Medical Developments

When their only child was diagnosed with cystic fibrosis (CF) at the age of two, Maryanne O'Hara and her husband were told that Caitlin could live a long life or be dead in a matter of months. Thirty-one years later, Caitlin lost her battle with this devastating disease following an excruciating two-year wait on the transplant list and a last-minute race to locate a pair of healthy lungs. The sudden spiral of events left Maryanne in an existential crisis, searching to find an answer to the eternal question: Why we are here?

Nicky, a witty, intelligent, and clever 13-year-old, was diagnosed with a rare childhood bone cancer. However, this book is about more than cancer and its treatment and the fight to survive. It's about more than a mother and her son who accepted his mortality at such a young age and the strength and love between two loving souls.

On the surface, Victoria Jackson is the American Dream personified: from a troubled childhood and unfinished high school education, she overcame immeasurable odds to create a cosmetics empire valued at more than half a billion dollars. Married to Bill Guthy - self-made principal of infomercial marketing giant Guthy-Renker - Victoria’s most treasured role is mother to three beautiful, beloved children, Evan, Ali, and Jackson. Suddenly, Victoria’s dream life is broken....

Lene Fogelberg is dying - she is sure of it - but no doctor in Sweden, her home country, believes her. Love stories enfold her, with her husband, her two precious daughters, her enchanting surroundings, but the question she has carried in her heart since childhood - will I die young? - is threatening all she holds dear, even her sanity. When her young family moves to the US, an answer, a diagnosis, is finally found: She is in the last stages of a fatal congenital heart disease. But is it too late?

Thaïs is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. Two Small Footprints in Wet Sand relates the overwhelming tragedy experienced by a family as a result of a genetic disorder.

Die ergreifenden Schilderungen des Friedensnobelpreisträgers von 2018. Denis Mukwege, weltbekannter kongolesischer Gynäkologe und Menschenrechtsaktivist, hat es sich zur Lebensaufgabe gemacht, Opfern sexueller Gewalt zu helfen. Er erhielt 2018 den Friedensnobelpreis für seinen Einsatz für die Gesundheit und Rechte von Frauen in der Demokratischen Republik Kongo. Im Hörbuch verwebt er seine eigene dramatische Lebensgeschichte mit den Schilderungen einzelner Frauenschicksale.

Kimberly Wyse is a blogger, speaker, and Down syndrome advocate, who tells the story of the traumatic birth of her much-anticipated third child, who was diagnosed at birth with trisomy 21 (Down syndrome) and had major medical complications that almost took his life several times. Through the gift of extreme medical intervention and God’s miraculous answers to prayer, this precious boy has exceeded everyone’s expectations and is a joy to his family today.

February 29th is a date that comes into existence just once every four years. It is also the birthday of Thais - author Anne-Dauphine Julliand's darling daughter - who died of a genetic disease. Thais lived just shy of her fourth birthday. She had a short life but good one. As this special day is about to reappear on her calendar for the first time since her daughter passed away, Anne-Dauphine struggles with how to mark this momentous occasion. She wants to live fully on this special day: Thais would have been eight years old.

Martha is ambitious, competitive, successful, and now divorced. As she seeks to reinvent herself, she joins a dating site looking for companionship. Instead, she finds her soul mate in Stephan. They do everything together: work, travel, dance, sing, and love. Everything changes when Stephan is diagnosed with frontotemporal degeneration (FTD) and then with amyotrophic lateral sclerosis (ALS—Lou Gehrig's disease). As the diseases progress, the dynamic, vivacious man Martha married disappears. Does Martha have what it takes to care for him?

Sixteen years ago, Juli Boit, a 25-year-old nurse practitioner, moved from Los Angeles to a small village in Kenya to be a part of an HIV program. In 2009, she founded a hospice called Kimbilio where men, women, and children come either to heal or to be loved until they die. On an ordinary Friday afternoon in 2016, a three-pound baby boy, Ryan, wrapped in pink was brought to Kimbilio. He had been born prematurely earlier that week. His mom passed away while giving birth, and neighbors miraculously kept Ryan alive on water alone for five days until they brought him to the hospice.

Two months to live. That's what the doctor says. Sally responds with grace and optimism. Marisa responds by closing herself off. If her mother is going to die before she graduates from high school, why even try. Cancer has already ruined everything. Honest and heartfelt, The Goodbye Diaries offers a touching glimpse into both sides of a terminal diagnosis - the one who will leave and the one who will be left behind.

Renowned as a BBC journalist, Victoria Derbyshire has spent 20 years finding the human story behind the headlines. In 2015 she was diagnosed with breast cancer. With honesty and openness, she decided to live out her treatment and recovery in the spotlight in a series of video diaries. Victoria has kept a diary since she was nine years old, and in Dear Cancer, Love Victoria she shares her day-to-day experiences of life following diagnosis and coming to terms with a future that wasn't planned.

When Wall Street Journal reporter Amanda Bennett meets the eccentric, infuriating, yet somehow irresistible Terence Bryan Foley while on assignment in China, the last thing she expects is to marry him. They are so different - classic and bohemian, bow ties and batik, quirky and sensible. But Terence is persistent. "You are going to be somebody," he tells her. "You’re going to need somebody to take care of you."

After a tumor bursts in Mike Scalise's brain, leaving him with a hole in the head and malfunctioning hormones, he must navigate a new alien world of illness maintenance. His mother, who has a chronic heart condition and a flair for drama, becomes a complicated model as she competes with him for the status of "best sick person". The Brand New Catastrophe is a moving, funny exploration of how we define ourselves by the stories we choose to tell.

What is the thing most of us search for, sing about, cry about, that research has all wrong? The secret to the rarest, most passionate love that never ends.

The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones.

Anne McTiernan begins her second memoir in 1982 at age 29, soon after completing her doctoral training in public health research at the University of Washington. She and her husband are now parents to 4-year-old and 3-month-old girls. Realizing that jobs in her field are scarce, especially for women, Anne decides the only option for their financial security is to become a medical doctor. Overcoming her fear and life-long struggle with inadequacy, she moves the family 3,000 miles to New York to begin medical school.

A journey through the deepest valleys and highest peaks of parenting. When a two-month old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying.

When Madeleine Dean discovered that her son Harry was stealing from the family to feed a painkiller addiction, she was days away from taking the biggest risk of her life: running for statewide office in Pennsylvania. For years, she had sensed something was wrong. Harry was losing weight and losing friends. He had lost the brightness in his eyes and voice, changing from a young boy with boundless enthusiasm to a shadow of himself, chasing something she could not see. Now her worst fears had come to light.

This guide is designed to support you through the caregiving journey, offering tools to stay prepared and find moments of joy along the way. Gain confidence, support your loved one through every stage, and nurture the bond that means so much to you.