S1E4: Advocacy
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S1E4: Advocacy
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In this episode, we begin by reflecting on the counselling interventions and issues raised in episode 3: testing of children. We then introduce a new case about Kaitlin* and her husband Ben, who encounter a difficult decision in pregnancy.
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More information about topics referenced in our discussion:
- Shkedi-Rafid, et al. (2014), Genetic testing of children for adult-onset conditions: opinions of the British adult population and implications for clinical practice, Eur J Hum Genet 23, 1281–1285.
- Metcalfe, et al. (2008), Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research, Eur J Hum Genet 16(10): 1193-1200.
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*Pseudonyms are used throughout
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