• Sarc Fighter: Living with Sarcoidosis and other rare diseases

  • Auteur(s): John Carlin
  • Podcast
Page de couverture de Sarc Fighter: Living with Sarcoidosis and other rare diseases

Sarc Fighter: Living with Sarcoidosis and other rare diseases

Auteur(s): John Carlin
  • Résumé

  • Fighting sarcoidosis as well as other rare diseases.
    Copyright 2020 All rights reserved.
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Épisodes
  • Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
    Apr 22 2024

    Joining me today on the FSr Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod, the most promising candidate to become the first drug developed specifically to fight sarcoidosis. Sanjay joins the podcast from Brazil, just one of the countries around the world, where the drug is in clinical trials. He will discuss how much more testing is needed and when the drug could become available to sarcoidosis patients.

    Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

    More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

    Donate to Royce and Cycle4sarc: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc

    Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

    Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

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    52 min
  • Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
    Apr 8 2024

    Episode 111 is a special episode of the FSR Sarc Fighter podcast. It's sarcoidosis awareness month -- and the folks who are fighting for us at FSR want to get the word out. So Angela O'Malley and Cathi Davis join me for the show to talk about how they are working behind the scenes to get people to "Say Sarcoidosis." But also on the show is fellow sarc fighter Mathew Hall, who is an Ironman triathlete, who found himself in a hospital bed -- unable even to take a walk down the hall. He joins the show as well to share his story and to talk about his plans to bounce back to the extent he can -- and to use it to raise awareness and some funding for FSR.

    Show Notes

    Support Mathew https://stopsarcoidosis.rallybound.org/steps-for-sarc-2023/Member/MyPage/6333308/Mathew-Hall

    Sarcoidosis awareness Month 2024 https://www.stopsarcoidosis.org/saysarcoidosis/

    Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

    More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

    Donate to Royce and Cycle4sarc: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc

    Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

    Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

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    1 h et 3 min
  • Episode 110 | Walgreens is helping to fight Sarcoidosis
    Mar 25 2024

    In this Episode of the Sarc Fighter podcast, we learn how Walgreens is making Sarcoidosis a priority for its customers. Not only is Walgreens doing a fundraiser for the Foundation for Sarcoidosis Research -- the chain is talking about the disease and spreading the word that sarcoidosis is out there, that patients need help, and that the disease needs to be recognized as a big problem for the medical community. Listen in as Melissa Pharo of Walgreens and Angela O'Malley of FSR join me to talk about how this major pharmaceutical chain recognizes the needs of the sarcoidosis community.

    Show Notes:

    More on aTyr Pharma: https://atyrpharma.com/

    Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

    More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

    FSR awards $100,000 in Grants: https://www.stopsarcoidosis.org/fsr-awards-100000-in-support-of-cardiac-sarcoidosis/

    More on ACE test to determine multiple organ involvement of Sarcoidosis: https://sarcoidosisnews.com/news/biomarker-detects-multiple-organ-involvement-sarcoidosis-diagnosis/

    Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

    Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

    MORE FROM JOHN:

    Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

    Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

    If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

    The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

    Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

    My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

    email me carlinagency@gmail.com

    Voir plus Voir moins
    35 min

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