Disability Memoir

Ausgezeichnet mit dem Leipziger Lesekompass 2023. Superheldin mit Hörgerät. ÄTT MÄN ONA UBA MÄN? Das ist alles was Cece versteht, wenn sich die Nachbarjungen über Superhelden unterhalten. Schon als kleines Kind hat Cece ihr Gehör verloren. Seitdem trägt sie ein Hörgerät und hat gelernt, Worte und Sätze von den Lippen abzusehen. Aber Cece hasst das Hörgerät. Es ist riesig und Cece ist sich sicher, dass jeder sie deswegen anstarrt. Bis sie herausfindet, was das Phonic Ear noch alles kann. Denn als "El Taubinio" ist Cece damit selbst schon fast eine Superheldin.

"La situazione di Cesare è molto grave. È giusto che te lo dica. Fate tutto quello che potete con lui, non rimandate." La storia di Valentina, Federico, Ale, Terry e Cece si è interrotta qui, tra le mura di un ospedale e la paura di non avere più tempo. Loro, però, si erano Fatti una promessa: anche nei momenti più bui, tra le ombre, avrebbero cercato la felicità. Così, tra feste di compleanno e gite in canoa, la loro storia continua, e con l’estate ormai alle porte il loro viaggio diventa molto di più.

Ellen Keane spent most of her teens uncomfortable with her limb difference and battling to hide her insecurities. It was only when she embraced her difference that she found her superpower. She started to believe in her unique abilities and gradually find the success that she had never dreamed possible. Perfectly Imperfect is for anyone struggling to accept who they are. With anecdotes from her own life, practical advice and good-natured humour, Keane challenges you to let go of waiting until everything is perfect and instead embrace your imperfections and accept who you are, flaws and all.

Born with severe brain defects, Suzy was sentenced to a life of “nevers.” With the unwavering support of her mother, Jane, and extended family, Suzy’s miraculous journey has given many experts reason to question the medical textbooks that have been written. From predictions that she would never walk, talk, or function in society, Suzy overcame all these obstacles with determination and perseverance—not even allowing final-stage renal failure at the age of twenty-four to deter her.

Es ist Nicoles zweiunddreißigster Geburtstag, als sie unter der Dusche steht und sich auf die Feier mit ihren zwei kleinen Kindern und ihrem liebevollen Mann freut. Abrupt wird sie aus ihren Gedanken gerissen, als sie einen Knoten in ihrer Brust ertastet. Eine Welt bricht für sie zusammen. Später stellen die Ärzte die Diagnose, dass in Nicoles Körper nicht nur ein hochaggressiver Tumor wächst, sondern dass sie außerdem dieselbe genetische Vorbelastung wie Angelina Jolie hat. Selbst nach erfolgreicher Therapie, bleibt die Wahrscheinlichkeit einer erneuten Erkrankung enorm hoch.

The S Word is the raw and compelling true story of a girl coming of age raised by a mother with a mental illness, and who nearly suffocates in the silence she was taught to value above all else - until she finally finds the strength to break free of the secrets binding her and save herself. The S Word is a book for anyone who may be keeping secrets...for children too little to know they warrant a voice...for teenagers too confused to think they have a choice...for adults too overwhelmed to do what’s right.

“Honey, you’ve been very ill and they’ve had to amputate…” His voice cracked. I searched his face, looking for some kind of clue to tell me why I sensed so much pain from him and in me. “…Your hands and feet.” Cyndi tried to grasp the new reality that flesh-eating disease had changed her life forever. Her recent memories of being a successful business manager and new mom seemed oceans away. It just couldn’t be true. I tried to speak, but no words came. Please God—let this be a dream.

Aos 22 anos, um acontecimento inesperado tornou Andrea Schwarz em uma pessoa com deficiência, desafiando seus sonhos e projetos para o futuro. Enfrentando as barreiras impostas pela sociedade, a autora transformou seus desafios em asas. Com coragem, disciplina e uma pitada de rebeldia, ela enfrentou as dificuldades e demonstrou que é possível construir uma vida admirável e alcançar realizações significativas.

