Neurosurgeon Dr. Teo joins Michael and Kelly to challenge the “pineal cysts are always asymptomatic” dogma. He recounts the serendipity that led him to operate, why some patients improve after surgery, and how mechanical explanations (aqueduct and venous compression) can account for headaches, neuro/visual issues—and even severe psychiatric symptoms. Dr. Teo also discusses peer pushback, litigation fears, and the need for careful consent with a skilled pineal-region surgeon. The conversation acknowledges alternate hypotheses (including hormonal theories), highlights progress since the Human Connectome Project, and shares practical guidance for patients seeking help.If you’ve been told “it’s all in your head,” this one is for you.

In this deeply moving conversation, Glenda shares her 11-year-old son’s journey with two brain cysts—a pineal gland cyst (~1.3 cm) and a cavum septum pellucidum (CSP) cyst (~6.2 cm)—and the uphill battle to be heard. Despite multiple MRIs and escalating neurological symptoms (vision loss/“upside-down” vision, severe headaches, anisocoria, behavioral episodes, leg tremors, learning and auditory processing challenges), several providers dismissed a cyst-symptom connection. Michael and Kelly reflect on their own experience, discuss hope, advocacy, and options, and encourage next steps with specialists who take symptomatic pineal cysts seriously.

Content note: pediatric medical distress, dismissal by providers.

If this episode resonates, share it with another family, leave a review, and visit pinealstories.com to submit your storyand find resources. Your voice helps shift the medical conversation.

Chelsea’s symptoms began in her early 20s—debilitating headaches, blinding light sensitivity, nausea, dizziness, fainting, and profound insomnia. Years later, during pregnancy, everything escalated. Despite repeated ER trips and specialist visits, she was told it was “just hormones,” “just blood pressure,” “post-COVID,” or even “all in your head.”

After pulling her own MRI from MyChart, she discovered an “incidental” pineal cyst. What followed was medical gaslighting, a devastating decline, suspected mini-strokes, and a fight to be believed. A second-opinion path led her to a neurosurgical consult and, ultimately, surgery on August 15 (last year). Today, Chelsea is one year post-op—and her symptoms are gone. She shares what changed immediately after surgery (hearing, light sensitivity, memory), the toll on her family, and the hope she wants others to find sooner.

Content Note

This episode includes discussion of severe illness, medical gaslighting, and suicidal thoughts. If you or someone you know is in crisis, please seek help immediately (e.g., call/text 988 in the U.S.).

Key Moments / Chapters

• Host intro & disclaimer
• Early 20s: migraines, light sensitivity; first pregnancy (2016) and a sudden collapse
• “Incidental finding”: Chelsea reads her own MRI report in MyChart (pineal cyst noted)
• Gaslighting & misdiagnoses: anxiety/depression labels, “slow-growing cyst,” “COVID,” even accusations of fabricated records
• Cleveland Clinic second opinion: cyst vs. pineocytoma; ongoing decline and suspected mini-strokes
• Community matters: finding the pineal cyst support group and real validation
• Referral, workup & candid talk: “You don’t do brain surgery for headaches”—why this was far more
• Surgery day (Aug 15): what changed right away (hearing clarity, light tolerance)
• One-year post-op: symptoms gone; memory returning; cycles normalizing
• Family perspective: caregiver strain, guilt, and rebuilding after survival
• Creativity during illness vs. after recovery—how the brain “felt different”
• Closing reflections: awareness, advocacy, and what Chelsea wants others to know

Takeaways

• “Incidental” doesn’t mean irrelevant—symptoms matter.
• If you’re not being heard, a second opinion (and your records) can be life-changing.
• Chronic stress from undiagnosed illness can impair memory and functioning.
• Recovery can take time—but full, durable relief is possible.
• Caregivers need space and support, too.

Notable Quotes

• “It wasn’t just headaches.”
• “I was told it was anxiety, COVID—anything but what it was.”
• “Waking up from surgery, I heard my husband’s voice so clearly.”
• “One year later, my symptoms are gone.”
• “A ‘slow-growing cyst’ was slowly killing me.”