Health Care Ethics

Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. Both the collective portrait of a so-called "remission society" of those who suffer from some type of illness or disability and a cogent analysis of their stories within a larger framework of narrative theory, Frank's book has reached a large and diverse following, including the ill, medical professionals, and scholars of literary theory. In this new edition, Frank adds a preface describing the personal and cultural times when the first edition was written.

Going against the conventional wisdom reinforced by the medical establishment and Big Pharma that more screening is the best preventative medicine, Dr. Gilbert Welch builds a compelling counterargument that what we need are fewer, not more, diagnoses. Documenting the excesses of American medical practice that labels far too many of us as sick, Welch examines the social, ethical, and economic ramifications of a health-care system that unnecessarily diagnoses and treats patients.

While quackery—loosely defined as the spread of false "knowledge," often accompanied by various versions of "snake oil"—is not a novel phenomenon, it has never posed as great a threat to public health as today. In Quack Quack, Dr. Joe Schwarcz focuses on the deluge of anecdotes, cherry-picked data, pseudoscientific nonsense, and seductive baseless health claims that undermine efforts to educate the public about evidence-based science. The wide scope of the topics drawn from past and present aims to cast a life preserver to people drowning in a sea of misinformation.

Still Not Safe is the story of the rise of the patient - safety movement - and how an "epidemic" of medical errors was derived from a reality that didn't support such a characterization. Physician Robert Wears and organizational theorist Kathleen Sutcliffe trace the origins of patient safety to the emergence of market trends that challenged the place of doctors in the larger medical ecosystem.

In this groundbreaking book, Anita Hannig brings us into the lives of ordinary Americans who go to extraordinary lengths to set the terms of their own death. Faced with a terminal diagnosis and unbearable suffering, they decide to seek medical assistance in dying—a legal option now available to one in five Americans. The Day I Die tackles one of the most urgent social issues of our time: how to restore dignity and meaning to the dying process in the age of high-tech medicine.

This new edition explores the ethical reasoning we can use to approach medical ethics, introducing the most important "tools" of ethical reasoning, and discussing how argument, thought experiments, and intuition can be combined in the consideration of medical ethics. Considering its practical application, Tony Hope and Michael Dunn explore how medical ethics supports health professionals through the growing use of ethics expertise in clinical settings.

The problem with pandemics is that people want to forget them. One year, a million Americans are killed by a deadly new virus. The next, everyone is back rooting for the Georgia Bulldogs. The impulse to move on from this particular kind of tragedy is more than a little odd.

In this book, Stephen G. Post offers new perspectives on the worth and dignity of people with Alzheimer's and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. With vignettes and narratives, he argues for a deeper dignity grounded in consciousness, emotional presence, creativity, interdependence, music, and a self that is not "gone" but "differently abled."

American taxpayers spend $30 billion annually funding biomedical research, but over half of these studies can't be replicated due to poor experimental design, improper methods, and sloppy statistics. Bad science doesn't just hold back medical progress, it can sign the equivalent of a death sentence for terminal patients. In Rigor Mortis, Richard Harris explores these urgent issues with vivid anecdotes, personal stories, and interviews with the top biomedical researchers. We need to fix our dysfunctional biomedical system - before it's too late.

As much of the world's population grows older, the quest for a "good death" has become a significant issue. For many, the right to die often means the right to die with dignity. The Inevitable moves beyond margins of the law to the people who are meticulously planning their final hours - far from medical offices, legislative chambers, hospital ethics committees, and polite conversation - and the people who help them, loved ones or clandestine groups on the Internet known as the "euthanasia underground".

Award-winning investigative journalist and contributing Wired editor Scott Carney leads listeners on a breathtaking journey through the macabre underworld of the global body bazaar, where organs, bones, and even live people are bought and sold on The Red Market. The Red Market sheds a blazing new light on the disturbing, billion-dollar business of trading in human body parts, bodies, and child trafficking, raising issues and exposing corruptions almost too bizarre and shocking to imagine.

David M. Craig traveled across the US to assess its health care access, delivery, and finance. He interviewed religious hospital administrators and interfaith activists, learning how they balance the values of economic efficiency and community accountability. He discovered that health care in the US is not a private good or a public good, but a shared social good. This book argues that as escalating health costs absorb more and more of family income and government budgets, we need to take stock of the full range of health care values.

In this explosive expose of the drug companies and how they are ripping us off, Marcia Angell, M.D., a doctor, medical journalist, and a former editor of the respected New England Journal of Medicine, reveals the many ways in which the pharmaceutical industry has moved away from its original purpose of finding and producing useful new drugs.

Where does one go without health insurance, when turned away by hospitals, clinics, and doctors? In The People’s Hospital, physician Ricardo Nuila’s stunning debut, we follow the lives of five uninsured Houstonians as their struggle for survival leads them to a hospital where insurance comes second to genuine care.

In The Rights of Mice, Lawrence Wright, the Pulitzer Prize-winning author of The Looming Tower and Going Clear, takes listeners inside the war between science and anti-vivisection raging across the city of Cambridge, Massachusetts, and its great educational institutions, Harvard and MIT. As animal rights activists attempt to push through city council an ordinance restricting the use of animals in laboratory testing, leaders in the science and medical communities brace for a fight.

States of Health identifies the practical relevance of federalism to people facing ethical decisions about health and health care, and it considers the theoretical justifications for permissible differences among states. It asks whether authority over important aspects of health is misaligned in the United States today, with some matters problematically left to the states while others are taken over by the federal government.

In this fascinating book, Dr. Dominic M. Etli takes readers on an illuminating journey through the ethical labyrinths of modern medicine, drawing unexpected connections to the ancient wisdom of the samurai. Blending vivid storytelling with philosophical insights, Dr. Etli reveals how timeless concepts like mindfulness, compassion, honor and justice from Zen, Bushido and the Hagakure provide invaluable guidance for today's ethical challenges in healthcare.

In The Doctor’s Future, Dr. Pietro Emanuele Garbelli tackles the challenges posed by the rapidly evolving healthcare landscape, driven by artificial intelligence, robotics, and the shifting roles of doctors. As healthcare professionals confront unprecedented demands, from technological advancements to changing patient expectations, the future may seem uncertain. The author’s Healthcare Convergence Framework provides clarity, actionable strategies, and profound insights for healthcare decision makers and doctors to survive and thrive in this new era where AI and robotics are essential.

Healthcare is one of America’s most dysfunctional and confusing industries, and most of the system seems designed to keep people sick. While we may know that racism impacts health outcomes, most of us don’t know exactly how or why—and we certainly don’t know what to do about it. Dr. Monica Wang is a leading expert in health equity research and Chair of the Narrative Office at the BU Center for Antiracist Research. Her childhood experience as a bussing student in Boston’s METCO program shaped her decision to pursue a career in health equity.

Breakthroughs in genetics present us with a promise and a predicament. The promise is that we will soon be able to treat and prevent a host of debilitating diseases. The predicament is that our newfound genetic knowledge may enable us to manipulate our nature - to enhance our genetic traits and those of our children. Although most people find at least some forms of genetic engineering disquieting, it is not easy to articulate why.