• Jo Milne’s Fight to Change the Future of Usher Syndrome

  • Apr 28 2025
  • Durée: 21 min
  • Podcast

Jo Milne’s Fight to Change the Future of Usher Syndrome

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  • Résumé

  • In this episode of the We Are PoWEr Podcast, we sit down with Jo Milne, founder of Cure Usher Syndrome, to talk about her mission to find a cure and amplify the voices of those living with Usher syndrome.

    Jo shares her personal experience of being misdiagnosed, only to learn at 29 that she had been living with the condition all along. As someone who grew up partially sighted without a role model to look up to, she is now determined to be that person for others—empowering more people to speak up and embrace their identity.

    Beyond her work as a mother and advocate, Jo discusses the power of support, from the people who helped her build confidence to her partner, who encouraged her to fully embrace who she is.

    This conversation is a powerful reminder of the impact of community, resilience, and using your voice to drive change.

    Find out more about We Are PoWEr here. 💫
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