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Hacking Hypermobility

Hacking Hypermobility

Auteur(s): Two Bendy Mommas
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À propos de cet audio

Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.Two Bendy Mommas Hygiène et mode de vie sain
Épisodes
  • 3.14 A Conversation With Dr. Akilah Cadet
    Aug 1 2025

    Notes are coming!

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    1 h
  • 3.13 July is Disability Pride Month
    Jul 26 2025

    Summary

    It's our Third Birthday! Yay! Celebrate by taking a quick look back at some unseen footage from July 2022.

    Later in the episode, Luna and Shelli continue their conversation with Dr. Tina Wang.

    Keywords

    hypermobility, Ehlers-Danlos syndrome, community support, advocacy, personal stories, awareness, medical care, mental health, holistic approaches, podcasting

    Takeaways

    Community support is crucial for individuals with hypermobility.

    Personal stories can help others feel less alone in their struggles.

    Advocacy and awareness are essential for improving care for hypermobility disorders.

    The importance of holistic approaches in managing health conditions.

    Sharing experiences can lead to greater understanding and empathy.

    Elevating marginalized voices is a priority in the hypermobility community.

    The podcast aims to bring diverse perspectives to the forefront.

    Emotional health is intertwined with physical health in managing hypermobility.

    Future goals include expanding outreach and resources for the community.

    The journey of understanding and managing hypermobility is ongoing and requires collaboration.

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    39 min
  • 3.12 A Conversation With Fascia Researcher Dr. Tina Wang
    Jul 19 2025

    Summary

    In this episode, Luna and Shelli interview Dr. Tina Wang, a leading expert in fascia and hypermobility disorders. They discuss the importance of fascia in the body, its role in conditions like Ehlers-Danlos Syndrome, and the challenges faced in diagnosing and treating these disorders. Dr. Wang shares insights from her research, the significance of holistic care, and the need for better education and advocacy in the medical community. The conversation also touches on innovative treatment options and the upcoming Fascia Research Congress, highlighting the importance of collaboration in advancing the understanding of fascia and its impact on health.

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    "Fascia is a system that permeates every organ."

    "Fascia is crucial to all our metabolic processes."

    "We are spiritual beings in a physical body."

    Keywords

    fascia, hypermobility, Ehlers-Danlos Syndrome, pain management, holistic health, proprioception, fascia research, chronic pain, treatment options, patient advocacy

    Takeaways

    Fascia is a crucial system that permeates every organ in the body.

    Hypermobility is common in dancers and musicians, leading to unique challenges.

    The treatment outcomes for myofascial pain are often unsatisfactory.

    Patients need to learn how to manage their healthcare providers effectively.

    Fascia plays a significant role in metabolic processes and overall health.

    There is a need for clear diagnostic standards for hypermobility disorders.

    Every patient requires an individualized treatment approach.

    Many individuals with hypermobility are also highly sensitive and intuitive.

    The Fascia Research Society is actively seeking collaborators for research.

    Holistic care is essential for managing complex conditions like EDS.

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    1 h et 22 min
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