Page de couverture de 23: Hypermobile Ehlers Danlos and ADHD / ASD: Part 1 - The physical mind-body link that explains why neurodivergents feel like sh!t

23: Hypermobile Ehlers Danlos and ADHD / ASD: Part 1 - The physical mind-body link that explains why neurodivergents feel like sh!t

23: Hypermobile Ehlers Danlos and ADHD / ASD: Part 1 - The physical mind-body link that explains why neurodivergents feel like sh!t

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What’s the connection between chronic pain, misdiagnosis, and neurodivergent health?

This week’s episode takes a deep dive into Hypermobile Ehlers-Danlos Syndrome (hEDS) and what it reveals about our healthcare system.

On this episode of The Neurodivergent Report, we explore the complex genetic overlap between the neurodivergence spectrum and chronic health conditions, particularly hypermobile Ehlers-Danlos Syndrome (hEDS).

From diagnosis delays to hormonal impacts and gender bias, we unpack what it's like to live in a body that’s often misunderstood.

Curious what’s inside:

  • What hypermobility actually is and why it takes so long to diagnose

  • The strong genetic link between hEDS, ADHD, and autism

  • How gender hormones affect symptoms and care

Listen now for coping strategies, community support, and a vision for better systems of identification and care!

Let us know your thoughts @ndreportpod on the socials.


However you are able to engage, thanks for being here!

Love, Sarah 💜


📢 Connect with Us

Follow 👉 @ndreportpod

Apply to be a guest 🎤⁠⁠⁠ ⁠⁠⁠⁠ndreportpod.com


📚 Resources for more on this topic:

  1. https://www.ehlers-danlos.com/

  2. https://www.edsrf.org/

  3. https://www.ehlers-danlos.com/heds-diagnostic-checklist/

  4. https://www.ehlers-danlos.com/assessing-joint-hypermobility/

  5. 2021 Prevalence study: https://www.tandfonline.com/doi/full/10.2147/NDT.S290494#d1e171

    6. Sam's Research References:

    1 Brittain, Mackenzie, et al. 2023. https://doi.org/10.1080/09638288.2023.2216028.

    2 Buckner, Martin. 2014. Ehlers-Danlos syndrome: the role of acute inpatient rehabilitation.

    3 Castori, Marco. 2012. https://doi.org/10.5402/2012/751768.

    4 Csecs, J., Dowell, N., et al. 2021. https://doi.org/10.1002/ ajmg.c.31957

    5 Csecs, Jenny, and Iodice, Valeria. 2022. https://doi.org/10.3389/fpsyt.2021.786916.

    6 Dupuy, Emma G., et al. 2017. https://doi.org/10.3389/fnhum.2017.00283.

    7 Halverson, Colin M.E., et al. 2023. https://doi.org/10.1016/j.gimo.2023.100812.

    8 Higo A, et al. 2023. doi:10.1002/ccr3.6821

    9 Hsieh, Ru-Lan, et al. 2019. LWW Journals. journals.lww.com/md-journal/Fulltext/2018/05180/Short_term_effects_of_customized_arch_support.12.aspx.

    10 Jensen, Anne, et al. 2020. journals.sagepub.com/doi/full/10.1177/0309364620956866.

    11 Lusardi, Michelle, et al. (2012). Orthotics and Prosthetics in Rehabilitation, 3rd Edition. Saunders Publishing.

    12 Pandey, Sanjay, et al. (2021). https://doi.org/10.1002/mdc3.13390

    13 Russek, Leslie. (2022) https://www.jospt.org/do/10.2519/jospt.blog.20230917

    14 Snowdon, Nicky, and Dadla, Sakina. (2023). https://doi.org/10.12968/ijtr.2022.0148

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