Disability Politics

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

In the spring of 1974, as the last American troops were being pulled out of Vietnam, Ron Kovic and a small group of other severely injured veterans in a California VA hospital launched the American Veterans Movement. In a phenomenal feat of political organizing, Kovic corralled his fellow AVM members into staging a sit-in, and then a hunger strike, in the Los Angeles office of Senator Alan Cranston, demanding better treatment of injured and disabled veterans.

Prize-winning journalist and the coauthor of smash New York Times best seller I Am Malala, Christina Lamb now tells the inspiring true story of another remarkable young hero: Nujeen Mustafa, a teenager born with cerebral palsy whose harrowing journey from war-ravaged Syria to Germany in a wheelchair is a breathtaking tale of fortitude, grit, and hope that lends a face to the greatest humanitarian issue of our time: the Syrian refugee crisis.

Winston Churchill, Andy Warhol, Tom Cruise, Agatha Christie, and Pablo Picasso were all famous and successful in their chosen professions. And they were all dyslexic. But what is dyslexia? Are there different types of dyslexia? Is there a cure? This guide answers these and other questions, providing a concise explanation of the causes and symptoms of dyslexia, a learning disorder that inhibits the reading and writing ability of millions of children and adults worldwide.

In Trust the Dog, the Fidelco Guide Dog Foundation introduces listeners to a group of extraordinary people who, thanks to their guide dogs, flourish in a world that assumes the ability to see. Among them are a brother and sister who lost their sight at a very young age and whose dogs essentially helped them grow up, a Serbian girl who fled civil war to find new hope in America, and a newly blind single father determined to keep his family together against all odds.

When her daughters are born deaf, Rosner is stunned. Then she discovers a hidden history of deafness in her family, going back generations to the Jewish enclaves of Eastern Europe. Traveling back in time, she imagines her silent relatives, who showed surprising creativity in dealing with a world that preferred to ignore them. Rosner shares her journey into the modern world of deafness, and the controversial decisions she and her husband have made about hearing aids, cochlear implants, and sign language.

We think of perception as a passive, mechanical process, as if our eyes are cameras and our ears microphones. But as neurobiologist Susan R. Barry argues, perception is a deeply personal act. Our environments, our relationships, and our actions shape and reshape our senses throughout our lives. This idea is no more apparent than in the cases of people who gain senses as adults. Barry tells the stories of Liam McCoy, practically blind from birth, and Zohra Damji, born deaf, in the decade following surgeries that restored their senses.

On July 4th, 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath, and no member of staff was on hand to stop him from drowning. An entirely preventable death. Sara Ryan presents a frank, sometimes funny and touching account of her son's early life and preventable death and the unfolding #JusticeforLB campaign.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

The first significant book on the history and impact of the ADA - the "eyes on the prize" moment for disability rights. The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known.

The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States.

Ben Mattlin's wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an "inspiring" story of how a man born with spinal muscular atrophy

In this heartfelt, thought-provoking and often hilarious book, Lottie Jackson reflects on her experiences of living with disability: from the pitfalls of going shopping on a mobility scooter, and the headache of defining oneself on a tick-box form, to a slapstick scuffle with the so-called 'easy-pull' tights aid, and the intense pleasure of finally swapping a hospital gown for a slinky dress. Lottie captivatingly expresses the raw vulnerabilities, injustices and untold joys of disability, as well as the bizarre everyday occurrences that able-bodied people usually don't experience.

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

Whistle is a heartfelt story blending family connections, personal growth, and the magical bond between a mother and her autistic daughter, Kennedy. Centered around the unique communication method of a whistle sound, the story narrates Kennedy’s experiences and how the whistle became a bridge to understanding her inner world. Through imaginative storytelling, the book captures Kennedy’s challenges and triumphs, the unwavering love of her family, and the lessons they learn about patience, acceptance, and connection.

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience - the positive and the negative - as a mother of a now 21-year-old son with severe autism. Lutz's human emotion drives through each moment and challenges commonly held ideas that define autism either as a disease or as neurodiversity.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

More the Same than Different: What I Wish People Knew About Respecting and Including People with Disabilities is a practical guide for anyone who may not have much experience interacting with people with disabilities and wants to feel more comfortable.

While finishing off her degree in Gerontology at Umass Boston, Yvonne Decelis started writing about her life in the hope of showing others with similar conditions that they are not alone in the trials they face. Yvonne goes over her upbringing and life prior to, during, and after diagnosis covering things like medications, “healthful living”, work, SSDI disability benefits, friendships, and relationships, etc. This was also written for people seeking information on how to interact with others who have "invisible illnesses" like MS, Fibro, Post-traumatic Stress injury, etc.