Épisodes

  • Jenn sits with Dunk MS founder Blake Arnet
    Apr 25 2024
    UCLA basketball player Blake Arnet lost his mom, Brigitte, to MS the summer before his junior year. This tragedy left Blake and his family inspired to help fight this disease in Brigitte’s honor. His background in basketball, sports coaching, and entrepreneurial talent helped him establish Dunk MS.
    Join Jenn and Blake as they discuss the profound impact of losing a parent to MS at such a young age, how grief turned to inspiration, and what exciting things everyone can expect at Dunk MS 2024 on Saturday, May 18.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    24 min
  • Jenn sits with Chief Advocacy Officer of NMSS Tim Coetzee
    Mar 28 2024
    Tim Coetzee, PhD, serves as the National MS Society’s Chief Advocacy, Services, and Science Officer. In this role, he leads the organization’s state and federal advocacy, educational, and support programs for people with MS and spearheads healthcare professional engagement and training and global research programs.
    Join them as they discuss the society’s many services and programs, its search for new innovators to aid in groundbreaking research, and Tim’s own commitment to finding a cure for MS.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    37 min
  • Jenn sits with neurologist and researcher Dr. Daniel Ontaneda
    Feb 29 2024
    Daniel Ontaneda, MD, PhD, FAAN, is a staff neurologist and Director of Research for the Mellen Center for Multiple Sclerosis, part of the Neurological Institute at Cleveland Clinic.
    Join them as they discuss the misdiagnosis of MS, gaps in current diagnostic criteria, and how artificial intelligence could be used to aid diagnostic accuracy.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    31 min
  • Jenn sits with founder of My Care Friends Todd Keitz
    Jan 25 2024
    In June 2018, Todd went from building start-ups in Silicon Valley to becoming the primary caregiver of and patient advocate for his mom and subsequently his dad. In looking for support and resources, Todd saw a significant unmet need.
    Join Jenn and Todd as they discuss the importance of creating resources solely for caregivers. They touch on what caregivers need, how they can get those needs met, and what inspired Todd to create My Care Friends — a free, comprehensive, and growing resource for caregivers, advocates, and family members.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    34 min
  • Jenn sits with actress Jamie-Lynn Sigler and neuroimmunologist Dr. Sharon Stoll
    Nov 27 2023
    Award-winning actress Jamie-Lynn Sigler talks openly about living with multiple sclerosis, including her diagnosis at age 20 and her decision to keep it a secret for 16 years. She also shares what surprised her most once her diagnosis became public.
    Neuroimmunologist, Dr. Sharon Stoll is both a practicing neurologist and scientist, creating the first intrathecal baclofen pump for severe MS-related spasticity. Dr. Stoll discusses symptom management and healthy living with MS and reveals something of her own strategies for the first time.
    Join them for a candid discussion about overcoming everyday challenges and celebrating oneself in the midst of living with a chronic illness.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    34 min
  • Jenn sits with MS advocate and author Julie Stamm
    Oct 26 2023
    After her MS diagnosis, Julie Stamm made it her mission to educate, support, and advocate for others battling chronic illnesses. After the birth of her son in 2016, Julie shifted her focus to supporting the children of parents with a chronic illness. Her children’s book entitled “Some Days: A Tale of Love, Ice Cream, and My Mom’s Chronic Illness” was created to normalize differing abilities and amplify how each of us can thrive in spite of our challenges.
    Join them as they discuss Julie’s inspiration to normalize disability for children, her follow-up to her children’s book, and how she lives well with MS.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    32 min
  • Jenn sits with neuroimmunologist and YouTube phenom Dr. Aaron Boster
    Sep 28 2023
    Dr. Boster is a board-certified neurologist specializing in MS at the Boster Center for MS in Columbus, Ohio. Dr. Boster made the decision to become an MS doctor at the age of 12, as he watched his uncle Mark suffer from the disease in an era before MS treatment was available.
    Join Jenn and Dr. Boster as they discuss the passion behind his practice, how he translates MS care through his YouTube and social media channels, and takeaways for living your best life with MS.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    47 min
  • Jenn sits with MS advocate and game-changer Michael Weiss
    Sep 1 2023
    Michael Weiss’s 2004 diagnosis of MS propelled him to become an active advocate in the MS community. From leadership roles and speaking engagements to fundraising and his current role as a member of the NARCRMS Patient Advisory Board; Michael is a powerful advocate for all with MS.
    Join them as they discuss his journey from diagnosis to advocate, how others can get involved in their communities, and the importance of advocating for one’s care.
    Join the conversation on our MS forums: www.multiplesclerosisnewstoday.com/forums/
    Follow us on social media:
    Instagram - www.instagram.com/msnewstoday/
    Facebook - www.facebook.com/multiplesclerosisnewstoday
    Twitter - www.twitter.com/msnewstoday
    For more news on Multiple Sclerosis visit:
    www.multiplesclerosisnewstoday.com/
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    40 min