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Let's Talk MND

Let's Talk MND

Auteur(s): Jane Simpson
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À propos de cet audio

 You might imagine a podcast interviewing people with MND may be depressing or sad. Whilst the guests with MND do not sugar-coat their disease, they all know their outcome, these conversations are insightful, at times joyful, at times it will make you cry. Unusual for a podcast, some of the guests are unable to speak, but thanks to AI they have a voice. These are the stories behind the MND Beast. The people behind the label, the people we are trying to help with fundraising, care and research.2024 Hygiène et mode de vie sain Troubles et maladies
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  • Let's Talk MND - Dr. Christen Chisholm

    Let's Talk MND - Dr. Christen Chisholm
    Jul 21 2025

    Dr. Christen Chisholm is a post-doctoral research fellow at the University of Wollongong in Australia where she trained in the lab of the late Professor Justin Yerbury. She recently completed her PhD which focused on the development of an antibody based BioPROTAC therapeutic to specifically reduce levels of misfolded SOD1, a toxic protein species associated with amyotrophic lateral sclerosis (ALS). Her work also focuses on understanding the mechanisms of cellular protein degradation and strategies to harness these pathways as potential therapeutic avenues in the treatment of ALS.

    Christen is also a long time friend of the Yerbury's .`
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    31 min
  • Let's Talk MND - Victoria University

    Let's Talk MND - Victoria University
    Jun 12 2025
    Victoria University are conducting a trial called "The neuroprotective potential of exercise in individuals with Motor Neuron Disease – the ProtEx-MND project". It is in collaboration with Calvary Health Care Bethlehem and received funding from the National Health and Medical Research Council (NHMRC). They would like to understand if exercise can help maintain functional capacity and muscle and brain health in people diagnosed with MND. Despite the known benefits of exercise in improving physical function and quality of life in different clinical populations, exercise is currently not an integral part of the multidisciplinary care of people with MND. This is mainly due to the absence of MND-specific exercise guidelines and the limited evidence surrounding the beneficial effects of exercise in this population. The aim of this project is to fill this knowledge gap and to understand if exercise can slow neurodegeneration in individuals living with MND, investigating the neuroprotective potential of 16 weeks of carefully prescribed exercise on their brain, spinal cord, and skeletal muscle. The findings of this study will help to determine the role of exercise in the care of people living with MND. Here is a link to the project description: https://www.vu.edu.au/institute-for-health-sport-ihes/projects/the-protex-mnd-project
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    47 min
  • Let's Talk MND - Prof. Brad Turner

    Let's Talk MND - Prof. Brad Turner
    Mar 26 2025

    Professor Bradley Turner is Head of the Motor Neuron Disease Group and Research Lead of the Brain Health and Repair Mission at The Florey Institute. His group has a broad research interest in neurodegenerative diseases affecting the voluntary motor system in the brain and spinal cord. His team focuses on MND.

    This is a very brief summary but if I spoke of all the research and publications we would be here all day.

    Brad has a huge brain and a huge heart.
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    59 min
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