Épisodes

  • S2 E2- Holistic approach to dementia care with Rosie Whittington

    S2 E2- Holistic approach to dementia care with Rosie Whittington
    Sep 29 2025

    In this episode, co-hosts Fran, Tom and Leon Leon share an honest catch-up on their wellbeing journeys—touching on everything from cutting out sugar and walking more, to the power of behaviour change and building new habits that support a healthy brain.

    Later in the show, we welcome the inspiring Rosie Whittington, founder of the Me To You Dementia Day Centre, who shares her story as a mental health nurse turned innovative care leader, championing holistic, person-centred support for people living with dementia.

    You’ll hear practical tips, a deep dive into how environment and community shape our health, and real-life stories about adapting, persevering, and finding joy and purpose—no matter where you are on your dementia journey.

    Plus, we round off with Reminiscence Corner, reflecting on skill-building and the importance of social connection.

    Whether you’re living with dementia, caring for someone who is, or passionate about wellbeing, there’s something here for everyone.

    Mentioned in the podcast & links to further reading:

    • Hydration & diet for brain health — Practical, evidence‑based tips on cutting free sugar, choosing whole foods and keeping well hydrated to support cognition and lower dementia risk; useful guidance for older people and carers. https://www.nhs.uk/live-well/eat-well/eating-well-with-dementia/

    • Bredesen’s “reversal” approach — Overview of Dr Dale Bredesen’s metabolic protocol and case series: intriguing but preliminary and controversial, not yet established as mainstream treatment. https://pubmed.ncbi.nlm.nih.gov/25414524/

    • Problem Adaptation Therapy (PAT) — A short‑term, home‑based behavioural intervention for depression with cognitive impairment that reduces symptoms and improves function in trials. https://pubmed.ncbi.nlm.nih.gov/25821902/

    00:00 Water, Walking, and Dementia Care

    05:41 TV Presenter Faces Health Challenge

    11:11 Behavioral Science and Habit Building

    17:15 Implementation Intention Strategies

    23:12 Supporting Dementia Care at Home

    27:31 "Empowering Patient Involvement"

    34:03 Breathwork: Transformative Journey to Wellness

    39:19 Golf Rediscovery Through Scientific Approach

    45:35 Connecting Evidence for Effective Dementia Care

    48:57 Reddit's Role in AI and Research

    53:43 Promoting Supportive Society Mindset

    01:02:41 Motivational Research Impact

    01:04:31 Community Connection Reduces Dementia Risk
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    1 h et 7 min
  • S2 E1 - "Start Here" (for new listeners) + Fairy Godmother Interview

    S2 E1 - "Start Here" (for new listeners) + Fairy Godmother Interview
    Sep 21 2025

    If you’re new here, this is the episode we recommend starting with. In this special kick-off to Series 2, co-hosts Leon, Fran and Tom interview Cherylnn Harper — described as the 'Fairy Godmother' of the podcast, she kickstarted the supportive Dementia community that Fran and Tom are part of.

    This episode is all about fresh beginnings and real-life inspiration. Leon explains the renewed mission of the podcast: sharing powerful stories and practical strategies for behavior change, whether you’re facing mild cognitive decline or living with dementia.

    With moving, personal accounts—Tom talks about returning to golf this summer, working in a pub, and cycling long distances, 8 years on from diagnosis; Fran shares how quick diagnosis and positive support expand her years of “living well”; and Cherylnn, reveals how community groups like Sedgemoor are transforming lives.

    Listeners will hear about:

    The importance of laughter, activity, and camaraderie in daily life with dementia.

    How behaviour changes—like diet, social connections, and mental engagement—make a difference.

    The power of peer support both for those living with dementia and the carers who support them.

    Why tackling isolation and embracing community can be life-changing.

    How the show will keep digging into the latest research, personal stories, and expert advice to help everyone “fight dementia” together.

    If you want to learn about living positively with dementia, get science-backed advice, or simply feel part of an uplifting, no-nonsense community, you’re in the right place.

