical condition will help pave the way toward a better future-for yourself or loved one.

Anna grew up in a house that was loving, even if her mum was ‘a little eccentric’. They knew to keep things clean, to stay quiet, and to look the other way when things started to get ‘a bit much for your mum’. It’s only when her mother reaches her 70s and Anna has a family of her own, that the cracks really start to appear. More manic. More irrational. More detached from the world. And when her father, the man who has calmed and cajoled her mother through her entire life is diagnosed with cancer, the whole world turns upside down.