
24: EDS, MCAS, POTS and the Neurodivergent Link ADHD/ASD: Part 2 of why you feel like sh!t all the time...
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Are you bendy, itchy, or dizzy all the time? You might be struggling to balance the trifecta of symptoms syndromes…
This research episode of The Neurodivergent Report features orthotics researcher Sam Silverman, along with the full @ndreportpod team! Together, we explore the interconnectedness of these often-overlooked chronic conditions and how they disproportionately affect neurodivergent people.
Curious what’s inside:
Defining MCAS, POTS, and EDS in plain terms
What the research says about comorbidity and prevalence (who even gets this?)
The importance of coordinated and compassionate medical care teams
If it feels like your body just called it quits one day… YOU’RE NOT ALONE. This episode is for anyone who’s been dismissed, misdiagnosed, or just trying to get through the day in a body that won’t cooperate.
Let us know your thoughts @ndreportpod on the socials.
However you are able to engage, thanks for being here!
Love, Sarah 💜
📢 Connect with Us
Follow 👉 @ndreportpod
Apply to be a guest 🎤 ndreportpod.com
📚 Resources for more on this topic:
https://www.ehlers-danlos.com/
https://www.edsrf.org/
https://www.ehlers-danlos.com/heds-diagnostic-checklist/
https://www.ehlers-danlos.com/assessing-joint-hypermobility/
📚 Sam’s Research References:
Brittain et al. (2023). PT Interventions in G-HSD & hEDS. Disability & Rehabilitation. https://doi.org/10.1080/09638288.2023.2216028
Buckner (2014). EDS in acute rehab. J. Prosthetics & Orthotics.
Castori (2012). EDS-HT overview. ISRN Dermatology. https://doi.org/10.5402/2012/751768
Csecs et al. (2021). Hypermobility & dysautonomia comorbidity. Am J Med Genet C. https://doi.org/10.1002/ajmg.c.31957
Csecs & Iodice (2022). Neurodivergence & joint hypermobility. Front Psychiatry. https://doi.org/10.3389/fpsyt.2021.786916
Dupuy et al. (2017). Somatosensory orthoses & balance. Front Hum Neurosci. https://doi.org/10.3389/fnhum.2017.00283
Halverson et al. (2023). Misdiagnosis & diagnostic delay in hEDS. Genet Med Open. https://doi.org/10.1016/j.gimo.2023.100812
Higo et al. (2023). Fabric orthoses case report. Clin Case Rep. https://doi.org/10.1002/ccr3.6821
Hsieh et al. (2019). Arch support for kids w/ flatfoot. LWW Journals. Link
Jensen et al. (2020). Finger orthoses & function. Sage Journals. https://doi.org/10.1177/0309364620956866
Lusardi et al. (2012). Orthotics & Prosthetics in Rehab (3rd ed). Saunders.
Pandey et al. (2021). Movement disorders & MSK overlap. Mov Disord Clin Pract. https://doi.org/10.1002/mdc3.13390
Russek (2022). Cervical instability in hEDS. JOSPT. https://www.jospt.org/do/10.2519/jospt.blog.20230917
Snowdon & Dadla (2023). Allied health views on fabric orthoses. Int J Ther Rehabil. https://doi.org/10.12968/ijtr.2022.0148
🔑 Keywords:#Neurodivergent #HypermobileEDS #POTS #MCAS #ChronicIllness #Neurodivergence #InvisibleDisabilities #ADHD #Autism #MentalHealth #MedicalGaslighting #SupportSystems #Neurospicy #SelfAdvocacy #IntersectionalHealth #HormonalHealth #WomenInMedicine #NDreportpod #ResearchPodcast