    We can’t wait for you to join our journey—starting right here with Season 2, Episode 1!
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    1 h et 14 min
  • S1 Ep 9: Learning the trombone with Posterior Cortical Atrophy, Dawn's story...

    S1 Ep 9: Learning the trombone with Posterior Cortical Atrophy, Dawn's story...
    Sep 15 2025
    What do you get when you combine a 27-mile cycling achievement and the discovery that having "the face for a trombone" is apparently a real thing? Just another day in the lives of people living well with dementia. In this episode, hosts Leon, Tom, and Fran continue their candid conversations about living with dementia, joined by special guests Dawn and Meryl. The discussion covers the realities of diagnosis, medication changes, and maintaining active lifestyles despite cognitive challenges. Tom shares updates on his new medication regimen following a recent scan after a fall, whilst continuing his impressive cycling achievements - recently completing a 27-mile ride. The conversation explores the often lengthy and frustrating diagnostic process, with guests sharing how they were initially misdiagnosed with depression or the menopause before receiving accurate dementia diagnoses. Dawn and Meryl bring a fresh perspective as they discuss Dawn's diagnosis with Posterior Cortical Atrophy (PCA) - the same rare form of dementia that affected author Terry Pratchett. They explore how this condition particularly impacts visual processing and spatial awareness, affecting everything from driving to reading music, despite normal eyesight. The episode highlights the importance of community support through organisations like the Alzheimer's Society and local support groups. Musical therapy takes centre stage as Dawn and Meryl share their journey learning trumpet and trombone, with audio clips of their brass band performances demonstrating how new skills can be therapeutic and rewarding. Practical challenges are addressed honestly - from losing independence and driving licences to dealing with loud environments and managing daily tasks that now take much longer. The conversation also touches on the impact on partners and relationships, challenging the terminology of "carer" versus maintaining equal partnerships. Throughout, the tone remains hopeful and pragmatic, emphasising that whilst dementia changes lives significantly, people can still find joy, pursue new interests, and maintain meaningful relationships. The episode reinforces the central message that a dementia diagnosis isn't an immediate end to living well, but rather requires adaptation and community support to thrive. Resources Mentioned in Episode: Support Organizations: Alzheimer's Society: www.alzheimers.org.uk (Helpline: 0330 333 0804) Men in Sheds Association: www.menssheds.org.uk (Community workshops for men's wellbeing) Medical Resources: NHS Dementia Information: www.nhs.uk/conditions/dementia NHS Memory Assessment Services (contact via your local NHS trust) Memantine (medication) - discuss with your GP or memory clinic Technology & Daily Aids: Amazon Alexa: www.amazon.co.uk/alexa (Voice assistant for reminders and daily support) Cultural Resources: Van Gogh Museum, Amsterdam: www.vangoghmuseum.nl Van Gogh: The Immersive Experience (touring exhibitions): www.vangoghexpo.com Books Mentioned: Terry Pratchett novels (Discworld series) Vincent van Gogh: The Letters (available at major bookstores) Fiona Phillips' books on Alzheimer's (available at major bookstores) Activity Resources: British Association for Music Therapy: www.bamt.org Cycling UK: www.cyclinguk.org Local brass bands and music groups (search via your local council website) Finding Local Support: Search "dementia support groups near me" on NHS website Contact your local Adult Social Services Ask your GP for local memory services referrals For Specific Conditions: Posterior Cortical Atrophy (PCA): Contact Alzheimer's Society for specialist support Rare Dementia Support: www.raredementiasupport.org Episode Chapters: 00:00 - Introduction & Welcome 00:14 - Tom's New Medication & 27-Mile Cycling Achievement 02:23 - Garden Party Reflections & Alzheimer's Society Support 05:01 - Challenging Public Misconceptions About Dementia 13:08 - Diagnostic Journey Challenges & Medical Advocacy 19:38 - Introduction of Dawn & Meryl: Valentine's Day Diagnosis 25:19 - Dawn's Occupational Health Nightmare & GP Support 43:19 - Understanding Posterior Cortical Atrophy (PCA) 50:02 - Daily Life Changes & Technology Adaptations 1:04:32 - "Don't Get a Puppy" - Practical Advice for New Diagnoses 1:25:52 - Community Support & Sedgemoor Group Reflections
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    1 h et 32 min
  • S1 Ep 8: Music better than medication? Dean from Playslists for Life & Dementia Radio