They were part of the Baby Boomer vanguard, three boys thrown together in a 1950s Southern California subdivision looking like most other boys of that era. Under coonskin hats they ran free all summer long inventing their own games and endless challenges, fought imaginary Indians and pirates in a nearby orange grove, and on occasion battled a neighborhood bully or two. Their greatest enemy, however, was an infectious disease called polio – a paralyzing scourge that maimed and too-often killed little kids.

Operated on as an infant, without anesthesia, Wendy P. Williams began life at war with her body. There were tubes everywhere, in and out of every opening, her mother reminded her on every anniversary of her surgery. Autobiography of a Sea Creature takes listeners on Williams’ difficult sensory journey toward healing, as she communes along the way with horseshoe crabs, dolphins, and other marine life that taught her the restorative power of beauty, resilience, and interdependence.

No one would ever guess that simply hanging curtains could be life-changing! In the blink of an eye, Paula's world turned upside down as a broken leg morphed into life threatening events that pushed her reality into a darkness we only see in movies. Legless tells the story of Paula's fight to triumph over heartbreaking trauma while depression and suffering snapped at her desire to live. Unwilling to surrender for the sake of her family, she dug deep into the meaning of life at every setback and found herself changed, transformed and seeing herself through the eyes of a new normal.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

Raymond Antrobus was first diagnosed as deaf at the age of six. He discovered he had missing sounds—bird calls, whistles, kettles, alarms. Teachers thought he was slow and disruptive, some didn’t believe he was deaf at all. The Quiet Ear tells the story of Antrobus’s upbringing at the intersection of race and disability. Growing up in East London to an English mother and Jamaican father, educated in both mainstream and deaf schooling systems, Antrobus explores the shame of miscommunication, the joy of finding community, and shines a light on deaf education.

Do you want to live? That’s the question Scott Fedor was forced to confront after he suffered a catastrophic injury while diving into a lake. His life forever changed in seconds. Facing the darkest and most debilitating days that nearly cost him his life on several occasions, Scott was determined to rekindle his spirit, ultimately discovering that the boldest of pursuits come in all shapes and sizes. Head Strong is a gripping tale of determination, perseverance, incredible faith, and human triumph that proves we are stronger than we realize.

Theresa Marafito, daughter of Irish immigrant parents, was born in 1933 in New York City, blind in one eye with partial vision in the other. She was a precocious child who wanted to appear “normal” to her peers and family, regardless of her disability. Her game was to be independent, not dependent, and would rarely ask for help. At 19, she graduated magna cum laude with two master’s degrees. Theresa and her husband, Jerry, who was also visually impaired, would build a house on a shoestring budget and had two daughters; one who was also born visually impaired.

With aspirations of being a successful lawyer, Jonathan embarks on a path to make his dreams come true, but is ultimately, unable to do so due to his schizoaffective disorder. In this candid and unflinching memoir, Jonathan reveals his story in all its rawness: the ups, the downs, the wins, the losses, the highs and the darkest of lows.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

For 20 years, Lisa Murphy, Jeff Murphy, and a group of volunteers traveled the world with the Mobility Project, delivering mobility to the poorest people on the planet. They helped tens of thousands of disabled poor to gain mobility and hope. The disabled received wheelchairs, walkers, and crutches from the United States, items they never would have been able to afford. Like Simon of Cyrene, we helped people carry their cross of disability. From the hot tropical jungles of Costa Rica, Thailand, and São Tomé to the deserts of Afghanistan, the disabled poor got a new chance at life.

When a tragic accident crushes her dreams, can a young woman fight to thrive once again? As a teen growing up in the '80s, Jenny Smith loved life. But, when a spinal cord injury paralyzed her from the chest down, her days of gymnastics and playing music came to an agonizing end. Completely reliant on others for her most basic needs, privacy and independence became things of the past. Refusing to give up, Jenny struggled along the exhausting, painful, and endless road to living as a quadriplegic.