Disability Memoir

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.

As two siblings, we were walking toward the light. In our mind's eye, it shined brightly, that green light of hope, as multiple sclerosis greatly impacted our lives. We accepted help along the way but not as a sign of defeat. A disabled person is seen as a burden and unfortunately is treated as such. The world doesn't have the patience or understanding of the tremendous struggle one bears living in a world not meant for frailty. This has been a journey of many decades. MS can lead to other health challenges that are formidable in and of themselves, like JC virus or PML.

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children

Tara Sidhoo Fraser is thirty-one years old when a rare mutation in her brain causes a stroke. Awakening after surgery with no memory of her previous life, she attempts to piece it all back together through a haze of amnesia. Yet, as memories do begin to surface, they are seen through someone else's eyes—the person whose body she stole, whom she calls Ghost.

This is the biography of a young man with some neurological differences, written in the first person. Through his eyes, we see how he perceives his life and negotiates his reality. His world and his understandings of life may be different from the norm, but we learn to appreciate a special type of soul that should be acknowledged and celebrated as part of human diversity. This book demonstrates the love and nurturance of his mother and the dynamics of his relationship with her. We also enjoy hearing about the comfortable lifestyle that Marcelo has been given, including his worldwide travels.

From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America.

Mutter Anna Maria erlitt im Jahr 2013 eine schwere Gehirnblutung, einen Schlaganfall, welcher sie zu einem absoluten Pflegefall machte und ihren Charakter sehr wesentlich veränderte. Die Familie, Ehegatte Friedrich, genannt Fritz und Tochter Sabine (die Autorin), standen vor nie geglaubten Herausforderungen. Das Buch beschreibt sehr umfangreich die Facetten des geänderten Alltages, nimmt dabei Leser*innen sehr ehrlich auf eine „Achterbahnfahrt der Gefühle" mit.

After losing both legs from the pelvis down at the age of five, Spencer West tackled challenge after challenge, learning to navigate a world set against those with disabilities. In this deeply personal and transformative guide, he reveals how he stopped living by the expectations of others and instead embraced his true identity, passions, and purpose.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

Phyll Zone spent a lifetime feeling lost. Labeled “lazy,” “spacey,” and “careless,” he struggled in a world that refused to speak his language. The constant storm of ADHD and the silent sabotage of dyslexia weren't just academic challenges; they were emotional earthquakes that shattered his self-worth. Lost in Translation is more than a memoir—it’s a revelation. It’s the story of a late diagnosis that finally provided the map to a bewildering mind, transforming a lifetime of shame into a powerful new identity.

Up All Night not only grips listeners in unrelenting humor, but it offers a fresh voice embracing listeners with graphic injuries, tender recollections, big surprises, and love. Posing nuanced psychological questions while never losing its heart, Up All Night traces the challenges of living with undiagnosed Asperger's syndrome before the social disorder became known in 1992.

The life of Dr. Scott Hollier is not what you'd call typical. He is well-educated, has a good job, is a husband and father, is legally blind, loves computers and gadgets, goes to church, and enjoys travel, spending time with friends and following his favorite football team. For most people, the atypical part of this description will be "legally blind", but from Scott's perspective, it's his traitorous support of a football team outside his home state of Western Australia that makes him stand out from the crowd.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

This is a very real and bloody look at the journey I made from 19 to 29. I will walk you through the icy halls of drug addiction and dealing, college in Santa Barbara (specifically Isla Vista), depression, suicide, and overdoses. The second part of the book I could only write just recently, as I was, by the Grace of God, able to live the life I knew I always should. Please come with me through the very real and honest look at what it was like to be a young man in the 2010s and how through a million close calls, I finally found life.

Discover how a woman wheelchair user with cerebral palsy found purpose in librarianship and in ordained Christian ministry. Glean hints on how to live with purpose as a person with a physical disability. Gain clues on practical everyday living with a physical disability. Gather insights as friends and health professionals on how to relate to people with a physical disability. Appreciate how Christian faith can inform and strengthen motivation in the experience of physical disability.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

This book chronicles the journey of Eritrean-born Joseph Woldu. As a child refugee, he found himself having to adapt to changes of place, language, and customs; then as a man forced to relearn much of the same after involvement in a disastrous accident two days before the 9/11 terrorist attacks. What makes Joseph's story so incredible is not that he survived change and tragedy, but how he continually found the strength to improve himself and his circumstances. His story reflects the importance good relationships play in our lives.

Speaking My Truth is about a young man named Abdulahi Hassan who is born with a physical disability called Cerebral Palsy and tries to live a normal life. Regardless of his daily struggles he faces physically and mentally he is slowly learning to speak his truth and taking control of his own narrative one step at a time with a single beautiful smile.

She's never taught a class in her life. But when the City of Chicago calls on blind writer Beth Finke to teach a memoir-writing class for older adults, she reluctantly agrees. What she learns about her students, their stories, and herself will move and inspire you. Written the way Beth hears life, you will come to know and love Minerva, Wanda, Hannelore, and the whole colorful cast of characters who build a community around Beth's classes. Generously sprinkled with excerpts in her students' own voices, Beth's book will convince you to get your own stories down on paper.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.