    S1 Ep 8: Music better than medication? Dean from Playslists for Life & Dementia Radio
    Aug 22 2025

    In this heartfelt episode of Fighting Dementia Podcast, we hear from Frank, sharing his perspective as a carer supporting his wife Fran through her dementia journey. Frank opens up about the gradual changes he noticed, how they've adapted their daily life together, and the importance of maintaining normalcy while accepting their new reality.

    We're also joined by Dean McShane, a mental health senior lecturer and director of Merseyside Dementia Friendly Radio - the UK's first DAB dementia-friendly radio station. Dean shares fascinating insights about the power of music as a therapeutic intervention for people with dementia, explaining how personalized playlists can be more effective than medication in reducing agitation and improving quality of life.
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    1 h et 6 min
  • S1 Ep 7: 'I nip down the garden and fire my air rifle to destress'

    S1 Ep 7: 'I nip down the garden and fire my air rifle to destress'
    Jul 7 2025
    In this heartfelt and uplifting episode, Tom returns as a regular co-host to share his powerful story of living with dementia for over seven years. Alongside Fran and the group, we dive into the real, everyday experiences of life after diagnosis—exploring the emotional challenges, shifting relationships, and surprising moments of joy that come with it. From tackling loneliness and fatigue to embracing new routines, social circles, and even carol-singing in July, this episode is full of honest reflections, laughter, and practical tips. We cover everything from reminiscence therapy and staying active to adapting to changes in diet, sleep, and identity. Whether you’re navigating dementia yourself, supporting someone who is, or just curious to understand more, this conversation offers hope, connection, and proof that life with dementia can still be full of meaning—and even laughter. Resources in this episode: Organisations, Charities & Support Alzheimer’s Society Mentioned as a key support organization. https://www.alzheimers.org.uk/ Playlist for Life Referenced for music therapy and as an upcoming guest. https://www.playlistforlife.org.uk/ Sedgemoor Dementia Group Local dementia community group frequently discussed (no direct, unified link; may be local to Liverpool. More info here or add your specific group). Central Library Liverpool Dementia Group Saturday group referenced. https://www.liverpool.gov.uk/librarie... Dementia Action Alliance Referenced in context of advocacy/events. https://www.dementiaaction.org.uk/ Therapy & Advice Reminiscence Therapy Discussed as a beneficial therapy for people living with dementia. NHS Info on Reminiscence Therapy Media, Events, & Other References Matilda (Film) Referenced during discussion about cake. Matilda at IMDb Harry Worth (Comedian) Reference to an old UK comedian known for a specific shop window routine. Harry Worth: Wikipedia Classic Harry Worth Clip on YouTube Services Mentioned Primark Quiet Shopping Hour Providing dementia/autism-friendly shopping times. https://corporate.primark.com/en-gb/a... Morrisons Quiet Hour Also providing accessible shopping periods. https://my.morrisons.com/blog/morriso... Clinical Concepts Neuroplasticity Topic discussed as a brain health concept. Alzheimer’s Society: Neuroplasticity 00:00:07 – Introductions & Setting the Scene Welcoming Tom as a returning guest and new co-host, overview of the group's aim to provide support and positivity for those living with dementia. 00:03:11 – Life with Dementia: Staying Positive Sharing personal approaches to diagnosis, the shock, combatting loneliness, and the importance of social connections. 00:07:27 – Past Lives and Identity Talking about careers before diagnosis, loss of professional identity, and the value of sharing life stories. 00:12:29 – Reminiscence Therapy and Memory Introduction to reminiscence therapy, short-term vs long-term memory, and how past memories surface. 00:15:16 – Music, Dancing, and Staying Active Discussion about Dr. Ivan’s advice, benefits of dance, singing, and laughter even without formal therapy. 00:15:57 – Support Systems: Alzheimer’s Society & Navigators How the Alzheimer’s Society and dementia navigators help explain symptoms, support families, and reduce anxiety. 00:18:29 – Stress, Fatigue, and Coping Strategies Managing the impact of stress on symptoms, using rest, hobbies, and routines to cope with difficult days. 00:28:56 – Social Groups & Carers Recognition of carers, the importance of community groups like Sedgemoor, and the realities carers face. 00:33:41 – Humour, Acceptance & New Purpose How humour, perspective shift, and the podcast itself offer purpose and enjoyment despite challenges. 00:34:45 – Music Memories & Technology Using music (Playlist for Life, Alexa), how songs stick in the mind, and the practical use of reminders and prompts. 00:36:19 – Changes in Diet and Taste Discussion about changes in taste/smell, diet adaptations, cravings for sweet and spicy food. 00:43:01 – Maintaining Confidence & Activity Rebuilding confidence after diagnosis, staying active, practical solutions to day-to-day challenges. 00:52:44 – Daily Routines, Coping with Change Adapting routines, home adaptations (stairs, planning, navigation), and accidents resulting from symptoms. 01:00:04 – Understanding and Preventing Dementia Discussion on neuroplasticity, risk factors, doubts about preventability, and hopes for societal understanding. 01:05:00 – Reflections, Support, and Next Steps Personal reflections, podcast aims, advice for newly diagnosed, and plans for future episodes/guests.
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    1 h et 7 min
  • S1 Ep 6: 'I wasn't funny until I got Dementia' - Tom's Story

