Disability Science

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

In the beloved classic book The Way I See It, Dr. Temple Grandin gets to the real issues of autism — the ones parents, teachers, and individuals on the spectrum face every day. In this updated and expanded fifth edition, Temple offers helpful dos and don’ts, practical strategies, and try-it-now tips all based on her insider perspective and a great deal of research.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Historically, they have borne the labels "freaks" and "oddities"; they have been collected as pets, displayed as spectacles, and treated as comic relief. Now, for the first time, in this comprehensive volume, the lives of dwarfs are explored in all their fullness and humanity. Spanning the centuries from ancient Egypt to the present, this unique social history chronicles the various ways this population has been exploited, describes their strategies for coping, and notes the persistent influence of mythology upon perceptions of them by others.

Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find themselves, Poor Little Sick Girls explores the pressures faced—as well as the power of existing as an unacceptable woman in our current era of empowerment.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

While most people were preparing for the adventure of adult life, Chad E. Foster was watching the world he grew up with fade to black. But that didn’t stop him from becoming the first blind person to graduate from the Harvard Business School leadership program and climbing the corporate ladder as a successful finance/sales executive. With determination, ambition, and drive, Chad created what Oracle said would be impossible. He gave millions of people the ability to earn a living by becoming the first to create customer relationship software for the visually impaired.

Set four years after the events of Strings, Currents finds the Ables gang about to start their second year at Goodspeed University. Phillip is struggling more than ever with anxiety and PTSD, and he continues to feel tremendous guilt over the loss of a friend. It's haunting him. He's having vivid nightmares, passing out frequently, and starting to question his role in the world.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

In 2016, a United Nations report found the UK government culpable for ‘grave and systematic violations’ of disabled people’s rights. Since then, driven by the Tory government’s obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a ‘human catastrophe’.

Disability and Political Representation explores how disabled people experience the various stages and aspects of the representation process, drawing upon extensive empirical research and a variety of qualitative and quantitative data. It discusses why increasing the number of disabled politicians matters, not only as a matter of justice and equality but also to better represent the issues and interests of importance to disabled people.

Prize-winning journalist and the coauthor of smash New York Times best seller I Am Malala, Christina Lamb now tells the inspiring true story of another remarkable young hero: Nujeen Mustafa, a teenager born with cerebral palsy whose harrowing journey from war-ravaged Syria to Germany in a wheelchair is a breathtaking tale of fortitude, grit, and hope that lends a face to the greatest humanitarian issue of our time: the Syrian refugee crisis.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

For over 30 years, The Silent Garden has offered parents of deaf children the support and unbiased information needed to fully realize their children’s potential. This completely revised third edition is a must-have resource that will help parents navigate the complex and unique challenges they face. Accessible, practical, and above all open-minded, The Silent Garden educates parents quickly and thoroughly about the many conflicting points of view on what is best for their deaf children.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the well-being of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver.