Disability Memoir

In this inspiring memoir, Emily Falcon chronicles her lifelong journey with a congenital cardiac condition. In 1982, at seven weeks old, she had a heart attack that destroyed 40 percent of the left side of her heart. This was her entry into a world of multiple cardiac procedures, surgeries, hospitalizations, and a later diagnosis of glaucoma. Balancing these serious conditions defined her life.

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

Born four weeks premature and weighing little more than five pounds, Scott A. McCreight had a rough start and uncertain future. He was placed for adoption, but the good news didn’t last long: shortly after, Scott was diagnosed with cerebral palsy. Developmental delays permeated his childhood, the odds for a “normal” life seemingly stacked against him.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

Robert was a young man struggling to make it on his own when in 1990, he suffered a violent and traumatic experience when someone put a bullet through his brain. Robert tells the amazing story of survival during a time when life shriveled to dark emptiness and his future seemed hopeless.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

Sabrina Greenlee was born to teenage parents in the shadow of South Carolina’s Clemson University, and her story unfolds against the backdrop of her challenging upbringing in a family that lacked the means—financial and emotional—to offer her and her two brothers the safety, comfort, and love every child deserves. When she was a teenager, her beloved younger brother, Dilly, died in a drunk driving accident. In her early twenties, Sabrina faced the tragic loss of her fiancé and one true love. A decade later, she was brutally and publicly assaulted, resulting in the loss of her vision.

Robert L. Metts was an adventurer and a disability activist that cared deeply about the lives of people with disabilities around the world. After receiving a BA in psychology from the University of California, Berkeley, Bob continued his education there to earn a PhD in economics with a focus on economic development. While in Kenya conducting research for his PhD dissertation, he had firsthand experience with the conditions disabled people faced in developing countries.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.

In 2012, combat engineer Curtis McGrath was serving in the Australian army in Afghanistan when, in the line of duty, he stepped on a mine. Seriously injured but still conscious and aware he'd bleed out and die within minutes, McGrath, as the unit's chief first-aid officer, directed his comrades to apply tourniquets and administer an IV and morphine. Then, as he was stretchered to a helicopter, fearing he would never see his family again, he joked that he planned to become a Paralympian.

Stoney McGurrin, in his debut book, brings us on the adventure of his lifetime. Having spent months in the hospital as a four-year-old, where he almost lost his arm, only to have it saved by a famous French surgeon Dr. Chance, he left Leitrim as a teenager on ship across the Atlantic to New York City. The stories are exciting, sad, happy, and true; from 1941 to the present, from pencil to paper.

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.

For 20 years, Lisa Murphy, Jeff Murphy, and a group of volunteers traveled the world with the Mobility Project, delivering mobility to the poorest people on the planet. They helped tens of thousands of disabled poor to gain mobility and hope. The disabled received wheelchairs, walkers, and crutches from the United States, items they never would have been able to afford. Like Simon of Cyrene, we helped people carry their cross of disability. From the hot tropical jungles of Costa Rica, Thailand, and São Tomé to the deserts of Afghanistan, the disabled poor got a new chance at life.

When a tragic accident crushes her dreams, can a young woman fight to thrive once again? As a teen growing up in the '80s, Jenny Smith loved life. But, when a spinal cord injury paralyzed her from the chest down, her days of gymnastics and playing music came to an agonizing end. Completely reliant on others for her most basic needs, privacy and independence became things of the past. Refusing to give up, Jenny struggled along the exhausting, painful, and endless road to living as a quadriplegic.

At 90 years old and blind, Lorraine decided there was never a better time to get started as a writer. Juggling career, marriage, motherhood, and staying a vibrant senior demands constant skill upgrading. Lorraine’s early childhood development expertise, for instance, was perfected during her 81 months of pregnancy. As a first generation of Russian immigrant parents, Lorraine’s daily walk with God is a testament to her belief and love-filled life. She says, “Hope is not a plan, but it is a promise that’s given when faith and belief become action.”

Frederick Moore spent his 1950s Minneapolis childhood obsessively teaching himself guitar and writing songs. In the 1960s, his bands Skogie and the Flaming Pachucos reached local stardom. After, they put everything they had into their cars and caravanned to Los Angeles. From a garage in suburban Arleta, they evolved Skogie into a new band called The Kats. In the 1980s, The Kats sold out every major club in Los Angeles.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

私たちは本当に「見て」いるのか?触れて、聴いて、初めてわかる、この社会のかたち。時に鋭く、そしてあたたかく。ユーモアに満ちた随想集。