    S1 Ep 6: 'I wasn't funny until I got Dementia' - Tom's Story
    Jun 3 2025
    'It's brought us closer since I was diagnosed' Tom's story is one of hope and finding the positives of a dementia diagnosis. Joined by his wife, Miriam, who has been with him all the way through his journey. The pair of them discuss how they find humour and positives whilst facing the disease. Attributing his dementia to a sense of humour, Tom is living proof that you can indeed live well with dementia. Alzheimer's Society The guests reference the Alzheimer's Society, mentioning support, groups, resources, and the "Dementia Talking Point" community forum. Website: https://www.alzheimers.org.uk Dementia Talking Point: https://forum.alzheimers.org.uk Carers Trust Mentioned as a source of support for carers searching for groups and help. Website: https://carers.org Tide (Together in Dementia Everyday) Referenced in relation to a carers’ group meeting at a Liverpool library. Website: https://www.tide.uk.net Young Onset Dementia Groups (such as Sedgemoor Group) Specific local groups are mentioned, including the "Sedgemoor group" in Liverpool. While not a national resource, some information may be found via local council or dementia support websites: Liverpool Dementia Action Alliance: https://www.dementiaaction.org.uk/loc... Cheshire "Men in Sheds" Tom mentions trying the "Men in Sheds" initiative, a community project for men (not exclusive to dementia support, but commonly used as a social support option). Age UK (example Men in Sheds programme): https://www.ageuk.org.uk/services/in-... Liverpool to Chester Bike Ride / Alzheimer’s Society Glow Walk These are referenced as fundraising and community participation events: Liverpool to Chester Bike Ride: https://www.liverpoolchesterliverpool... Alzheimer’s Society Glow Walk: https://www.alzheimers.org.uk/get-inv... Life360 Described as a tracker app for safety and independence. Website: https://www.life360.com William Brown Street Library (Liverpool Central Library) Mentioned as a venue for the TIDE group. Website: https://liverpool.gov.uk/libraries
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    56 min
  • S1 Ep 5: Dancing to Fight Dementia with Dr. Ivan Koychev Oxford & Imperial Based Research Scientist

    S1 Ep 5: Dancing to Fight Dementia with Dr. Ivan Koychev Oxford & Imperial Based Research Scientist
    Apr 24 2025

    Can we really spot the signs of dementia 20 years before symptoms appear?

