Disability Politics

A 16 ans, Jacques Sémelin apprend qu'il va devenir aveugle. Pendant des années, il garde ce secret pour lui et affronte seul l'angoisse et la progression de la cécité.

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.

More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

Conjoined twins Chang and Eng Bunker have fascinated the world since the 19th century. In her captivating book, Chang and Eng Reconnected, Cynthia Wu traces the "Original Siamese Twins" through the terrain of American culture, showing how their inseparability underscored tensions between individuality and collectivity in the American popular imagination.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

This book explores gender, disability, and literature in the Global South, concentrating on Nepal in particular. Religious and cultural values disable women’s autonomy in general, and create even greater disadvantages for women who are physically disabled. This study examines two Nepali women writers, Bishnu Kumari Waiwa and Jhamak Ghimire, who challenge stigmas of the disabled body by deconstructing the “ideology of ability” through their autobiographical narratives.

Kimberly Crowe was back for the second year in a row with a world-renowned event in honor of International Women’s Day. International Women’s Day (IWD) 2022 celebrates the tremendous efforts of women and girls around the world in shaping the future. This summit was an epic, fun, connecting, and delightful one-day virtual event in celebration of International Women’s Day, March 8, 2022. Our speakers are an amazing array of women bringing their brilliance to serve the greater good and contribute their zone of genius to the world.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

Developing a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human.

For over 30 years, The Silent Garden has offered parents of deaf children the support and unbiased information needed to fully realize their children’s potential. This completely revised third edition is a must-have resource that will help parents navigate the complex and unique challenges they face. Accessible, practical, and above all open-minded, The Silent Garden educates parents quickly and thoroughly about the many conflicting points of view on what is best for their deaf children.

Sight Unseen reveals the cultural and biological realities of race, gender, and sexual orientation from the perspective of the blind. Through 10 case studies and dozens of interviews, Ellyn Kaschak taps directly into the phenomenology of race, gender, and sexual orientation among individuals born blind, along with the everyday epistemology of vision. Kaschak's work reveals not only how the blind create systems of meaning out of cultural norms but also how cultural norms inform our conscious and unconscious interactions with others regardless of our physical ability to see. She exposes gender, race, and sexual orientation as unconscious and pre-verbal in the sighted, an aspect of implicit bias.

In the tiny Iowa farm town of Atalissa, dozens of men, all with intellectual disabilities and all from Texas, lived in an old schoolhouse. Before dawn each morning, they were bussed to a nearby processing plant, where they eviscerated turkeys in return for food, lodging, and $65 a month. They lived in near servitude for more than 30 years, enduring increasing neglect, exploitation, and physical and emotional abuse.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

In The Price of Silence she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental health care, and juvenile detention that leads far too often to prison. In the end she asks one central question: if there's a poster child for cancer, why can't there be one for mental illness? The answer: the stigma.

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children

Come, Let Me Guide You explores the intimate communication between author Susan Krieger and her guide dog Teela over the 10-year span of their working life together. This is a book about being led by a dog to new places in the world and new places in the self, a book about facing life's challenges outwardly and within, and about reading those clues - those deeply felt signals - that can help guide the way.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Do you have a special needs child or know someone who is? Room at the Table: Encouraging Stories from Special Needs Families is rooted in the 2 Samuel 9 account of King David, who extended kindness to Jonathon's disabled son, Mephibosheth, and granted him a seat at the king's table.

Helen Adams Keller was an American author, handicap rights champ, political activist, and speaker who lived from June 27, 1880 to June 1, 1968. She was born in West Tuscumbia, Alabama, and following a bout of health problem at the age of 19 months, she lost both her sight and hearing. Keller used home signals till she was seven years of age, when she met Anne Sullivan, her first instructor and long-lasting partner, who taught her language, and that includes reading and writing.