Medical Developments

Martha is ambitious, competitive, successful, and now divorced. As she seeks to reinvent herself, she joins a dating site looking for companionship. Instead, she finds her soul mate in Stephan. They do everything together: work, travel, dance, sing, and love. Everything changes when Stephan is diagnosed with frontotemporal degeneration (FTD) and then with amyotrophic lateral sclerosis (ALS—Lou Gehrig's disease). As the diseases progress, the dynamic, vivacious man Martha married disappears. Does Martha have what it takes to care for him?

Sixteen years ago, Juli Boit, a 25-year-old nurse practitioner, moved from Los Angeles to a small village in Kenya to be a part of an HIV program. In 2009, she founded a hospice called Kimbilio where men, women, and children come either to heal or to be loved until they die. On an ordinary Friday afternoon in 2016, a three-pound baby boy, Ryan, wrapped in pink was brought to Kimbilio. He had been born prematurely earlier that week. His mom passed away while giving birth, and neighbors miraculously kept Ryan alive on water alone for five days until they brought him to the hospice.

FEAT DESC

Two months to live. That's what the doctor says. Sally responds with grace and optimism. Marisa responds by closing herself off. If her mother is going to die before she graduates from high school, why even try. Cancer has already ruined everything. Honest and heartfelt, The Goodbye Diaries offers a touching glimpse into both sides of a terminal diagnosis - the one who will leave and the one who will be left behind.

Renowned as a BBC journalist, Victoria Derbyshire has spent 20 years finding the human story behind the headlines. In 2015 she was diagnosed with breast cancer. With honesty and openness, she decided to live out her treatment and recovery in the spotlight in a series of video diaries. Victoria has kept a diary since she was nine years old, and in Dear Cancer, Love Victoria she shares her day-to-day experiences of life following diagnosis and coming to terms with a future that wasn't planned.

After a tumor bursts in Mike Scalise's brain, leaving him with a hole in the head and malfunctioning hormones, he must navigate a new alien world of illness maintenance. His mother, who has a chronic heart condition and a flair for drama, becomes a complicated model as she competes with him for the status of "best sick person". The Brand New Catastrophe is a moving, funny exploration of how we define ourselves by the stories we choose to tell.

What is the thing most of us search for, sing about, cry about, that research has all wrong? The secret to the rarest, most passionate love that never ends.

The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones.

Anne McTiernan begins her second memoir in 1982 at age 29, soon after completing her doctoral training in public health research at the University of Washington. She and her husband are now parents to 4-year-old and 3-month-old girls. Realizing that jobs in her field are scarce, especially for women, Anne decides the only option for their financial security is to become a medical doctor. Overcoming her fear and life-long struggle with inadequacy, she moves the family 3,000 miles to New York to begin medical school.

A journey through the deepest valleys and highest peaks of parenting. When a two-month old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying.

When Madeleine Dean discovered that her son Harry was stealing from the family to feed a painkiller addiction, she was days away from taking the biggest risk of her life: running for statewide office in Pennsylvania. For years, she had sensed something was wrong. Harry was losing weight and losing friends. He had lost the brightness in his eyes and voice, changing from a young boy with boundless enthusiasm to a shadow of himself, chasing something she could not see. Now her worst fears had come to light.

Rose is delightful, flamboyant, and a widow. Having just lost her husband, Rose's daughter steps in to find Rose increasingly disoriented and forgetful. Even as a nurse, Maureen does not recognize the early signs of her mother's dementia - a diagnosis that changes her mother's life and those close to her. The contrast between the reality of Rose's condition and the "Casablanca Style" in which she lived is stark yet beautiful. This book parallels Still Alice's medical description of the illness but picks up where Still Alice leaves off.

Eva Hagberg Fisher spent her lonely youth looking everywhere for connection: drugs, alcohol, therapists, boyfriends, girlfriends. Sometimes she found it, but always temporarily. Then, at age 30, an undiscovered mass in her brain ruptured. So did her life. A brain surgery marked only the beginning of a long journey, and when her illness hit a critical stage, it forced her to finally admit the long suppressed truth: she was vulnerable, she needed help, and she longed to grow. She needed true friendship for the first time.

Despite many uphill challenges, Phil's life is a study in perfection. A talented heart transplant surgeon, he marries the love of his life, and his future looks bright--until a tragic event causes his world to crumble around him. Erratic behavior at work threatens to derail his career, leaving several of his patients' lives hanging in the balance.

Eloquent. Philosophical. Introspective. These are not the words usually associated with an autistic child. But in a remarkable display of courage and creativity, a boy named Tito has shattered stereotypes, and in The Mind Tree makes us question all of our previous assumptions about autism. For Tito is severely autistic and nearly nonverbal, and this is his story.

How far would you go for someone you love...on a unicycle? Brothers and sisters often dare each other to do things – it's what siblings do. However, when Connie Johnson dared her brother, Samuel, to embark on a one-wheeled odyssey around Australia, she knew it was a big ask. But Connie knew exactly what she was doing and was sure he wouldn't say no. Not this time. Born a year apart, Connie and Samuel Johnson have always been close.

When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in health care that would limit her daughter's options. Transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited. The injustice of her daughter's fate spurred Janet to start a public battle against outdated health-care regulations and a battle to save Sarah's life.

This guide is designed to support you through the caregiving journey, offering tools to stay prepared and find moments of joy along the way. Gain confidence, support your loved one through every stage, and nurture the bond that means so much to you.

In Just Show Up, Kara and her close friend, Jill Lynn Buteyn, write about what friendship looks like in the midst of changing life seasons, loads of laundry, and even cancer. Whether you are eager to be present to someone going through a difficult time or simply want inspiration for pursuing friends in a new way, this eloquent and practical audiobook explores the gift of silence, the art of receiving, and what it means to just show up.

When Elizabeth Golden, a typical 13-year-old student who enjoyed hanging out with friends, playing sports, and laughing out loud, was diagnosed with Scoliosis and faced major surgery, she was understandably apprehensive about her future. There was one thing, however, that Elizabeth was quite sure of - that there would always be others facing similar challenges, and they could benefit by knowing she shared their pain, fear, uncertainty, joy and triumphs. Out of her journal was born When Life Throws You a Curve: One Girl's Triumph Over Scoliosis.