Disability Biography

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

Abbey Curran was born with cerebral palsy, but early on she resolved never to let it limit her. Abbey made history when she became the first contestant with a disability to win a major beauty pageant. After earning the title of Miss Iowa, she went on to compete in Miss USA.

Learning to adapt to life after being diagnosed with chronic pain and illness is extremely difficult. Life as you knew it, along with your hopes and dreams for your life, literally gets turned upside down in an instant. This comes with a lot of deep complicated emotions from grief, sadness, anger, frustration to living in a constant state of uncertainty and stress. Most people assume that if you get sick, a medical professional like Dr. House will work endlessly until they have answers and a cure so you can go back to living the life you used to know.

Before a surfing accident caused 33-year-old Devon Raney to lose all but 15 percent of his vision, he had already lived an extraordinary life. Time and again, he'd gone against the grain to maximize time for his passions - surfing, skateboarding, and snowboarding - bringing him into the direct path of colorful characters, unexpected adventures, and even the occasional brush with death. Through it all, Devon's commitment to outdoor adventure never wavered.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Autism is the fastest growing and most common developmental disorder. Imagine the frustration and anxiety over taking your child to a team of medical specialists to be told that they have a lifelong and often debilitating developmental disorder with no cure and limited treatment options? Lauren's parents knew something was different about her from the time she was an infant but as she entered Kindergarten in the fall of 1986 her differences were very obvious to everyone around her as compared to other children her age.

Perhaps, you are one of three girls, or one of five boys that was sexually abused by the time you were 18 years old. Unfortunately, I fell into that nasty category. In preparing to write my first memoir, Identifying and Healing Childhood Sexual Abuse, I came upon a list of approximately 99 different after-effects that come as a result of sexual abuse. Finally, I held in my hands, a list of words that totally and completely described myself! I pray that this audiobook will give you the information that you need for a total and complete healing in your life!

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?

Sandra Allen did not know their uncle Bob very well. As a child, Sandy had been told Bob was “crazy”, that he had spent time in mental hospitals while growing up in Berkeley in the '60s and '70s. But Bob had lived a hermetic life in a remote part of California for longer than Sandy had been alive, and what little Sandy knew of him came from rare family reunions or odd, infrequent phone calls. Then in 2009, Bob mailed Sandy his autobiography.

In this intimate story of relationship resilience, marine biologist Beth Mathews’s adventurous life as a professor and mother in Alaska is upended when her healthy husband is slammed by a rare type of stroke. Jim’s radical approach to recovery clashes with Beth’s instinct to keep him safe at home and sets them on a collision course as he insists on ambitious sailing expeditions with Beth and their young son in Alaska’s magnificent yet unforgiving waters.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Athena Stevens has never learned the name of the doctor whose lack of intervention at her birth lead to her cerebral palsy, but she feels the consequences of his actions – and inaction – every day. The factor observed first and foremost in her life will forever be the effects of what other people have done to her, rather than her accomplishments. And yet, she was groomed to believe that she would overcome any force that stood in her way.

The spoiler is that Platinum, the shiny precious metal we may associate with glamour and wealth, was an ingredient in one of the chemo compounds. In this context, it functioned as a poison, carrying out the bizarre miracle of chemotherapy where death and life meet. Tracing through the paradoxical tensions of treatment, healing from treatment, succumbing to medicine and claiming autonomy, Hannah Kate guides us through essential components of the journey. There are material resources that will support you—yet much of what is needed requires connecting with the fundamental elements of life.

When fourth grader Alex Schwartz first met his cello, his eyes lit up with wonder, and a smile appeared on his face as bright as the potential his new cello teacher saw within him. The cello positively impacted all aspects of his development, including focus, fine motor, and gross motor skills.

Born in Ghana, West Africa, with one deformed leg, he was dismissed by most people - but not by his mother, who taught him to reach for his dreams. As a boy, Emmanuel hopped to school more than two miles each way, learned to play soccer, left home at age 13 to provide for his family, and, eventually, became a cyclist. He rode an astonishing 400 miles across Ghana in 2001, spreading his powerful message: Disability is not inability. Today, Emmanuel continues to work on behalf of the disabled.

Defiant chronicles the remarkable life of Janine Shepherd, an elite ski racer whose bid to represent Australia in the Olympics was cut short by a tragic accident. She recalls the 10 days she hovered between life and death, faced with the difficult choice to let go or return to a body that would never be whole again. Defiant offers hope and encouragement for anyone facing a life challenge, sharing the author's hard-won wisdom and priceless advice for navigating one's way from loss to healing.

I know this sounds a bit cliche, but life truly is a journey. It evidences as a unique sojourn for every individual person. This is the story of a child born seventy years ago. It is a story of triumph and setbacks, of joy and sorrow, of weakness and strength. But most of all, it is a story of courage. Brian J. Woznicki was born with cerebral palsy. He was dealt a very difficult hand in life.

La réalité quotidienne d'un non-voyant est un pays étranger. Quel est son rapport au monde ? À la ville et à la nature, à la nécessité de se déplacer, d'utiliser des écrans tactiles, de traverser les rues, de reconnaître les gens ? Invité à donner des cours au Québec, l'historien Jacques Semelin nous propose un récit de voyage d'un genre nouveau. À la fois le sien, dans une ville dont il découvre tout, et le nôtre, dans la tête et le corps d'un non-voyant.