Disability Science

In The Price of Silence she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental health care, and juvenile detention that leads far too often to prison. In the end she asks one central question: if there's a poster child for cancer, why can't there be one for mental illness? The answer: the stigma.

David Paterson overcame severe disability and racial prejudice to become a state senator, lieutenant governor, and - unexpectedly - governor of New York. Paterson was the first and only blind governor - other than a man who held the title for 11 days in 1975 - and the fourth person of African descent to hold the office of governor in American history. Paterson may also be the only governor in history to have been arrested outside the governor's office prior to his service.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

In the beloved classic book The Way I See It, Dr. Temple Grandin gets to the real issues of autism — the ones parents, teachers, and individuals on the spectrum face every day. In this updated and expanded fifth edition, Temple offers helpful dos and don’ts, practical strategies, and try-it-now tips all based on her insider perspective and a great deal of research.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

In 2016, a United Nations report found the UK government culpable for ‘grave and systematic violations’ of disabled people’s rights. Since then, driven by the Tory government’s obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a ‘human catastrophe’.

Lachi is an award-winning musician and leader who awakens the world to this truth: Disability has long shaped our culture and is an identity worth brazenly celebrating. In this book, Lachi welcomes listeners into the vibrant world of Disability Culture, centering identity, innovation, and unapologetic pride.

Who knows better about developing the talents of those with autism than Temple Grandin? This updated and expanded third edition of Developing Talents considers the continuing dismal employment statistics for individuals with autism. The authors take an in-depth look at entrepreneurship and many other options.

Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find themselves, Poor Little Sick Girls explores the pressures faced—as well as the power of existing as an unacceptable woman in our current era of empowerment.

Historically, they have borne the labels "freaks" and "oddities"; they have been collected as pets, displayed as spectacles, and treated as comic relief. Now, for the first time, in this comprehensive volume, the lives of dwarfs are explored in all their fullness and humanity. Spanning the centuries from ancient Egypt to the present, this unique social history chronicles the various ways this population has been exploited, describes their strategies for coping, and notes the persistent influence of mythology upon perceptions of them by others.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

Disability and Political Representation explores how disabled people experience the various stages and aspects of the representation process, drawing upon extensive empirical research and a variety of qualitative and quantitative data. It discusses why increasing the number of disabled politicians matters, not only as a matter of justice and equality but also to better represent the issues and interests of importance to disabled people.

Ben Mattlin's wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an "inspiring" story of how a man born with spinal muscular atrophy

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.