Disability Memoir

For Magda Newman, normal was a goal—she wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments of childhood that are often taken for granted. But Nathaniel's severe Treacher Collins syndrome—a craniofacial condition—meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly?

Sandra Allen did not know their uncle Bob very well. As a child, Sandy had been told Bob was “crazy”, that he had spent time in mental hospitals while growing up in Berkeley in the '60s and '70s. But Bob had lived a hermetic life in a remote part of California for longer than Sandy had been alive, and what little Sandy knew of him came from rare family reunions or odd, infrequent phone calls. Then in 2009, Bob mailed Sandy his autobiography.

This book chronicles the journey of Eritrean-born Joseph Woldu. As a child refugee, he found himself having to adapt to changes of place, language, and customs; then as a man forced to relearn much of the same after involvement in a disastrous accident two days before the 9/11 terrorist attacks. What makes Joseph's story so incredible is not that he survived change and tragedy, but how he continually found the strength to improve himself and his circumstances. His story reflects the importance good relationships play in our lives.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

This is a very real and bloody look at the journey I made from 19 to 29. I will walk you through the icy halls of drug addiction and dealing, college in Santa Barbara (specifically Isla Vista), depression, suicide, and overdoses. The second part of the book I could only write just recently, as I was, by the Grace of God, able to live the life I knew I always should. Please come with me through the very real and honest look at what it was like to be a young man in the 2010s and how through a million close calls, I finally found life.

The Magic Circle tells the story of what happens when Charmaine Chan's sister Elaine is diagnosed with a rare and aggressive cancer. As the illness progresses, family members living on different continents gather together during Elaine's last days. Striving to distract Elaine from the worst effects of the cancer, Charmaine takes to the pen: conjuring up the vanished world of their childhood in Singapore, and discovering a way to keep her promise to Elaine's six-year-old daughter.

Ada d’Adamo est danseuse. Elle a passé sa vie à rechercher la grâce, la perfection du geste. Lorsqu’elle met au monde Daria, rien ne l’avait préparée à devenir la mère d’une enfant lourdement handicapée, qui jamais ne pourra voir ni marcher. Elle commence alors à écrire et penser cet amour hors du commun qui la lie à Daria, où tout est sans cesse à inventer. Mais une dizaine d’années plus tard, Ada découvre qu’elle-même est malade.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

When fourth grader Alex Schwartz first met his cello, his eyes lit up with wonder, and a smile appeared on his face as bright as the potential his new cello teacher saw within him. The cello positively impacted all aspects of his development, including focus, fine motor, and gross motor skills.

Discover the power of perseverance in Simply Revland: How to Succeed in Life Despite Yourself—the compelling autobiography by Steven Mark Revland, narrated by Dan Levy and published by Panda Publishing Agency.

I never planned to write about my life with cerebral palsy (CP), but after years of absurd, frustrating, and hilarious experiences, I had to share them. This book is part memoir, part guide to navigating an able-bodied world when your body has its own agenda. From my mom almost being mistaken for a prostitute to a first date disaster in a movie theater, my life is full of bizarre encounters. Doctors talk over me, cops have been afraid of me, and strangers treat me like a sideshow.

Defiant chronicles the remarkable life of Janine Shepherd, an elite ski racer whose bid to represent Australia in the Olympics was cut short by a tragic accident. She recalls the 10 days she hovered between life and death, faced with the difficult choice to let go or return to a body that would never be whole again. Defiant offers hope and encouragement for anyone facing a life challenge, sharing the author's hard-won wisdom and priceless advice for navigating one's way from loss to healing.

I know this sounds a bit cliche, but life truly is a journey. It evidences as a unique sojourn for every individual person. This is the story of a child born seventy years ago. It is a story of triumph and setbacks, of joy and sorrow, of weakness and strength. But most of all, it is a story of courage. Brian J. Woznicki was born with cerebral palsy. He was dealt a very difficult hand in life.

In "You're Not Doing It Right," Ellen Patnaude bravely opens the door to the haunting reality of Lewy body dementia (LBD) and unravels its profound impact on families. One of the most common types of dementia after Alzheimer's disease, LBD is marked by fluctuations in cognition, hallucinations, and motor symptoms. The journey begins with subtle warnings of small changes in her mother's behavior that worry Patnaude's father, but go unnoticed by the author and her sibling.

Stroke of Love is the life story of a young stroke survivor from Texas named Hether Flanigan. It is a story of resilience, determination, strength, and love. A story about the human spirit, the will to live life to the fullest, the power of the human mind, and the love that surrounds us.

Aos 22 anos, um acontecimento inesperado tornou Andrea Schwarz em uma pessoa com deficiência, desafiando seus sonhos e projetos para o futuro. Enfrentando as barreiras impostas pela sociedade, a autora transformou seus desafios em asas. Com coragem, disciplina e uma pitada de rebeldia, ela enfrentou as dificuldades e demonstrou que é possível construir uma vida admirável e alcançar realizações significativas.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

Embark on a powerful and inspirational journey with Dawn Green as she battles against the odds in a 35-year-long quest to uncover the truth behind her mysterious and life-threatening health issues. This gripping memoir takes listeners through the highs and lows of an extraordinary life marked by persistence, resilience, and unwavering hope. The book opens with the author's early years, when she first realized that her health was beginning to decline. In succession, a series of perplexing symptoms began to plague her.

When her son was diagnosed with autism at the age of three, Irma Velasquez was devastated. It was the pre-internet era of the early 1990s, and both information and experts were hard to find. Desperate for answers, she sought out therapists and educational programs designed to teach Aaron how to become successful in school and in life. But those early years ended up teaching Irma more than they taught Aaron. Irma realized her desire to "fix" her son had been a masquerade to fulfill her own needs, and she began to love him just as he was: perfect.

L'inizio di questa storia è un incrocio nel bel mezzo di Tripoli, più che un incrocio, un'auto con un parabrezza rotto ferma a un incrocio dopo un incidente. A bordo della macchina un uomo e una donna, un padre e una madre, prima erano in tre, solo che la figlia poco più che neonata è stata sbalzata fuori dall'abitacolo e ha impattato contro un albero. Comincia così il racconto della vita di Nagla Augelli, bambina tunisina abbandonata dalla famiglia in un orfanotrofio della sua città, dopo che un incidente di auto l'ha resa paraplegica.