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The Fighting Dementia Podcast

The Fighting Dementia Podcast

Auteur(s): The Fighting Dementia Podcast
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À propos de cet audio

Hosted by Fran & Tom who live with Dementia, we’re a podcast & community for those impacted in the early to middle stages – offering expert insights, honest stories & support. For those diagnosed, carers & families who need to feel seen, informed & less alone 🤝 **New Episodes Weekly On Mondays!**

We want to take viewers on a journey to see what behaviours can be adapted, changed or moulded to support good brain health, and fight the progression of Dementia 🥊

Copyright 2025 All rights reserved.
Épisodes
  • S2 E2- Holistic approach to dementia care with Rosie Whittington
    Sep 29 2025

    In this episode, co-hosts Fran, Tom and Leon Leon share an honest catch-up on their wellbeing journeys—touching on everything from cutting out sugar and walking more, to the power of behaviour change and building new habits that support a healthy brain.

    Later in the show, we welcome the inspiring Rosie Whittington, founder of the Me To You Dementia Day Centre, who shares her story as a mental health nurse turned innovative care leader, championing holistic, person-centred support for people living with dementia.

    You’ll hear practical tips, a deep dive into how environment and community shape our health, and real-life stories about adapting, persevering, and finding joy and purpose—no matter where you are on your dementia journey.

    Plus, we round off with Reminiscence Corner, reflecting on skill-building and the importance of social connection.

    Whether you’re living with dementia, caring for someone who is, or passionate about wellbeing, there’s something here for everyone.

    Mentioned in the podcast & links to further reading:

    • Hydration & diet for brain health — Practical, evidence‑based tips on cutting free sugar, choosing whole foods and keeping well hydrated to support cognition and lower dementia risk; useful guidance for older people and carers. https://www.nhs.uk/live-well/eat-well/eating-well-with-dementia/

    • Bredesen’s “reversal” approach — Overview of Dr Dale Bredesen’s metabolic protocol and case series: intriguing but preliminary and controversial, not yet established as mainstream treatment. https://pubmed.ncbi.nlm.nih.gov/25414524/

    • Problem Adaptation Therapy (PAT) — A short‑term, home‑based behavioural intervention for depression with cognitive impairment that reduces symptoms and improves function in trials. https://pubmed.ncbi.nlm.nih.gov/25821902/

    00:00 Water, Walking, and Dementia Care

    05:41 TV Presenter Faces Health Challenge

    11:11 Behavioral Science and Habit Building

    17:15 Implementation Intention Strategies

    23:12 Supporting Dementia Care at Home

    27:31 "Empowering Patient Involvement"

    34:03 Breathwork: Transformative Journey to Wellness

    39:19 Golf Rediscovery Through Scientific Approach

    45:35 Connecting Evidence for Effective Dementia Care

    48:57 Reddit's Role in AI and Research

    53:43 Promoting Supportive Society Mindset

    01:02:41 Motivational Research Impact

    01:04:31 Community Connection Reduces Dementia Risk

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    1 h et 7 min
  • S2 E1 - "Start Here" (for new listeners) + Fairy Godmother Interview
    Sep 21 2025

    If you’re new here, this is the episode we recommend starting with. In this special kick-off to Series 2, co-hosts Leon, Fran and Tom interview Cherylnn Harper — described as the 'Fairy Godmother' of the podcast, she kickstarted the supportive Dementia community that Fran and Tom are part of.

    This episode is all about fresh beginnings and real-life inspiration. Leon explains the renewed mission of the podcast: sharing powerful stories and practical strategies for behavior change, whether you’re facing mild cognitive decline or living with dementia.

    With moving, personal accounts—Tom talks about returning to golf this summer, working in a pub, and cycling long distances, 8 years on from diagnosis; Fran shares how quick diagnosis and positive support expand her years of “living well”; and Cherylnn, reveals how community groups like Sedgemoor are transforming lives.

    Listeners will hear about:

    The importance of laughter, activity, and camaraderie in daily life with dementia.

    How behaviour changes—like diet, social connections, and mental engagement—make a difference.

    The power of peer support both for those living with dementia and the carers who support them.

    Why tackling isolation and embracing community can be life-changing.

    How the show will keep digging into the latest research, personal stories, and expert advice to help everyone “fight dementia” together.

