Health Care Ethics

Control is a book about what geneticist Adam Rutherford calls “a defining idea of the twentieth century.” Inspired by Darwin’s ideas about evolution, eugenics arose in Victorian England as a theory for improving the British population, and quickly spread to America. With disarming wit and scientific precision, Rutherford explains why eugenics still figures prominently in the twenty-first century, despite its genocidal past. And he confronts insidious recurring questions, revealing the intellectual bankruptcy of the idea, and the scientific impossibility of its realization.

Brimming with fascinating historical details and modern medical wonders, this important audiobook is a fascinating glimpse into the struggles and "eureka!" moments that people outside of the medical profession rarely see. Written with Dr. Mukherjee's signature eloquence and passionate prose, The Laws of Medicine is a critical book not just for those in the medical profession but for everyone who is moved to better understand how their health and well-being are being treated.

In Medical Bondage, Cooper Owens examines a wide range of scientific literature and less formal communications in which gynecologists created and disseminated medical fictions about their patients, such as their belief that black enslaved women could withstand pain better than white "ladies". Even as they were advancing medicine, these doctors were legitimizing, for decades to come, groundless theories related to whiteness and blackness, men and women, and the inferiority of other races or nationalities.

Miriam's doctor didn't believe she had breast cancer. She did. Sophie navigates being the only Black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers. For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar. Michele Lent Hirsch knew she couldn't be the only woman who's faced serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found was a surprisingly large population with important stories to tell.

Shocking cases of abusive medical research and the whistleblowers who spoke out against them, sometimes at the expense of their careers. The Occasional Human Sacrifice is an intellectual inquiry into the moral struggle that whistleblowers face and why it is not the kind of struggle that most people imagine.

Since its first edition in 1948, the US Conference of Catholic Bishops' Ethical and Religious Directives for Catholic Health Care Services (ERD) has guided Catholic institutions in the provision of health care. However, while the papacy of Pope Francis and the clerical sex-abuse scandal both profoundly impacted the Catholic Church, the latest edition of the ERD does not address or reflect these transformations. Now for the first time, Todd A. Salzman and Michael G. Lawler present an extended critical commentary on the 2018 ERD.

Two pharmacists sit in a Boston courtroom accused of murder. The weapon: the fungus Exserohilum rostratum. The death count: 100 and rising. Kill Shot is the story of their hubris and fraud, discovered by a team of medical detectives who raced against the clock to hunt the killers and the fungal meningitis they'd unleashed.

In Feminist, Queer, Crip, Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a predetermined limit.

A remarkable story of the scientists behind a long-forgotten and life-saving cure: the healing viruses that can conquer antibiotic resistant bacterial infections.

For women, the possibility of experiencing medical gaslighting—having a healthcare provider dismiss or ignore their concerns without considering appropriate testing or creating a treatment plan—has always been a very real and present danger, with consequences ranging from self-doubt and emotional stress to delayed diagnosis and death. And being a woman of color, transgender, or disabled only compounds the risk. In Medical Gaslighting, you’ll equip yourself with the tools you need to be fully heard at every step of the process.

In this groundbreaking book, Anita Hannig brings us into the lives of ordinary Americans who go to extraordinary lengths to set the terms of their own death. Faced with a terminal diagnosis and unbearable suffering, they decide to seek medical assistance in dying—a legal option now available to one in five Americans. The Day I Die tackles one of the most urgent social issues of our time: how to restore dignity and meaning to the dying process in the age of high-tech medicine.

Just months ago, millions of people were stunned by ChatGPT's amazing abilities–and its bizarre hallucinations. But that was 2022. GPT-4 is now here, with smarter, more accurate, and deeper technical knowledge. GPT-4 and its competitors and followers are on the verge of transforming medicine. But with lives on the line, you need to understand these technologies–stat.

In this explosive expose of the drug companies and how they are ripping us off, Marcia Angell, M.D., a doctor, medical journalist, and a former editor of the respected New England Journal of Medicine, reveals the many ways in which the pharmaceutical industry has moved away from its original purpose of finding and producing useful new drugs.

An incisive examination of bioethics and American healthcare, and their profound affects on American culture over the last 60 years, from two eminent scholars. An eye-opening look at the inevitable moral choices that come along with tremendous medical progress, Everybody Wants to Go to Heaven but Nobody Wants to Die is a primer for all Americans to talk more honestly about health care.

While quackery—loosely defined as the spread of false "knowledge," often accompanied by various versions of "snake oil"—is not a novel phenomenon, it has never posed as great a threat to public health as today. In Quack Quack, Dr. Joe Schwarcz focuses on the deluge of anecdotes, cherry-picked data, pseudoscientific nonsense, and seductive baseless health claims that undermine efforts to educate the public about evidence-based science. The wide scope of the topics drawn from past and present aims to cast a life preserver to people drowning in a sea of misinformation.

Despite modern medicine's infatuation with high-tech gadgetry, the single most powerful diagnostic tool is the doctor-patient conversation, which can uncover the lion's share of illnesses. However, what patients say and what doctors hear are often two vastly different things. Patients, anxious to convey their symptoms, feel an urgency to "make their case" to their doctors. Doctors, under pressure to be efficient, multitask while patients speak and often miss the key elements.

Healthcare is one of America’s most dysfunctional and confusing industries, and most of the system seems designed to keep people sick. While we may know that racism impacts health outcomes, most of us don’t know exactly how or why—and we certainly don’t know what to do about it. Dr. Monica Wang is a leading expert in health equity research and Chair of the Narrative Office at the BU Center for Antiracist Research. Her childhood experience as a bussing student in Boston’s METCO program shaped her decision to pursue a career in health equity.

An estimated 10 percent of Americans are implanted with medical devices - like pacemakers, artificial hips, cardiac stents, etc. The overwhelming majority of high-risk implanted devices have never undergone a single clinical trial. The FDA lets device manufacturers decide whether to report serious complications or deaths that may have been caused by their products. Here, award-winning journalist Jeanne Lenzer brings these horrifying statistics to life through the story of one working-class man who, after his "cure" nearly kills him, ends up in a battle for justice.

Breakthroughs in genetics present us with a promise and a predicament. The promise is that we will soon be able to treat and prevent a host of debilitating diseases. The predicament is that our newfound genetic knowledge may enable us to manipulate our nature - to enhance our genetic traits and those of our children. Although most people find at least some forms of genetic engineering disquieting, it is not easy to articulate why.

The natural limits of the human body make us vulnerable and therefore dependent, throughout our lives, on others. Yet American law and policy disregard these stubborn facts, with statutes and judicial decisions that presume people to be autonomous, defined by their capacity to choose. As legal scholar O. Carter Snead points out, this individualistic ideology captures important truths about human freedom, but it also means that we have no obligations to each other unless we actively, voluntarily embrace them.