Amanda Hope Rainbow Angels is a pediatric cancer organization based out of Arizona but they have many programs for kids outside of Arizona.  In this episode we talk to Stephanie, Family Relations Coordinator and Victoria, Comfort Care Counselor.  They tell us about their “ComfyCozies for Chemo”, an adaptive apparel that makes it easier to access kids’ ports.  They also tell us about their Story Time (in English and Spanish!) and their mindfulness kits.  I hope you find this conversation helpful.

Useful Links:

https://www.amandahope.org/

https://www.amandahope.org/comfycozy

https://www.youtube.com/channel/UC9ghnSda0DOTvccZRgeZaHg

Feather is a mother to 5 kids and has had quite a bit of experience with cancer.  You will hear her tell it, but she was diagnosed with retinolblastoma when she was 2 years old. She also has 2 daughters who are survivors.  She is here to tell us about her book: Invisible Me

Please check out her book on Amazon: https://smile.amazon.com/Invisible-Me-Feather-Chelle/dp/B091F3MWR8/ref=sr_1_1?dchild=1&keywords=invisible+me+book&qid=1620227177&sr=8-1

In this podcast, Kezia tells us how and why, she and her husband started a company called CareAline.  CareAline was created after their experience with cancer that affected both Kezia their daughter Saoirse.  Unfortunately, they lost their daughter before her 2nd birthday.

Visit www.carealine.com to find out more about their products that help contain external lines.

Transcript of Podcast can be found here.

Courtney and Caitlin started Costumes for Courage in 2020 as a way to help children find some excitement and bravery while going through treatment.  They run the organization together with help from Caitlin’s husband, Geoff, and their friend, Rachel. 

Courtney has built her career around business operations and project management.  She currently works for a national bank.  Courtney lives in Pittsburgh, Pennsylvania with her husband, two children, Mason and Lilli (who inspired Costumes for Courage), a dog named Bear, and two cats, Jette and Smores.  

Caitlin is Courtney’s sister (Lilli’s aunt).  She currently works as an executive recruiter and previously managed sponsorships for a number of professional sports organizations.  Caitlin also lives in Pittsburgh, Pennsylvania with her husband, Geoff, who helps run Costumes for Courage.  They have two dogs: Kona and Summer. 

Transcript can be found here.

• Website: https://www.costumesforcourage.org/
• Articles:
• • https://triblive.com/local/westmoreland/penn-trafford-students-nominated-for-national-academy-of-television-arts-sciences-award/
  • https://www.today.com/parents/girl-dresses-different-princess-each-chemo-treatment-t161317
  • https://www.wpxi.com/news/proud-to-be-from-pittsburgh/proud-to-be-from-pittsburgh-princess-lilli-s-cancer-battle/996473953/
  • https://twitter.com/BuzzFeedNews/status/1166909838506332160
  • https://triblive.com/local/westmoreland/penn-trafford-toy-drive-honors-student-aids-young-cancer-patients/

Kandace tells us the story of her brother Gabe and their family's project to bring a Childhood Cancer license plate to fruition.  Gabe is a 16 year old medulloblastoma survivor.

Helpful Links: 
www.gabesplates.com
www.morganadamsfoundation.org
www.copsfightingcancer.com
http://denver.cbslocal.com/2018/05/22/childhood-cancer-license-plate/

Molly tells us the story of her son Easton and his diagnosis of Optic Pathway Glioma and Neurofibromatosis (NF1).  Easton and his family has been through a lot, but he keeps positive and proudly shows off his scars.

Keywords: g-tube, Ronald McDonald House, 

Rebecca tells us the story of her son's ALL diagnosis.  He recently finished treatment.  Please read here to see Jack's drive-by cancer party/parade: https://www.azcentral.com/story/news/nation/2020/04/16/new-hampshire-4-year-old-gets-car-parade-after-beating-cancer/5144045002/

Parvathy tells us the story of her family's experience with cancer and a genetic condition.