Disability Biography

Je m'appelle Mason Cyrille Elong Ewing. J'avais à peine 4 ans lorsque ma mère Marie est décédée, laissant derrière elle un petit bout d'homme. Au Cameroun, on m'appelait Toro, j'étais l'enfant au destin fragile. Puis je suis arrivé en France chez mon oncle et ma tante, pour une meilleure vie. On m'avait promis un fabuleux voyage, mais personne ne m'avait précisé que c'était pour l'enfer. J'étais devenu, Lucien, l'esclave.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

For many years, Jeffrey Demitrack searched for a meaningful and fulfilling relationship and, most of all, hoped that one day he would find a significant other who understood and unconditionally accepted his struggles with epilepsy. People have their insecurities, and relationships already are hard without throwing seizures into the mix, so his search has been a challenging one.

Cancer is cancer. Chemo is chemo. Right? That's what Mel thought before she received her diagnosis. But she quickly found out she had a lot to learn! From bird poo to shingles, Aunt Sally to burnt boob, and too many other "special joys" to mention: Who knew?

Johann König verliert als Kind durch einen Unfall fast vollständig seine Sehkraft. Wie kann man sich Kunst erschließen, wenn man sich auf seine Augen nicht verlassen kann? Was ist Sehen überhaupt, wenn die Welt um einen herum verschwimmt? In seinem Buch "Blinder Galerist" beschreibt Johann König, wie es ihm gelang, die Welt und die Kunst neu wahrzunehmen. "Die Bilder, die im Kopf entstehen, sind genauso wichtig wie die Bilder an der Wand".

Like many of us, James Lindsay is no stranger to stress and anxiety. But in his case, leaving those struggles untreated led to a full psychotic episode that hospitalized him for the better part of a month. With the help of medication and therapy, he has now overcome this dark period and is currently living a much happier life.

What do you do when your reality slips away? If you're Sky Yardley and Jane Dwinell, you accept each new challenge, reshape your life, and write. When Sky was diagnosed with "probable early stage Alzheimer's" at age 66, he was determined to live as fully as possible. He researched dementia, talked about dementia, connected with other people with the disease, and wrote about it.

An inspiring story of hope, strength and courage. After doctors said there was no hope for her newborn daughter, this mother refused to give up. Despite her daughter’s severe disabilities, Lucy went on to touch many lives with her presence and became her mother’s greatest teacher.

Kimberly Crowe was back for the second year in a row with a world-renowned event in honor of International Women’s Day. International Women’s Day (IWD) 2022 celebrates the tremendous efforts of women and girls around the world in shaping the future. This summit was an epic, fun, connecting, and delightful one-day virtual event in celebration of International Women’s Day, March 8, 2022. Our speakers are an amazing array of women bringing their brilliance to serve the greater good and contribute their zone of genius to the world.

I discover a "lost" aunt, separated from our family due to racism and discrimination against the disabled. She had a mental disability due to childhood meningitis. She was taken away in 1942 when all Japanese Americans were considered the enemy and imprisoned. She then became a "ward" of the state. We believed she had died but 70 years later found her alive and living a few miles from our family farm. How did she survive? Why was she kept hidden? How did both shame and resilience empower my family to forge forward in a land that did not want them?

From non-verbal to radio announcer, Good Morning, Blake: Growing Up Autistic and Being Okay lays bare—from cradle to adulthood—the myriad steps Blake has taken to find his voice and rightful place in society.

See? is an inspirational autobiography that describes how God's grace and the firm, loving support from family, friends, neighbors, an exceptional teacher, and caring supervisors guided the author through life's challenges. It also debunks common myths of blindness and discusses adaptive equipment used by the author on her journey.

Operated on as an infant, without anesthesia, Wendy P. Williams began life at war with her body. There were tubes everywhere, in and out of every opening, her mother reminded her on every anniversary of her surgery. Autobiography of a Sea Creature takes listeners on Williams’ difficult sensory journey toward healing, as she communes along the way with horseshoe crabs, dolphins, and other marine life that taught her the restorative power of beauty, resilience, and interdependence.

"Dandelion Roots Run Deep" is the true story of three generations of tenacious Midwestern women, one in Illinois and two in Michigan. Merry is the third generation, and her mother Merrill, fought for organic agriculture and Michigan's environment from 1967 - 2009. Merrill developed Alzheimer's before finishing her book, so Merry took her story to fruition.

Es ist Nicoles zweiunddreißigster Geburtstag, als sie unter der Dusche steht und sich auf die Feier mit ihren zwei kleinen Kindern und ihrem liebevollen Mann freut. Abrupt wird sie aus ihren Gedanken gerissen, als sie einen Knoten in ihrer Brust ertastet. Eine Welt bricht für sie zusammen. Später stellen die Ärzte die Diagnose, dass in Nicoles Körper nicht nur ein hochaggressiver Tumor wächst, sondern dass sie außerdem dieselbe genetische Vorbelastung wie Angelina Jolie hat. Selbst nach erfolgreicher Therapie, bleibt die Wahrscheinlichkeit einer erneuten Erkrankung enorm hoch.

In January 2016, life took an unexpected turn for Marilyn Miller Lowry when a stroke abruptly had her asking those questions—and more. In the years since, Lowry examined her life and made dramatic changes that opened up more possibilities than she ever imagined. Grateful to be able to author A Stroke of Magic, Lowry uses her background as a counselor to share candid observations of the trauma that comes with unexpected physical disability.

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

Inizia con un formicolio nella parte destra del corpo. E una strana stanchezza. L’equilibrio che si fa precario. Quando, mesi dopo i primi sintomi, arriva la diagnosi di sclerosi multipla, Marco ha trent’anni e una carriera da tenore appena avviata. Come gestire i concerti e le audizioni in giro per il mondo senza sapere come ci si sveglierà domani? Marco mantiene segreta la sua nuova, scomoda compagna di viaggio. Almeno fino al 2013, quando, nella prima apparizione di Sintomi di felicità, decide di rivelarla al mondo.

A Michele La Pusata, dodici anni fa, è stata diagnosticata la Sclerosi laterale amiotrofica, meglio conosciuta come SLA. Prima, la sua era una vita più che normale, tra figli, lavoro e piccole incombenze, poi non lo è stata più. Non si mette mai in conto di affrontare una malattia lenta e invalidante come questa e infatti nessuno è preparato.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.