Disability Biography

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.” No Barriers is Erik’s response to that challenge.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

In 2021, Gabrielle Drolet developed a condition that made her unable to use her hands. It only worsened over time, and as a writer and artist, she had to learn new ways of creating and expressing herself. The experience completely changed her life and her outlook. Look Ma, No Hands explores both the difficulty and the humour of developing chronic and life-altering pain in her twenties. Each chapter looks at a different aspect of her life touched by her disability: how she learned to write when she couldn’t type; how she learned to manage the most mundane daily tasks.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

Sara invites us to join her on a far more personal journey, this time, as she tests her own beliefs in the alternative health-care practices she’s learnt of over recent years.

Quadriplegics simply do not walk again - yet millions watched as Chris Norton defied incredible odds and took step by impossible step across his graduation stage. With his fiancée, Emily, by his side, those unbelievable steps became the start of an extraordinary journey for them both. Told from both of their unique perspectives, this moving story invites you to find, as Chris and Emily have, that God can transform our lowest points into life's greatest gifts.

The eye-opening essays in Disability Visibility, all written by disabled people, offer keen insight into the complex and rich disability experience, examining life's ableism and inequality, its challenges and losses, and celebrating its wisdom, passion, and joy. The accounts in this collection, adapted for audio, ask listeners to think about disabled people not as individuals who need to be “fixed", but as members of a community with its own history, culture, and movements. They offer diverse perspectives that speak to past, present, and future generations.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Discover the untold story behind one of Kathleen Norris's deeply personal relationships in Rebecca Sue. Best known for her insightful and poignant reflections on faith and life, Norris steps into uncharted territory by sharing an intimate memoir exploring the life of her younger sister Becky. Born with perinatal hypoxia, Becky's life was shaped by physical and mental disabilities, yet her spirit and resilience illuminate the hidden power of faith, family, and love.

Jeff Bauman woke up on Tuesday, April 16th, 2013, and he had no legs. Just 30 hours prior, Jeff was surrounded by revelry at the finish line of the 2013 Boston Marathon. The first bomb went off at his feet as he awaited his girlfriend's finish. When Jeff awoke days later from hours of surgery, rather than take stock of his now completely altered life, Jeff ripped out his breathing tube and tried to speak. He couldn't. Jeff asked for a pad and paper and he wrote down seven words, "Saw the guy. Looked right at me," setting off one of the biggest manhunts in the country's history....

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Condamné par la maladie, Olivier Goy partage avec la journaliste Anne Fulda son inlassable combat pour mieux faire accepter le handicap et lever des fonds pour la recherche, et, surtout, appelle à regarder et aimer la vie pleinement?! Olivier a 46 ans quand on lui diagnostique la maladie de Charcot en 2020. Une maladie neurodégénérative qui se traduit par une paralysie progressive des muscles, mais laisse au malade ses pleines capacités intellectuelles. Espérance de vie?: 3 à 5 ans.