Disability Memoir

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Close your eyes and get ready to see the world in a new and more positive way. As a child in Toronto, Molly Burke was diagnosed with retinitis pigmentosa and became completely sightless as a teenager. Now an award-winning YouTube star and global influencer, Molly shares what it’s like to be a purple-haired, pink-obsessed fashion and makeup lover in a seeing world. She speaks with authenticity and candor about how she tackles the preconceived notions we have around blindness; Molly has made it her mission to make us see her - and ourselves- in a wholly empowering way.

When Molly Burke was four years old, she was diagnosed with retinitis pigmentosa, a rare degenerative eye disease that leads to eventual blindness, forcing her to see the world through new eyes—literally. Growing up disabled didn’t stop her from playing sports, becoming a rock-climbing instructor, or winning a beauty pageant, but other people’s narrow perceptions of her held her back. Years of relentless bullying, toxic work environments, a rodent-infested apartment, and life’s lowest moments were juxtaposed with red carpets, first-class flights, and personal and professional achievements.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

Former high school teacher and New York-based comedian Mimi Hayes is a brain injury survivor. She wrote her first humorous memoir while recovering from a traumatic head injury at the age of 22. Her honest take on trauma and love followed her to the stage as a stand-up comedian, where she has performed on stages such as Denver Comedy Works, Broadway Comedy Club, Stand Up NY, Dangerfield's, and The Upright Citizen's Brigade.

As Harry Potter's stunt double, David Holmes's amazing gymnastic skills saw him earn onscreen immortality. He was the first-ever person to play Quidditch on a broomstick; he dodged dragon's fire and dove deep into the Great Lake, without any gillyweed to protect him. Life on set was an adventure. He and Daniel Radcliffe became like brothers, and the cast and crew a second family. Then tragedy struck. During the making of Deathly Hallows Part 1 a stunt went badly wrong and David's spinal cord snapped. He was only 25 and would never walk again.

The first story Selma Blair Beitner ever heard about herself is that she was a mean, mean baby. With her mouth pulled in a perpetual snarl and a head so furry it had to be rubbed to make way for her forehead, Selma spent years living up to her terrible reputation: biting her sisters, lying spontaneously, getting drunk from Passover wine at the age of seven, and behaving dramatically so that she would be the center of attention. In a memoir that is as wildly funny as it is emotionally shattering, Blair tells the captivating story of growing up and finding her truth.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

“At the beginning I was only a little mass of possibilities. It was my teacher who unfolded and developed them.” The Story of My Life, Helen Keller’s autobiography, is the story of that unfolding. It is the story of how, with Anne Sullivan as her guide, Keller developed from “a mass of possibilities” to become one of the most beloved and admired women in American history. With intelligence, humor and wisdom, Keller describes her passage, “from darkness into light, from isolation to friendship, companionship, knowledge, love.”

When Roger Rasmussen was diagnosed with prostate cancer in 2019, he did what most patients do: listened carefully, weighed his options, and tried to make peace with the life-altering decisions ahead. Then he heard about Joe Tippens' story, which led him down a rabbit hole of research into something unexpected—a compound called fenbendazole with curious case reports and a growing collection of personal accounts.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

As a senior non-commissioned officer of Delta Force, the most elite and secretive special operations unit in the US military, Command Sergeant Major Tom Satterly fought some of this country's most fearsome enemies. Tom is a legend even among other Tier One special operators. Yet the enemy that cost him three marriages, and ruined his health physically and psychologically, existed in his brain. Told through Satterly's firsthand experiences, it also weaves in the reasons for his career-long battle against the most insidious enemy of all: post-traumatic stress.

How to Tell When We Will Die expands upon Hedva's paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal―from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

Twenty-three-year-old Ardra Shephard is sleeping with the wrong guy, living in a crappy apartment, and spending money she doesn't have on designer shoes, boozy brunches, and weekends in NYC. Making mistakes while you figure stuff out is what your twenties are all about. Then a doctor tells Ardra she has MS, and those two letters split her life into a Before and After.

This inspiring autobiography by Helen Keller is an account of her life from her family history up to her last years of college, supplemented by her personal letters from age 7 to 21. This edition includes letters and reports contributed by her teacher, Anne Sullivan, and the editor, John Albert Macy.