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Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

Auteur(s): John Carlin
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Fighting sarcoidosis as well as other rare diseases.Copyright 2020 All rights reserved. Entraînement physique et mise en forme Hygiene & Healthy Living Mise en forme, régime et nutrition Troubles et maladies
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  • Episode141| A tough patch for me and Royce Roberston rides for all of us.
    Jun 23 2025

    In this episode Royce Robertson joins me to talk about how he's raising money to make it easier for Sarcoidosis patients to travel to and from their appointments. It can be expensive to travel great distances to the right doctor, as he knows first-hand. Royce and I are also part of a panel discussion on exercise and sarcoidosis coming up at the FSR Summit on June 28. I will also share some personal details about a bit of a difficult time I'm experiencing at a personal level. #sarcoidosis #sarcoidosisawareness

    Show Notes

    FSR Summit on June 28, 29 https://www.stopsarcoidosis.org/sarcoidosis-summit/

    Help Royce help you: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc

    More on brepocitinib: https://sarcoidosisnews.com/news/brepocitinib-phase-2-trial-doses-first-cutaneous-sarcoidosis-patients/

    Methotrexate Study: https://sarcoidosisnews.com/news/methotrexate-effective-though-slower-treating-pulmonary-sarcoidosis/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

    #sarcoidosis #sarcoidosisawareness

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    39 min
  • Episode 140 | Getting your questions answered at the 2025 FSR Global Virtual Sarcoidosis Summit
    Jun 9 2025

    If there is one place to meet other sarcoidosis patients and to get your questions answered, from insurance denials to sex after sarc, it's at the 2025 FSR Global Virtual Sarcoidosis Summit. The Summit is happening on June 28th and 29th. And the deadline to sign up is June 14. Joining me on the show today are Elise Hoover, VP for Research at FSR, and Kristen Vargas, who is the Planning Lead for the event. Together, they will tell you everything you need to know and what to expect at this year's event.

    Show Notes

    Sign up for the FSR Summit on June 28, 29 https://www.stopsarcoidosis.org/sarcoidosis-summit/

    Scholarship for the FSR Summit: https://apply.stopsarcoidosis.org/submit/c4b02fbd-d5e6-4013-9b11-d3a5957c2c89/2025-global-virtual-sarcoidosis-summit-scholarship-request-interest-form

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

    #sarcoidosis #sarcoidosisawareness

    Voir plus Voir moins
    50 min
  • Episode 139 | Dr. Sotonye Imadojemu talks about Sarcoidosis of the Skin.
    May 26 2025

    In this Episode of the FSR Sarc Fighter Podcast Dr. Sotonye Imadojemu joins me to talk about sarcoidosis of the skin or cutaneous sarcoidosis. It's very common, but we don't always talk about it. sometimes it is it's own problem, and often it represents a hidden issue with sarcoidosis concerning additional organ involvement. Dr. I is an expert working in Boston at Brigham and Women's Hospital.

    Show Notes

    Sign up for the FSR Annual Summit on June 28, 29 https://www.stopsarcoidosis.org/sarcoidosis-summit/

    Scholarship for the FSR Annual Summit: https://apply.stopsarcoidosis.org/submit/c4b02fbd-d5e6-4013-9b11-d3a5957c2c89/2025-global-virtual-sarcoidosis-summit-scholarship-request-interest-form

    More on Dr. Imadojemu: https://physiciandirectory.brighamandwomens.org/details/13366/sotonye-imadojemu-dermatology-boston-chestnut_hill

    Kinderdijk: https://kinderdijk.com/

    FSR brings the N95 Mask Game to people fighting the California wildfires: https://www.globenewswire.com/news-release/2025/04/02/3054169/0/en/Foundation-for-Sarcoidosis-Research-Joins-with-Walgreens-Cedars-Sinai-to-Provide-Foothill-Unity-with-Free-N95-Masks-to-Protect-Residence-Cleaning-Up-from-the-Recent-Los-Angeles-Wil.html

    The study reported in Sarcoidosis News: https://sarcoidosisnews.com/news/28-gene-mutations-associated-sarcoidosis-risk-identified-study/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

    #sarcoidosis #sarcoidosisawareness

    Voir plus Voir moins
    46 min

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