Disability Memoir

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

For years, Emma Carey was a regular young adult who would wake up and go about their day on autopilot, someone who would look at a sunset and feel unaffected, someone who was living, but not really alive. That is, until something happened that enabled her to really see life for the gift it is. Emma was in a skydiving accident that made her a paraplegic. This book is not just about Emma's fall from the sky and how she learned to walk without ever regaining feeling in her legs but also about the beliefs and ideas that helped her survive.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

After you're done listening to Glenna's story, you cannot help but admit she's led a hard life. She's gone through more than her fair share of trouble, in different ways. Some of it she invited; some she did not. To say that she had a troubled childhood would be an understatement. Cutting a long story short, she spent a considerable time working as a prostitute. She was a drug addict. Somewhere along the way, she caught AIDS and Hepatitis C.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

Dive headfirst into the urban symphony of "Smelling the Taste of Sound", a riveting memoir of a newly diagnosed, neurodivergent trainee lawyer. Her sensory issues are compounded by the sirens that punctuate the daily grind of a tough, inner-city law firm. Amidst encounters with eccentric characters and surreal personalities, our protagonist navigates the chaos and unorthodox office dynamics with comical observations and resilience.

After a normal, healthy, full-term pregnancy, Margaret Moore's parents Anne and Terrence were shocked as a prolapsed umbilical cord left their daughter unable to breathe on her own. Margaret, nicknamed Meg, was not expected to live through the night and began to breathe on her own by the next day—a phenomenon that medical personnel deemed a miraculous recovery. Meg came home with a physical disability Cerebral Palsy and permanent dependence on others for help with feeding, dressing, hygiene, and transfers to and from her wheelchair and walker.

Christopher Reeve has mastered the art of turning the impossible into the inevitable. In Nothing Is Impossible, Reeve shows that we are all capable of overcoming seemingly insurmountable hardships. Published on the eve of both his fiftieth birthday and the seventh anniversary of his spinal cord injury, Nothing Is Impossible reminds us that life is not to be taken for granted but to be lived fully with zeal, curiosity, and gratitude.

An inspiring and unforgettable memoir that provides hope to others who are experiencing depression, mania, or psychosis, RESILIENT is a deeply personal account about life with mental illness, hearing loss and resiliency. Liz's journey provides encouragement for patients, families, friends, and healthcare workers by showing that recovery is possible.

This is the very personal and frank account of A.W.J. Pilgrim’s battle with schizophrenia, in the context of his whole life story. He is a Londoner, dad and talented prolific artist painter and author. Learn how his illness progressed, how he struggled, his personal thoughts about it, detailed accounts of being sectioned, effects of medications, psychosis, hallucinations & delusions. The story not all sad, he has had some good luck too, and still has dreams. Learn how he has put his schizophrenia into remission.

Carla Sosenko was born with Klippel-Trenaunay syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back, a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

Sara invites us to join her on a far more personal journey, this time, as she tests her own beliefs in the alternative health-care practices she’s learnt of over recent years.

I grew up believing that perfection was the only way to gain approval and feel safe. Every item in my room had to be aligned just right, every deadline met without fail, and every mistake felt like a personal failure. It wasn’t until adulthood that I realized these behaviors went far beyond simple neatness or discipline. They were signs of Obsessive-Compulsive Personality Disorder (OCPD)—an unyielding drive toward order and control that had slowly taken over my life.

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.