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Pineal Stories

Pineal Stories

Written by: Michael and Kelly Ables
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About this listen

Help Us Give a Voice to Pineal Cyst Sufferers – Support Our Awareness Podcast

🎙️ What We're Doing

We’re launching a powerful podcast series to give a voice to people suffering from symptomatic pineal cysts — a condition too often dismissed by the medical community.

Doctors say: “It won’t kill you. Just live with it.”

But those living with it know the truth: It can rob you of your quality of life — causing debilitating headaches, dizziness, vision problems, cognitive fog, insomnia, and even delusions.

It’s time to change the narrative.

🔊 Why It Matters

Most surgeons won’t operate. The medical system often ignores this condition. But what about the people who live in daily pain? Who can’t work, drive, or think clearly? Who are no longer themselves? Who are being dismissed over and over?

This podcast will spotlight their stories. Real people. Real suffering. Real urgency.

We aim to:

  • Interview patients from around the world
  • Bring on neurologists and surgeons willing to speak up
  • Share lived experiences that challenge the status quo
  • Build pressure for better treatment and recognition
Michael Ables 2025
Hygiene & Healthy Living Psychology Psychology & Mental Health Social Sciences
Episodes
  • Pineal Stories - Michael B
    Aug 26 2025

    In this episode of Pineal Stories, we welcome Michael Blomberg, our first guest from Europe. Michael, a 52-year-old father and IT professional from Sweden, shares his journey from the first signs of unexplained dizziness to navigating the country’s healthcare system and searching for answers about his symptomatic pineal cyst.

    Michael candidly describes the life changes brought on by his condition—panic attacks, vertigo, and daily pain—and the mental strain of living with symptoms that are often dismissed. He also explains how Sweden’s public healthcare system both supports and challenges patients seeking specialized treatment, including his attempts to connect with neurosurgeons across Europe.

    Despite the struggles, Michael speaks about resilience, the importance of family, and the support he’s found through patient communities. His story highlights both the personal toll of symptomatic pineal cysts and the hope that comes from connection and persistence.

    Key Topics Discussed

    • Michael’s first symptoms and panic attacks while driving and working.
    • Challenges in Sweden’s healthcare system, including wait times and access to specialists.
    • The emotional and family impact of chronic dizziness and pain.
    • Experiences seeking second opinions from neurosurgeons in Sweden, Norway, and Germany.
    • The financial and emotional costs of considering surgery abroad.
    • Coping strategies, community support, and the shift from “living life” to “surviving life.”

    About Michael Blomberg

    Michael is an IT professional living in a suburb of Stockholm, Sweden. A father of three and part of a blended family, he balances his professional work with daily challenges caused by a pineal cyst. He has become an advocate within Scandinavian patient groups, working to raise awareness and provide community support for others navigating similar paths.

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    1 hr and 15 mins
  • Pineal Stories - Paxton
    Aug 19 2025

    In this eye-opening episode of Pineal Stories, we hear from Paxton, a 14-year-old whose life has been shaped by watching his mother navigate the challenges of living with a symptomatic pineal cyst. With a rare combination of honesty and empathy, Paxton speaks candidly about the emotional weight, day-to-day adjustments, and misunderstood realities faced by families supporting someone with a chronic, often invisible illness.

    Through his own words, Paxton gives voice to the children and teenagers who live this experience—balancing school, friendships, and their own emotions while adapting to the unpredictable changes in a loved one’s health. He describes moments of frustration, deep concern, and unwavering love, offering a perspective rarely heard in medical or patient advocacy discussions.

    His story is a powerful reminder that chronic illness affects entire families—not just the patient—and that empathy, communication, and awareness are essential for healing and support.

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    35 mins
  • Pineal Stories - Emily E
    Aug 12 2025

    🎙️ Episode 7: “Emily E"

    Welcome to Pineal Stories, the podcast that gives voice to those living with symptomatic pineal cysts — a condition often dismissed, misunderstood, and under-researched.

    In this powerful episode: Emily shares her story of struggling to understand what was happening, quick action and an incredible timeline!

    🧠 You will hear many more stories like this in this series. These are not rare cases. These are people. And their voices matter.

    🔍 In This Episode:

    • Personal account of worry and fear over symptoms and sick leave from work
    • Symptoms and patterns, many of which are shared across patient experiences
    • The return of Fun Mom!

    💡 Resources & Links:

    • Visit our website: pinealstories.com
    • Learn more about pineal cyst symptoms and advocacy
    • Share your story or contact us: pineal.stories@gmail.com

    🎵 Credits:

    Music: "What I Waited For" by Kikoru – Licensed via Epidemic Sound

    📅 New episodes drop every Tuesday

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    1 hr and 3 mins
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