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ALS Caregivers and Beyond

Written by: Mary Hahn Ward & Lara Garey
  • Summary

  • Lara Garey & Mary Ward explore their journeys in the context of being an ALS Caregiver and the Beyond. Beyond is the afterlife of ALS when the person they are caring for has passed away. They are authentic in their conversations, strong in advocacy, embrace humor, and share BIG feels as needed. Mary has been caring for her husband, Tom, for many years, the last thirteen have included ALS. Lara cared for her husband, Tom, for six years, from diagnosis to death. Tom died in July 2022. Yes, they each married a man named Tom and they are both military veterans.

    Mary Hahn Ward
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Episodes
  • E14: Catching Up with Lara & Mar
    Mar 27 2024

    The first quarter of the year is wrapping up and it's been a whirlwind for both of us. We share where we are in this caregiver life (Mar) and where we are in the Beyond (Lara). There has been lots of growth for both of us. As always there isn't a minute of our conversations that we do not enjoy thoroughly. No one sees us more clearly than those who know ALS.

    We talked about Mel Robbin's podcast episode: The #1 Menopause Doctor: How to Lose Belly Fat, Sleep Better, & Stop Suffering Now with Mary Clare Haver, MD

    Have thoughts you'd like to share? Drop us a note:

    maryhahnward@gmail.com

    laragarey@yahoo.com

    Check out Lara's blog: Tom's Troops

    Check out Mar's Etsy shop: Cottage at Marehaven

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    49 mins
  • E13: Meditation Mindfulness
    Jan 16 2024

    In this episode, Mary and Lara discuss the strategies they have learned and continue to practice to help ease the ALS caregiver and survivor journey. Both Mary and Lara discuss how they came to these practices at a time that was right for them. They both still struggle with their journey, but having something to lean into when the journey becomes too hard has been the key to finding their paths forward. We hope that by seeing how differently we both came to mindfulness and meditation it is never too late or too early to find peace in the chaos of this ALS life.

    Check out Lara’s latest blogs, Ending 2023 with gratitude and Finding peace just outside my door regarding how she feels she is transitioning from deep grief to healing:

    https://tomstroops.com/2023/12/31/ending-2023-with-gratitude/

    Check out Mary’s Cottage at Marhaven Etsy shop.

    This Caregiver Life podcast episode: Give Your Mind a Rest

    Guided Meditation by Tara Brach

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    52 mins
  • E12: 'tis the season strategies
    Dec 8 2023

    This time of year, the holidays, can be a challenge for us in the ALS community, now and in the afterlife. We do our best to figure out ways to make it palatable. Sometimes we succeed. Sometimes we don't. It's very individual to know what will work for you. Lara and I agree that staying away from Social Media for a few days before, during, and after a holiday can be helpful.

    Several years ago, when I was fully engaged in co-hosting the podcast "This Caregiver Life" I interviewed Lara. Lara shared her strategy for getting through: https://podcasters.spotify.com/pod/show/thiscaregiverlife/episodes/E18-Upside-Down-Holidays-e8j029/a-aqktp0

    Check out Lara's latest blog post: https://tomstroops.com/

    Check out Mary's Cottage at Marehaven Etsy shop.

    Have some thoughts you'd like to share:

    Mary's email: maryhahnward@gmail.com

    Lara's email: laragarey@yahoo.com

    Facebook page: https://www.facebook.com/ALSCaregiversandBeyond

    #ALScaregivers #Caregivers #Survivors #Sympathy #Podcasts #ALS

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    43 mins

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