Disability Biography

At the age of sixty, and having lived with Parkinson’s disease for over ten years, Guy Deacon CBE set out on one last adventure: to drive solo from his home in the UK 18,000 miles and through twenty-five countries to Cape Town on the southern tip of Africa. This incredible journey, across Europe and down the full length of Africa, took the former British Army officer over twelve months. Along the way, he broke down five times, underwent one emergency evacuation, and took 3,650 prescription pills.

This English professor grew up spacey and overweight. Drowning in the unrealistic demands of motherhood, Livingston steals her son's ADHD medication and watches it transform her life—for good and bad. She grows weary of subjective diagnoses and chemical treatments from traditional psychology experts, and experiments with functional medicine—brain mapping and nutritional supplements—as a way to understand her brain's potential, bio-hacking her way to a healthy body and mind.

Blindness in the 1950s was a social stigma. Stephen's mother wanted a normal life for him, so he fought desperately to uphold the illusion of sight. For a child frantic to fit in, each day was an exhausting pretence. He managed to ride a bike, when even reading involved pressing his nose to the page and painfully forcing his eyes to concentrate. Head up, he strode through a carefully memorized labyrinth of streets, hoping to fool passers-by that he could actually see.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

Le 3 avril 2015, on diagnostique à Marine, jeune étudiante dynamique de 21 ans, une sclérose en plaques, appelée plus communément SEP. L'urgence de la situation, le besoin de prendre une décision quant à la prise d'un traitement ou non et le manque d'informations, l'amène à s'interroger. "La maladie c'est toi qui l'as, il faut donc chercher la solution en toi." Son traitement ? Réaliser un projet rêvé : le voyage.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

Hannah Daly is a pediatric occupational therapist and an advanced sensory integration practitioner who is profoundly dyslexic, dyspraxic, and has sensory processing disorder. She has multiple university degrees but still cannot read or write. In Knowing No Boundaries, she gives an honest account of living with these hidden disabilities. This book is a unique coming-of-age, feel-good memoir that strikes the balance of vulnerability and humor.

Until sophomore year of high school, 15-year-old Allison Britz lived a comfortable life in an idyllic town. She was a dedicated student with tons of extracurricular activities, friends, and loving parents at home. But after awakening from a vivid nightmare in which she was diagnosed with brain cancer, she was convinced the dream had been a warning. Allison believed that she must do something to stop the cancer in her dream from becoming a reality.

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

DEMENTIA and OUR LOVE, Caregiving as spiritual practice, is the story of Gary and Heather's love that sustained them through an unusual and courageous life across continents, including tending Gary and his onset of dementia at 73 years. The story helped them remember their love and use this energy to move through the hard times. We will always remember us this way, a song by Lady Gaga, was pivotal in keeping Heathers focus.

In her moving account of how she came to understand the world around her despite being blind and deaf since childhood, Helen Keller confirms that no physical obstacle can hinder the achievements of the human mind. Included with Keller's poignant autobiography are her letters, spanning 15 years, which reveal her remarkable intellectual growth and empathic soul. Commentary by her teacher, Anne Sullivan, and the book's original editor is also featured, providing illuminating insight from two of Keller's closest companions.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Speaking My Truth is about a young man named Abdulahi Hassan who is born with a physical disability called Cerebral Palsy and tries to live a normal life. Regardless of his daily struggles he faces physically and mentally he is slowly learning to speak his truth and taking control of his own narrative one step at a time with a single beautiful smile.

An inspiring and unforgettable memoir that provides hope to others who are experiencing depression, mania, or psychosis, RESILIENT is a deeply personal account about life with mental illness, hearing loss and resiliency. Liz's journey provides encouragement for patients, families, friends, and healthcare workers by showing that recovery is possible.

Written as a narrative short story, CallyRae shares her candid insights as she journeys through surviving with autoimmune diseases. Suffering from chronic daily pain, infections, and extreme fatigue, her outlook was one of frustration and hopelessness. As her life journey down the autoimmune highway took twists and turns, she learned to read the signs and listen to her body, mind, and spirit. She continues on the journey but has replaced pain with vitality, infections with health, and extreme fatigue with immense energy.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.