Disability Politics

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

In 2017, President Obama, in his final Oval Office interview, was asked who gave him hope for the future of the country, and Jason Kander was the first name he mentioned. Suddenly, Jason was a national figure. As observers assumed he was preparing a run for the presidency, Jason announced a bid for mayor of Kansas City instead and was headed for a landslide victory. But after eleven years battling PTSD from his service in Afghanistan, Jason was seized by depression and suicidal thoughts. He dropped out of the mayor’s race and out of public life. And finally, he sought help.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the well-being of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver.

Historically, they have borne the labels "freaks" and "oddities"; they have been collected as pets, displayed as spectacles, and treated as comic relief. Now, for the first time, in this comprehensive volume, the lives of dwarfs are explored in all their fullness and humanity. Spanning the centuries from ancient Egypt to the present, this unique social history chronicles the various ways this population has been exploited, describes their strategies for coping, and notes the persistent influence of mythology upon perceptions of them by others.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

Who knows better about developing the talents of those with autism than Temple Grandin? This updated and expanded third edition of Developing Talents considers the continuing dismal employment statistics for individuals with autism. The authors take an in-depth look at entrepreneurship and many other options.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

Disability and Political Representation explores how disabled people experience the various stages and aspects of the representation process, drawing upon extensive empirical research and a variety of qualitative and quantitative data. It discusses why increasing the number of disabled politicians matters, not only as a matter of justice and equality but also to better represent the issues and interests of importance to disabled people.

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

Lachi is an award-winning musician and leader who awakens the world to this truth: Disability has long shaped our culture and is an identity worth brazenly celebrating. In this book, Lachi welcomes listeners into the vibrant world of Disability Culture, centering identity, innovation, and unapologetic pride.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

In The Price of Silence she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental health care, and juvenile detention that leads far too often to prison. In the end she asks one central question: if there's a poster child for cancer, why can't there be one for mental illness? The answer: the stigma.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

For more than 40 years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions.

A former Social Security Administration (SSA) attorney goes behind the scenes to show you why it’s so difficult to win a Social Security Disability case. Working as an attorney advisor for over 10 years, the author drafted and reviewed thousands of disability decisions. During this time, he learned why the system is stacked against the claimant throughout the process. After he left SSA, he wanted to make this knowledge available to everyone.