Disability Science

A year ago, Mr. Darcy suffered from an illness which robbed him of the use of his legs. However, he is determined to never become maudlin and behave as though his life is over and ruined just because part of it has become more difficult. Since he could not expect to recover any further, it was time to resume the ordinary course of his life.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

In Seeing Voices, Oliver Sacks turns his attention to the subject of deafness, and the result is a deeply felt portrait of a minority struggling for recognition and respect - a minority with its own rich, sometimes astonishing, culture and unique visual language, an extraordinary mode of communication that tells us much about the basis of language in hearing people as well.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

In 2016, a United Nations report found the UK government culpable for ‘grave and systematic violations’ of disabled people’s rights. Since then, driven by the Tory government’s obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a ‘human catastrophe’.

In Brilliant Imperfection, Eli Clare uses memoir, history, and critical analysis to explore cure—the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds.

You can learn a lot from the movies—about sex and relationships, about business, about history. Sure, there’s a fair amount of fantasy, wish fulfillment, and glorious hair to exaggerate everything, but for better or for worse, films remain one of the most important ways that viewers around the world learn about other people and cultures. And almost since the dawn of the medium, movies have shaped the public’s understanding of and assumptions about disability.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not only the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A...

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation.

Ableism is embedded in our daily lives. Social life, education, work, and, especially, mental health have been organized around rigid ideas of the "ideal" and the "normal" citizen—ideas that always exclude neurodiversity. In this pathbreaking book, Chantelle Jessica Lewis and Jason Arday argue that the neurodiversity movement offers ways to mobilize against not only ableism but also other "isms" including racism and capitalism.

Autism is often diagnosed during childhood but can also be diagnosed well into adulthood. If you feel you have been misunderstood your whole life, take heart, you are not alone.

In the beloved classic book The Way I See It, Dr. Temple Grandin gets to the real issues of autism — the ones parents, teachers, and individuals on the spectrum face every day. In this updated and expanded fifth edition, Temple offers helpful dos and don’ts, practical strategies, and try-it-now tips all based on her insider perspective and a great deal of research.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

Jen Powley was diagnosed with multiple sclerosis at 15. By 35, she had lost the use of her arms and legs. Just Jen is a powerful memoir that tells the story of Powley’s life at the time of her diagnosis and the infinite, irrevocable ways it has changed since. Powley’s writing pulls no punches. She is lively, bold, and unapologetic, answering questions people are often afraid to ask about living with a progressive disease.

Blind Visionaries and AI: Seeing Differently explores how people living with vision loss are reshaping their lives through artificial intelligence and other technologies. Edited by Dagmar Jamieson, who lost her sight to cone-rod dystrophy, and Mark Rawleigh, diagnosed with retinitis pigmentosa, the book gathers the voices of blind and partially sighted artists, scholars, and researchers who have embraced AI tools in creative and practical ways.

Blame: Death, Disability, and the Search for Justice for Guy Mitchell attempts to find meaning and justice in the tragic death of a vulnerable individual whose circle of care failed him. Dramatic nonfiction that sounds like a legal thriller, Blame resists easy answers, exposing a tangled web of negligence, indifference, and systemic failure and probing the deeper structural forces behind Guy's death. What emerges is a powerful indictment of a broken system and a strong argument that the duty to care for society's most vulnerable ultimately lies with us all.

Who knows better about developing the talents of those with autism than Temple Grandin? This updated and expanded third edition of Developing Talents considers the continuing dismal employment statistics for individuals with autism. The authors take an in-depth look at entrepreneurship and many other options.