Are you bendy, itchy, or dizzy all the time? You might be struggling to balance the trifecta of symptoms syndromes…

This research episode of The Neurodivergent Report features orthotics researcher Sam Silverman, along with the full @ndreportpod team! Together, we explore the interconnectedness of these often-overlooked chronic conditions and how they disproportionately affect neurodivergent people.

Curious what’s inside:

• Defining MCAS, POTS, and EDS in plain terms

• What the research says about comorbidity and prevalence (who even gets this?)

• The importance of coordinated and compassionate medical care teams

If it feels like your body just called it quits one day… YOU’RE NOT ALONE. This episode is for anyone who’s been dismissed, misdiagnosed, or just trying to get through the day in a body that won’t cooperate.

Let us know your thoughts @ndreportpod on the socials.

However you are able to engage, thanks for being here!

Love, Sarah 💜

📢 Connect with Us

Follow 👉 @ndreportpod

Apply to be a guest 🎤⁠⁠⁠ ⁠⁠⁠⁠ndreportpod.com

📚 Resources for more on this topic:

1. https://www.ehlers-danlos.com/

2. https://www.edsrf.org/

3. https://www.ehlers-danlos.com/heds-diagnostic-checklist/

4. https://www.ehlers-danlos.com/assessing-joint-hypermobility/

📚 Sam’s Research References:

1. Brittain et al. (2023). PT Interventions in G-HSD & hEDS. Disability & Rehabilitation. https://doi.org/10.1080/09638288.2023.2216028

2. Buckner (2014). EDS in acute rehab. J. Prosthetics & Orthotics.

3. Castori (2012). EDS-HT overview. ISRN Dermatology. https://doi.org/10.5402/2012/751768

4. Csecs et al. (2021). Hypermobility & dysautonomia comorbidity. Am J Med Genet C. https://doi.org/10.1002/ajmg.c.31957

5. Csecs & Iodice (2022). Neurodivergence & joint hypermobility. Front Psychiatry. https://doi.org/10.3389/fpsyt.2021.786916

6. Dupuy et al. (2017). Somatosensory orthoses & balance. Front Hum Neurosci. https://doi.org/10.3389/fnhum.2017.00283

7. Halverson et al. (2023). Misdiagnosis & diagnostic delay in hEDS. Genet Med Open. https://doi.org/10.1016/j.gimo.2023.100812

8. Higo et al. (2023). Fabric orthoses case report. Clin Case Rep. https://doi.org/10.1002/ccr3.6821

9. Hsieh et al. (2019). Arch support for kids w/ flatfoot. LWW Journals. Link

10. Jensen et al. (2020). Finger orthoses & function. Sage Journals. https://doi.org/10.1177/0309364620956866

11. Lusardi et al. (2012). Orthotics & Prosthetics in Rehab (3rd ed). Saunders.

12. Pandey et al. (2021). Movement disorders & MSK overlap. Mov Disord Clin Pract. https://doi.org/10.1002/mdc3.13390

13. Russek (2022). Cervical instability in hEDS. JOSPT. https://www.jospt.org/do/10.2519/jospt.blog.20230917

14. Snowdon & Dadla (2023). Allied health views on fabric orthoses. Int J Ther Rehabil. https://doi.org/10.12968/ijtr.2022.0148

🔑 Keywords:#Neurodivergent #HypermobileEDS #POTS #MCAS #ChronicIllness #Neurodivergence #InvisibleDisabilities #ADHD #Autism #MentalHealth #MedicalGaslighting #SupportSystems #Neurospicy #SelfAdvocacy #IntersectionalHealth #HormonalHealth #WomenInMedicine #NDreportpod #ResearchPodcast

What’s the connection between chronic pain, misdiagnosis, and neurodivergent health?

This week’s episode takes a deep dive into Hypermobile Ehlers-Danlos Syndrome (hEDS) and what it reveals about our healthcare system.

