Obtenez 3 mois à 0,99 $/mois

OFFRE D'UNE DURÉE LIMITÉE
Page de couverture de The LCC Circle

The LCC Circle

The LCC Circle

Auteur(s): Ashley
Écouter gratuitement

À propos de cet audio

We share stories, successes, and scientific insights from the world of ultra-rare diseases. Through heartfelt conversations and expert insights, we bring together families, researchers, and advocates to illuminate the path toward understanding and treating LCC/Labrune Syndrome.


© 2025 The LCC Circle
Hygiène et mode de vie sain Science Troubles et maladies
Épisodes
  • What is LCC?
    Oct 9 2025
    In Episode 1, host Holly Tinker is joined by Dr. Jamie Fraser and Ashley Dike to explore the basics of Leukoencephalopathy with Brain Calcifications and Cysts (LCC), also known as Labrune Syndrome. Together, they share what this ultra-rare disease is, how it impacts families, and why the connection between patients, caregivers, and researchers is vital to finding answers.


    Voir plus Voir moins
    33 min
Pas encore de commentaire