Disability Science

For over twenty years, Dara Baldwin has often been the only person of color in the room when significant disability policy decisions are made. Disenfranchisement of people of color and multi-marginalized communities within the disability rights community is not new and has left many inside the community feeling frustrated and unheard. In Demanding Solidarity, Baldwin candidly shares her journey to becoming a disability activist and policymaker in DC while critiquing the disability rights community.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

A former Social Security Administration (SSA) attorney goes behind the scenes to show you why it’s so difficult to win a Social Security Disability case. Working as an attorney advisor for over 10 years, the author drafted and reviewed thousands of disability decisions. During this time, he learned why the system is stacked against the claimant throughout the process. After he left SSA, he wanted to make this knowledge available to everyone.

Discover six stories sharing one impactful message in this fantasy collection.

This book explores the sex lives of women with disabilities in Nepal, showing that many women suffer more than men despite prevailing disability policies that emphasize nondiscrimination against people with disabilities. It also argues that far from general perceptions of women as asexual, women with disabilities are capable of leading highly creative and fulfilling sexual lives.

In the early 2010s, reports began to emerge of deaths linked to a government department. Suicide notes, coroners' reports, and research by disabled activists pointed to failings within the Department for Work and Pensions—the DWP—the government body responsible for the disability benefits system. As years passed, and austerity tightened its grip, the death toll mounted, and an even more disturbing picture emerged: bureaucracy, politicians, and the private sector had combined over thirty years to reckless, deadly effect.

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

Challenging the view that autism is something that needs to be ‘cured', Virginia Bovell testifies to the extraordinary care Danny has received for over 30 years and the everyday kindness and decency of the people – ‘the band of angels' – that surround him. She asks us to consider what makes a thriving individual versus an inadequate one; what it means to be ill versus what it means to not to conform; what roles society values and rewards; and how humans might flourish outside of failing political and economic systems.

Whistle is a heartfelt story blending family connections, personal growth, and the magical bond between a mother and her autistic daughter, Kennedy. Centered around the unique communication method of a whistle sound, the story narrates Kennedy’s experiences and how the whistle became a bridge to understanding her inner world. Through imaginative storytelling, the book captures Kennedy’s challenges and triumphs, the unwavering love of her family, and the lessons they learn about patience, acceptance, and connection.

Raymond Antrobus was first diagnosed as deaf at the age of six. He discovered he had missing sounds—bird calls, whistles, kettles, alarms. Teachers thought he was slow and disruptive, some didn’t believe he was deaf at all. The Quiet Ear tells the story of Antrobus’s upbringing at the intersection of race and disability. Growing up in East London to an English mother and Jamaican father, educated in both mainstream and deaf schooling systems, Antrobus explores the shame of miscommunication, the joy of finding community, and shines a light on deaf education.

A brilliantly honest, funny, and insightful account of a Buddhist's life, work, and family. For Satyadasa, the Buddhist path has been fulfilling and often joyous, but also full of doubts and obstacles.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

This book is user-friendly. Each chapter will be dedicated to one month. Within each chapter, there will be a subsection for each week. Subsequently, a passage for each day will give the listener a slice of what it means to live with a disability. By taking this cultural journey, the listener will be able to interact with the disabled community and other minority groups authentically.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

Oliver Sacks widmet sich in seinem neuen Werk dem Zusammenhang von visueller Wahrnehmung und Bewusstsein. Es gelingt ihm wieder, komplexe Dinge verständlich zu beschreiben. Das Außergewöhnliche: Sacks schildert, wie er selbst 2005 an einem bösartigen Tumor im Auge erkrankte. Er berichtet vom Leben mit dem Krebs und dem Verlust seiner visuellen Fähigkeiten. Doch er entdeckt auch "positive" Phänomene: milde Illusion, Halluzinationen, Veränderungen in der Wahrnehmung von Farben und Umrissen.

The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

A collision with a moose on a dark highway left Susan Mockler with an incomplete spinal injury, suddenly compromising her ability to walk and to care for herself. She spent months in a rehabilitation facility learning how to adjust to her new reality, and though her body partially recovered, every aspect of her life changed.

Raúl Krauthausen ist der bekannteste Aktivist für Inklusion und Barrierefreiheit – und die lauteste Stimme in Deutschland, wenn es um die Durchsetzung der Rechte von Menschen mit Behinderung geht. "Betrachten Sie Behinderung einfach als eine Eigenschaft wie die Haarfarbe" ist eine seiner zentralen Botschaften, und er kämpft auf allen Plattformen – analog und digital – für Sichtbarkeit und gegen Diskriminierung.