    In this episode, host Leon Rossiter and co-host Stephen sit down with leading psychiatrist and dementia researcher Dr. Ivan Koychev to explore how science is rewriting what we know about brain health and prevention.

    Dr. Koychev, based at Imperial College London, dives into cutting-edge research on early risk detection, the potential of blood biomarkers, and why repurposing diabetes medications could be a game-changer in the fight against Alzheimer’s. The team also explores innovative tools like the Five Lives app, personalized risk assessments, and how lifestyle changes could prevent up to 40% of dementia cases. Later in the episode, they discuss what life can look like after a diagnosis—touching on the power of learning, community, and therapies that keep the mind engaged.

    Whether you’re concerned about your own risk, supporting a loved one, or simply staying informed, this episode is packed with practical advice and fresh hope for the future of dementia care.

    Resources in this episode: 1. Great Minds (Brain Health Volunteer Register) What is it? A register where people can sign up to contribute to and participate in dementia research, including cognitive tests, genetic screening, and possible involvement in clinical trials. Website: https://www.greatmindsfordementia.uk 2. Five Lives App What is it? A free app designed to help people assess their risk of dementia, understand modifiable risk factors, and receive recommendations on lifestyle changes. Website: https://www.fivelives.health/ (Available on both the App Store and Google Play) 3. Lancet Commission Paper on Dementia Prevention What is it? Referenced in the discussion as the source suggesting that 40%-50% of dementia cases may be preventable due to modifiable risk factors. Link to the most recent paper: https://www.thelancet.com/commissions...
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    50 min
  • S1 Ep 4: 'Love To Move' Gymanstics for those with Dementia

    S1 Ep 4: 'Love To Move' Gymanstics for those with Dementia
    Mar 3 2025
    In this episode of the Fighting Dementia Podcast, Leon welcomes Fran as the new co-host, making her debut after originally appearing as a guest in episode three. Fran, who embodies living well with dementia, shares her journey and insights on embracing life after diagnosis. Together, they welcome Nicole from the British Gymnastics Foundation, who introduces the innovative "Love to Move" program, designed to enhance cognition and social engagement for those living with dementia. Nicole discusses the science behind the program, shares heartwarming success stories, and offers practical exercises that listeners can try. The episode encourages listeners to engage with community, embrace available resources, and find empowerment in shared experiences. Tune in for an inspiring conversation on making the most of life with dementia and the powerful impact of movement and connection. Resources in this episode: 1. Fighting Dementia Podcast Website Purpose: The main site for subscribing to the podcast and receiving updates. Link: https://fightingdementiapodcast.com 2. British Gymnastics Foundation Purpose: The foundation behind the "Love to Move" program and other community initiatives. Link: https://britishgymnasticsfoundation.org 3. Love to Move Program Purpose: A seated, dementia-friendly cognitive enhancement exercise program. Learn More: Love to Move Overview at British Gymnastics Foundation 4. Love to Move on YouTube Purpose: Free "Love to Move" sessions (including during COVID-19, with music from various decades). Link: Love to Move Sessions on YouTube 5. British Gymnastics Foundation Social Media For regular updates, stories, and community engagement: Facebook: / britishgymnasticsfoundation Instagram: / britishgymnasticsfoundation YouTube: / @britishgymnasticsfoundation 6. Age UK Purpose: Supported the foundational research and pilot for Love to Move. Link: https://www.ageuk.org.uk/ 7. Everton in the Community & Liverpool FC Community Purpose: Mentioned as organizations whose staff have trained in the Love to Move program. Everton in the Community LFC Foundation 8. Dementia Action Alliance Purpose: Referenced in relation to community initiatives and support for dementia. Link: https://www.dementiaaction.org.uk/ 9. Alzheimer’s Society Purpose: Mentioned for their group support and collaboration with the Love to Move program. Link: https://www.alzheimers.org.uk/ Note: If you’re interested in joining a Love to Move class, training as a deliverer, or finding a community group, contact the British Gymnastics Foundation via their contact page or check their course listings.
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    41 min