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2: My Dad! Journeying with a Child Who is Deaf or Hard of Hearing

2: My Dad! Journeying with a Child Who is Deaf or Hard of Hearing

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 Welcome to The Sound Steps Podcast: Conversations in Auditory-Verbal Therapy, exploring fluent spoken language development, conversational competence, clear speech, and age-appropriate development, in children who are deaf or hard of hearing, through the transformative power of listening and parent-centred Auditory-Verbal Therapy, one sound step at a time In this second episode, Shefali Shah is joined by Timothy D’Souza, a father of a child with bilateral cochlear implants from her in-person practice at Sound Steps, who speaks openly about the denial and heart‑wrenching pain of his son’s diagnosis of hearing loss. Alongside profound deafness, his son faced additional challenges: thin auditory nerves and Sensory Integration Difficulty. This deep conversation highlights the importance of prioritising yourself, parenting without guilt, so that you can fully support your child who is deaf or hard of hearing. From the early days of denial to celebrating his hearing impaired son’s constant chatter, Timothy shares how informed decisions, consistency and a creative approach to Auditory-Verbal Therapy, shaped their journey. You’ll hear how goals in occupational therapy and speech were seamlessly integrated into weekly targets in Auditory-Verbal Therapy, creating a single meaningful and joyful process and how a strong father-son bond endures. This conversation is both poignant and filled with laughter, through the years of teenager development, celebrating the emergence of a compassionate adolescent who is appreciated at school for his empathy. This is The Sound Steps Podcast. 🎧 Top Tips from Episode 2 Enjoy the process. Make therapy fun and creative.Make yourself a priority. Taking time out without guilt is energising.Raise your child to be the best version of himself. Resist comparisons.Your child is unique. Focus on appreciation, not pity.AVT builds a life‑long relationship. Invest in it with intention. ⏱️ Time Stamps 00:00:00 Introduction 00:01:33 90% of deaf children are born to hearing parents 00:01:43 Choosing Auditory-Verbal Therapy 00:02:18 AVT facilitates age-appropriate development 00:02:43 Abundant choices open up through AVT 00:03:09 Early identification, sophisticated modern hearing technology and appropriate services 00:03:17 A life free of limitations 00:03:25 Show notes, Top Tips Time Stamps 00:03:35 Links and Contact details 00:03:43 Resources 00:03:47 Diagnosis: Thin auditory nerve and Sensory Integration Difficulties 00:04:15 Introducing our guest on this episode: Timothy D’souza 00:04:40 Moving on 00:05:38 Denial to action: facing the facts 00:06:42 Action 00:07:36 Raising your child to be the best version of himself 00:08:13 Isolation 00:08:15 The effects of poor speech intelligibility 00:09:45 Overcoming the challenges through consistent practice 00:09:54 Touch sensitivity 00:10:14 Integrating Occupational Therapy and Speech goals into AVT 00:11:39 Changing perspective 00:12:45 The value of games 00:14:21 Consistency 00:15:00 The value of self-care for parents 00:18:31 Bonding 00:18:41 Handling tantrums 00:19:48 Consistency and managing behaviour 00:20:56 An extra-ordinary relationship 00:21:46 Empathy and emotional maturity 00:22:26 An exceptionally special bond 00:23:11 Reflection 00:23:49 Upcoming episode: Auditory-Verbal Beginnings 🔗 Links 💬 Submit a question to the show: https://learnavt.com/podcast-ask-question 📧 Contact Shefali directly: shefalishah@soundsteps.uk 👩‍⚕️ Face-to-face AVT (London): https://soundsteps.uk 🌐 Online AVT via AVT Direct: https://avtdirect.com 🎓 AVT training for professionals: https://learnavt.com 📘 Resources: Gozen, D., Yener, H.M., Kara, H., Atas,A.,Kizilkilic, O, Cansiz, H.,(2022), Does size of the cochlear nerve affect postoperative auditory performance in pediatric cochlear implant patients with normal cochlear nerves?, Brazilian Journal of Otorhinolaryngology, Volume 88,Issue 3,May-June2022, pages 390-398.Roley, S.S., Mailoux, Z., Miller-Kuhaneck, H.M., Glennon,T (2007), Understanding Ayres’ Sensory Integration, Sacred Heart University Digital Commons
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