Disability Memoir

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

The spoiler is that Platinum, the shiny precious metal we may associate with glamour and wealth, was an ingredient in one of the chemo compounds. In this context, it functioned as a poison, carrying out the bizarre miracle of chemotherapy where death and life meet. Tracing through the paradoxical tensions of treatment, healing from treatment, succumbing to medicine and claiming autonomy, Hannah Kate guides us through essential components of the journey. There are material resources that will support you—yet much of what is needed requires connecting with the fundamental elements of life.

Monday, March 11, 2024, was remarkably uneventful—indeed, frankly dull—until around 5 p.m. that evening when Carl Davies collapsed in a heap. It was a day that would change his life forever. Stroke Me! Recounts the story of his recovery from a near-catastrophic brain haemorrhage. The author details, in often graphic detail, every step of his journey, from the stroke itself to the pain of physical and occupational therapy. He leaves no stone unturned as he describes the impact his illness has had on him and his family. Stroke Me!

A collision with a moose on a dark highway left Susan Mockler with an incomplete spinal injury, suddenly compromising her ability to walk and to care for herself. She spent months in a rehabilitation facility learning how to adjust to her new reality, and though her body partially recovered, every aspect of her life changed.

In Parkinson's & Recreation 2, Dennis shares ways in which he and his wife are traversing the progression of PD and is first and foremost a written legacy he is attempting to leave for his family. As a part of this attempt, Dennis has gone on a journey of uncovering his family roots. What would you feel if you discovered Viking kings in your lineage? What would you feel if you uncovered the mystery of how the Jernigan line was woven throughout the fabric of English nobility? What would such revelations mean for you and your family?

This is my inspirational true story of childhood sexual abuse that I endured. The abuse was a secret, even to me, due to the fact that all the painful images were locked up in my subconscious for close to 37 years.

Before a surfing accident caused 33-year-old Devon Raney to lose all but 15 percent of his vision, he had already lived an extraordinary life. Time and again, he'd gone against the grain to maximize time for his passions - surfing, skateboarding, and snowboarding - bringing him into the direct path of colorful characters, unexpected adventures, and even the occasional brush with death. Through it all, Devon's commitment to outdoor adventure never wavered.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

There Are No Answers Here, Only Questions is the true story of two life-altering events and the personal transformation that resulted from their unlikely collision. It's the story of an owner preparing to sell his business and retire just as he is diagnosed with cancer.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

What if the barriers we face aren’t walls but bridges waiting to be built? In Unstoppable: The Ric Nelson Story, disability rights advocate Ric Nelson invites listeners into his extraordinary journey of resilience, advocacy, and empowerment. Born with cerebral palsy, Ric learned early that the world wasn’t designed for someone like him. But instead of retreating, he chose to rewrite the narrative—not just for himself, but for countless others navigating similar challenges.

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

According to the National Eye Institute by 2020 it is estimated that 5.5 million people of all ages will be blind or have low vision. Low vision is impairment that cannot be corrected by standard eyeglasses, contact lenses, medication, or surgery. That is one out of 28 and that is shocking. The purpose of this book is to let listeners know that loss of eyesight is not a death sentence. Twelve people have shared their stories detailing how they met the enemy in their own lives and how they cope on a day-to-day basis.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Andrew, 8, is autistic and bilingual. He speaks English and Chicken. With words limited by autism, Andrew lives in a fantastic world where chickens talk and superheroes come alive. But when he tells his pet chicken Frightful that his body is trying to kill him, it launches Andrew's family and an entire medical community into a decade-long quest for answers. This beautiful, fierce, and refreshingly honest memoir takes listeners on a mother's journey through the complex landscape of modern medicine to discover the healing bond between a boy and Frightful, the chicken who saves them all.