On this episode of The Neurodivergent Report, we explore the complex genetic overlap between the neurodivergence spectrum and chronic health conditions, particularly hypermobile Ehlers-Danlos Syndrome (hEDS).

From diagnosis delays to hormonal impacts and gender bias, we unpack what it's like to live in a body that’s often misunderstood.

Curious what’s inside:

• What hypermobility actually is and why it takes so long to diagnose

• The strong genetic link between hEDS, ADHD, and autism

• How gender hormones affect symptoms and care

Listen now for coping strategies, community support, and a vision for better systems of identification and care!

Let us know your thoughts @ndreportpod on the socials.

However you are able to engage, thanks for being here!

Love, Sarah 💜

📢 Connect with Us

Follow 👉 @ndreportpod

Apply to be a guest 🎤⁠⁠⁠ ⁠⁠⁠⁠ndreportpod.com

📚 Resources for more on this topic:

1. https://www.ehlers-danlos.com/

2. https://www.edsrf.org/

3. https://www.ehlers-danlos.com/heds-diagnostic-checklist/

4. https://www.ehlers-danlos.com/assessing-joint-hypermobility/

5. 2021 Prevalence study: https://www.tandfonline.com/doi/full/10.2147/NDT.S290494#d1e171

   6. Sam's Research References:

   1 Brittain, Mackenzie, et al. 2023. https://doi.org/10.1080/09638288.2023.2216028.

   2 Buckner, Martin. 2014. Ehlers-Danlos syndrome: the role of acute inpatient rehabilitation.

   3 Castori, Marco. 2012. https://doi.org/10.5402/2012/751768.

   4 Csecs, J., Dowell, N., et al. 2021. https://doi.org/10.1002/ ajmg.c.31957

   5 Csecs, Jenny, and Iodice, Valeria. 2022. https://doi.org/10.3389/fpsyt.2021.786916.

   6 Dupuy, Emma G., et al. 2017. https://doi.org/10.3389/fnhum.2017.00283.

   7 Halverson, Colin M.E., et al. 2023. https://doi.org/10.1016/j.gimo.2023.100812.

   8 Higo A, et al. 2023. doi:10.1002/ccr3.6821

   9 Hsieh, Ru-Lan, et al. 2019. LWW Journals. journals.lww.com/md-journal/Fulltext/2018/05180/Short_term_effects_of_customized_arch_support.12.aspx.

   10 Jensen, Anne, et al. 2020. journals.sagepub.com/doi/full/10.1177/0309364620956866.

   11 Lusardi, Michelle, et al. (2012). Orthotics and Prosthetics in Rehabilitation, 3rd Edition. Saunders Publishing.

   12 Pandey, Sanjay, et al. (2021). https://doi.org/10.1002/mdc3.13390

   13 Russek, Leslie. (2022) https://www.jospt.org/do/10.2519/jospt.blog.20230917

   14 Snowdon, Nicky, and Dadla, Sakina. (2023). https://doi.org/10.12968/ijtr.2022.0148

This week on The Neurodivergent Report, Sarah sits down with Dr. Nechama Sorscher - clinician, parent, and author of Your Neurodiverse Child - to talk about what it really means to raise and support neurodivergent kids in a world that often misunderstands them.

Curious what’s inside:

🧠 Why girls are so often overlooked in ADHD/autism screenings

💬 The difference between masking and code-switching

🪞 The impact of confidence and community for neurodivergent families

Let us know what stood out @ndreportpod on the socials.

However you’re able to engage, thank you for being here.

With love,

Sarah 💜

Looking for Dr. Sorscher?

https://www.drnechamasorscher.com/

https://www.bloomsbury.com/us/your-neurodiverse-child-9781538192139/

📢 Connect with Us

Follow 👉 @ndreportpod

Apply to be a guest 🎤⁠⁠ ⁠⁠ndreportpod.com

🧠 Keywords
neurodivergence, ADHD, autism, self-disclosure, diagnosis, education, parental involvement, confidence, resilience, support, masking, code-switching, parenting, community, self-esteem, mental health, gender differences, neurodiversity myths