    If you want to learn about living positively with dementia, get science-backed advice, or simply feel part of an uplifting, no-nonsense community, you’re in the right place.

    We can’t wait for you to join our journey—starting right here with Season 2, Episode 1!

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    1 h et 14 min
  • S1 Ep 9: Learning the trombone with Posterior Cortical Atrophy, Dawn's story...
    Sep 15 2025
    What do you get when you combine a 27-mile cycling achievement and the discovery that having "the face for a trombone" is apparently a real thing? Just another day in the lives of people living well with dementia. In this episode, hosts Leon, Tom, and Fran continue their candid conversations about living with dementia, joined by special guests Dawn and Meryl. The discussion covers the realities of diagnosis, medication changes, and maintaining active lifestyles despite cognitive challenges. Tom shares updates on his new medication regimen following a recent scan after a fall, whilst continuing his impressive cycling achievements - recently completing a 27-mile ride. The conversation explores the often lengthy and frustrating diagnostic process, with guests sharing how they were initially misdiagnosed with depression or the menopause before receiving accurate dementia diagnoses. Dawn and Meryl bring a fresh perspective as they discuss Dawn's diagnosis with Posterior Cortical Atrophy (PCA) - the same rare form of dementia that affected author Terry Pratchett. They explore how this condition particularly impacts visual processing and spatial awareness, affecting everything from driving to reading music, despite normal eyesight. The episode highlights the importance of community support through organisations like the Alzheimer's Society and local support groups. Musical therapy takes centre stage as Dawn and Meryl share their journey learning trumpet and trombone, with audio clips of their brass band performances demonstrating how new skills can be therapeutic and rewarding. Practical challenges are addressed honestly - from losing independence and driving licences to dealing with loud environments and managing daily tasks that now take much longer. The conversation also touches on the impact on partners and relationships, challenging the terminology of "carer" versus maintaining equal partnerships. Throughout, the tone remains hopeful and pragmatic, emphasising that whilst dementia changes lives significantly, people can still find joy, pursue new interests, and maintain meaningful relationships. The episode reinforces the central message that a dementia diagnosis isn't an immediate end to living well, but rather requires adaptation and community support to thrive. Resources Mentioned in Episode: Support Organizations: Alzheimer's Society: www.alzheimers.org.uk (Helpline: 0330 333 0804) Men in Sheds Association: www.menssheds.org.uk (Community workshops for men's wellbeing) Medical Resources: NHS Dementia Information: www.nhs.uk/conditions/dementia NHS Memory Assessment Services (contact via your local NHS trust) Memantine (medication) - discuss with your GP or memory clinic Technology & Daily Aids: Amazon Alexa: www.amazon.co.uk/alexa (Voice assistant for reminders and daily support) Cultural Resources: Van Gogh Museum, Amsterdam: www.vangoghmuseum.nl Van Gogh: The Immersive Experience (touring exhibitions): www.vangoghexpo.com Books Mentioned: Terry Pratchett novels (Discworld series) Vincent van Gogh: The Letters (available at major bookstores) Fiona Phillips' books on Alzheimer's (available at major bookstores) Activity Resources: British Association for Music Therapy: www.bamt.org Cycling UK: www.cyclinguk.org Local brass bands and music groups (search via your local council website) Finding Local Support: Search "dementia support groups near me" on NHS website Contact your local Adult Social Services Ask your GP for local memory services referrals For Specific Conditions: Posterior Cortical Atrophy (PCA): Contact Alzheimer's Society for specialist support Rare Dementia Support: www.raredementiasupport.org Episode Chapters: 00:00 - Introduction & Welcome 00:14 - Tom's New Medication & 27-Mile Cycling Achievement 02:23 - Garden Party Reflections & Alzheimer's Society Support 05:01 - Challenging Public Misconceptions About Dementia 13:08 - Diagnostic Journey Challenges & Medical Advocacy 19:38 - Introduction of Dawn & Meryl: Valentine's Day Diagnosis 25:19 - Dawn's Occupational Health Nightmare & GP Support 43:19 - Understanding Posterior Cortical Atrophy (PCA) 50:02 - Daily Life Changes & Technology Adaptations 1:04:32 - "Don't Get a Puppy" - Practical Advice for New Diagnoses 1:25:52 - Community Support & Sedgemoor Group Reflections
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    1 h et 32 min
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