Épisodes

  • 189: An Interview With Dr. Jennifer Brown, Director of the CLL Center at Dana-Farber Cancer Institute
    Sep 8 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jennifer Brown, MD, PhD, director of the CLL Center at Dana-Farber Cancer Institute in Boston, Massachusetts, and winner of the 2025 Michael J. Keating Outstanding Achievement Award.

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    13 min
  • 188: An Interview With Michio Hirano, MD, a Global Expert on Thymidine Kinase 2 Deficiency
    Sep 3 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Michio Hirano, MD, of Columbia University in New York about an investigative therapy that shows promise in treating thymidine kinase 2 deficiency (TK2d), an ultrarare disease.

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    9 min
  • 187: An Interview With Dr. Pradeep P.A. Mammen on Females With Duchenne Muscular Dystrophy
    Aug 27 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews cardiologist Pradeep P.A. Mammen, MD, of the University of Kansas School of Medicine, on the growing awareness of girls affected by Duchenne muscular dystrophy.

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    13 min
  • 186: An Interview With Kfir Oved, CEO of Canopy Biotech, Which is Pursuing Novel Treatments in MG
    Aug 18 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kfir Oved about the latest Israeli research on myasthenia gravis.

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    16 min
  • 185: An Interview With Ileen Colin del Río, President of Duchenne Mexico
    Aug 13 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ileen Colin del Río, the mother of a boy with Duchenne muscular dystrophy and president of the Cancún-based nonprofit group Duchenne Mexico.

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    16 min
  • 184: An Interview With Aspiring DJ Yuva Gambhir
    Aug 5 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Yuva Gambhir, 22, who doesn't let Duchenne muscular dystrophy get in the way of his aspiring career as a DJ.

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    14 min
  • 183: An Interview With Dr. Richard Nowak, Director of the Yale Myasthenia Gravis Clinic
    Jul 28 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Richard Nowak, MD, director of the Myasthenia Gravis Clinic at Yale School of Medicine in New Haven, Connecticut.

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    14 min
  • 182: An Interview With Robert Steen of Norway on the Award-Winning Movie 'The Remarkable Life of Ibelin'
    Jul 23 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Robert Steen of Oslo, Norway. Steen and his wife, Trude, are the parents of Mats Steen, who died of Duchenne muscular dystrophy (DMD) in 2014. An award-winning documentary, The Remarkable Life of Ibelin, is based on their son's story.

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    13 min